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Maryw88

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Maryw88

  1. Thanks everyone! Sometimes you just need to know you are not the only one in this cruddy boat? I really appreciate everyone's replys. I totally agree, gotta be tough and gotta be positive. I just couldn't smile about it yesterday. Reading everyone's experiences does help though. Maybe one day we will all get dairy back!!! It can happen!
  2. I tried GAPS but I couldn't tolerate all the fermented veggies. Turns out the corn based vinegar was killing me. Thats actually how I discovered I was corn intolerant! Ha!
  3. How long did it take you to get some of those foods back? I feel like 1 1/2 years is a long time but....well I MIGHT be impatient.
  4. Feeling a little overwhelmed and sorry for myself today. For the past 3 years I've been learning about my gluten intolerance. I am intolerant of gluten, soy, dairy, corn (and corn products such as vinegar and citric acid), gluten-free oats, quinoa and nightshades including tomato and potato. This even includes liquor like potato vodka. I know I'm SUPPOSED...
  5. Hi everyone, I've been strictly gluten free for about 1 year. I do not have diagnosed celiac disease but I know I was very sick before I cut it out. When I went gluten free I noticed I felt much better but about 3 months in noticed a soy intolerance. Then came lactose then casein and most recently chicken, potato, Certified gluten-free oats, quinoa...
  6. Oddly enough I haven't noticed a reaction to water bottles? I don't do soda or most tea either. I can handle trace amounts but not quite THAT sensitive. What about the wax on fruit? I find I do ok with whole foods fruit. How about you? Weird things they add it to right!? Do you do medication? I have a few I take that I know have corn as a binding...
  7. Would be great if that were the case. Its EXTREMELY common for corn sensitive people to react to iodized salt. Before I learned corn was the problem I thought I was reacting to tomatoes, beans, soups...everything. Then I thought, oh CORN! Turns out as long as I avoid the iodized salt in these items I am fine. Iodized salt bothers most people with corn...
  8. OK, you guys are awesome! Sounds like ethnic restaurants and local chef's are the way to go. I'm nervous but I'm going to try it out! I'll check in and let you know how it goes. Thanks so much for the ideas everyone! Keep em coming!
  9. Thank you! I had been thinking about more ethnic foods (Chicago is a jackpot there). I was actually getting gutsy enough to think about Indian food this weekend but thought I'd hop on here first. You confirmed my confidence! Sushi too huh? Alright, I'm going in!
  10. Thanks! That actually sounds really helpful. I suppose its the idea of trying to explain all of this to a server or chef. A list is a great idea!
  11. Thanks so much. I have to say, with my luck, perhaps I am reacting to both. I appreciate the recommendation on the salad
  12. Again, I know how to avoid the foods at home. Anyone with similar issues that has figured out how to eat in a restaurant? Honestly, corn has been harder to avoid than gluten. The combo....makes restaurant eating pretty difficult. I'd really appreciate anyone's ideas on how to handle it.
  13. Iodized salt contains corn. Its a binding agent. Salt in the US has iodine added to it. That means corn too. I can hav things with sea salt because they are not iodized. Corn is in LOTS of things. It just depends on how reactive you are. I personally can't even tolerate distilled vinegar or liquors made from corn. Citric acid (usually made from corn...
  14. I have some pretty itchy skin but most of my issues are gastro. I react to iodized salt due to corn as the binding agent. I have only been STRICTLY gluten free for about a year or so. I thought I was gluten free, oh the lessons we learn. So, I know I'm still healing.
  15. My food issues began several years ago. I am a self-diagnosed celiac. I have been tested for allergies and have none. I first discovered gluten was a problem a few years ago then discovered soy, casien, corn, chicken, coffee and even peanuts made me sick as well. The best part is that I feel the best I've ever felt. I know I am finding my health again...
  16. How do you heal a leaky gut? I am intolerant to many foods now. Including most grains (I can eat rice), citrus, soy, dairy, tomato, chicken (yeah....chicken), peanuts, chickpeas, potatoes. I went gluten light (thought it was gluten-free, oh the learning curve) two years ago after much frustration with the medical community. I didn't even consider celiac...
  17. Hi everyone, I was wondering if anyone knows of any active support groups in the Chicago area. I am near Evanston too. I would love to get together with some people going through the same things.
  18. Wow, Thank you everyone! I know 1 month doesn't sound like much but this has felt like a long time. I thought I was doing everything right, then oh...that has gluten. Thought I was doing it right...oh cross contamination. This has been a steep learning curve. I will try to be more patient. I think I may just have to accept that my body will not...
  19. Hi all, I am so fed up. I am trying to be patient but I don't know what to do. I went VERY gluten free about 1 month ago but have been gluten light for 1 1/2 years (I thought I was gluten-free....I didn't know better). So, I haven't been 100% gluten-free for very long. I also figured out about 6 months ago I react to soy, and 2 months ago I react to...
  20. If you have questions, you can msg me. I apologize that the link I sent isn't accepted on this site. I just joined today. lol

  21. Hi Mary, I saw your post on multiple food allergies. I suffered from this myself and just finished a candida/full body detox program which healed my leaky gut. I'm also on HCL supplement and it's helped food allergies tremendously. I thought you would find this link helpful:http://www.(Company Name Removed - They Spammed This Forum and are Banned).com/im-gluten-free-and-still-sick/

  22. Hi all, I could really use some advice here. I am very frustrated and to the point of not wanting to eat ANYTHING. I figured out I am at the very least highly gluten intolerant, I believe I have celiac disease. Since I found this out I have also discovered a severe soy and caeisin intolerance. If this wasn't frustrating enough, since I've cut these...
  23. I get numbness all over, loss of motor control, confusion, and tired immediately. Digestive symptoms take a few days. Headaches take a few days too. I am eating gluten for two months and it is miserable. It's not even fun because I have an immediate reaction. Bleh.
  24. Help! I do not know what to do and I would love to get some of your experience here. I have been trying to get a clear diagnosis of Celiac but I have been told that the only way to get a diagnosis is to reintroduce gluten for 2 months. My question is, is it worth it to get a clear diagnosis? I went gluten free before I knew what celiac was in the hopes...
  25. I sympathize. I'm dealing with a positive wheat allergy test but many overlapping symptoms. Soy intolerance, lactose intolerance. Can tolerate barley or even gluten-free oats. It's so hard to figure out what is going on. I'm pushing to see if it's possible to have both. Good luck with your testing!
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