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Krystal K.

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Krystal K.

  1. 8 months pre-diagnosis dr says "what do you think it could be?".......ummmm if i had a clue i wouldnt be here.....6 months pre-diagnosis "hmmm I wonder if you have celiacs?" .....but didn't test me for it instead ordered a nerve conduction test & a brain mri... man if only she went with her gut and actually tested me for celiacs back then, I would've...
  2. ugh yea i dream sometimes of eating oreos with my husband and then I say oh no why am i eating these? ... then theres the occasional taco bell and chinese take out dream..only if I smelt it that day or someone was talking bout it though! hopefully they stop soon its weird how food can haunt us!
  3. wow I forgot about this ..This happened to me at my peek of symptoms of gluten ataxia.. It never happened in my life before that though, but once the ataxia got to the point of wobbly knees and difficulty. reading and writing, I kept having these and I remember trying to explain it, was frightening!! ...it does sound like a sepearate sleep disorder ..but...
  4. All I know is when I first got diagnosed I was seeing so many dr. and they had told me my adrenals were on there way to being a "burnt out" ..I never fully understood it but once I was eating gluten free for a while and I also took...a lot of different natural supplements the glands got stronger...I remember them saying things like "when they are hyper active...
  5. I'd try and get your hands on some deli meats roll it up in some romane lettuce (cheaper than the gfreebread) put some tomato or whatever else veggies you want in it for a sandwich.. you can pack some tunafish in a Tupperware (although not supposed to eat that often!) there are cheap gluten free things not going to say they are the healthiest ..but for cheap...
  6. mine used to fall out a lot ..i was told that was due to malnutrition and that has been a lot better! it just seems strange I tried to read about it online and people say mostly if you are pregnant it can change..so now im thinking maybe its hormonal and not so much celiac...but then I go back to remembering that my cycle was off before and just regulating...
  7. Hello, I'm just wondering if anyone of you have experienced this before...I've been gluten free for almost a year and just recently noticed my hair growing in a different color...I have Dark brown hair, and the past weeks I kept thinking my hair was greying (im 25 year old female) ...and now that it is a little longer I can see it is not grey but blonde...
  8. I'm newer to this too, but I asked my Dr. and he said that topical gluten is fine but like Mushroom said if it gets ingested at all it can become a problem...So I've gotten rid of mascara and some lotions chapsticks and my Big Sexy Hair shampoo :/ to me its just not worth the risk!
  9. celiac but I have mostly neuro.symptoms.. its ataxia. idk if this makes any difference as far as cycles go but I have been dairy intolerant for years and recently learned gluten and also corn.
  10. I really started having these episodes about 1 year ago. It started for me with rushes of adrenaline and then clamminess. I really thought I was having anxiety or something ..and I ignored it. Then after eating at red lobster my "anxiety" went from tolerable to intolerable. I went to the drs thinking they were either going to say I developed and allergy to...
  11. omg it sounds so familiar Im not driving yet, no way But I hope to again and i can't believe how nice... although terribly unfortunate that you all had to go through this ...it is for me to hear some stories because a lot of people around here think..or make me feel like its "all in my head" or they think I can have a little bit and be ok.. I too had the...
  12. came across this and well , just saying ..Im 25 and for the past 6 years I have had little to no cycle ..like 4-6 periods a year.was on the pill came off the pill in oct...and since nov. I have gotten it each month AND been gluten free since Nov. too interesting
  13. Thanks to responding I can see how it can get to the point where you need to be aided. I was leaning up on walls mostly and gave up on using my bed up the stairs in my house. I am very happy that it is getting better. But like both of you said I still need to heal! I had a rougher start to it then I would've thought... and it was all CC that got me.(toaster...
  14. Hey there, I was diagnosed with a gluten intolerance called gluten ataxia this past november. I am still learning the rules and ya know changing my lifestyle around but I am curious does anyone here have this? Symptoms include: dizziness, unstable gait.. meaning trouble walking straight..things kind of "float" around you like you're in a dream world. I...
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