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Latest Celiac Disease News & Research:
Everything posted by Lfrost
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36 yrs here, and I had to look up how to change my weight to kg.! 48.6 kg.
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ARCHIVED Help With Toddler Symptoms?!
Lfrost replied to cmmst87's topic in Coping with Celiac Disease
My son also has multiple food allergies. We decided to try to reintroduce peanut butter (his peanut allergy is small). We were thrilled that he did not present a rash this time, however, at night he had a night terror the first night we gave him peanut butter. He acted just like you described: crying, flailing, hitting, and inconsolable. The next night he... -
ARCHIVED 4 Year Old Won't Eat
Lfrost replied to Lfrost's topic in Parents, Friends and Loved Ones of Celiacs
Oh my gosh! How frustrating! -
ARCHIVED 4 Year Old Won't Eat
Lfrost replied to Lfrost's topic in Parents, Friends and Loved Ones of Celiacs
That is one of the things that I am hoping to get through our GI referral. I hope the process does not take too long. Our doctor 'handles it from their end', so I don't have a number for a GI. We are supposed to wait for a call from the GI doctor. How long do you think we should wait before I start hounding the doctor? Thank you for answering all of my... -
ARCHIVED Food Allergy Trials
Lfrost replied to Lfrost's topic in Parents, Friends and Loved Ones of Celiacs
No worries. Sometimes I over google. I googled night terrors + allergies and there seems to be a connection, but I don't know if anyone else has experienced that before. I don't want to cause more night terrors and it was pretty coincidental. I was feeling pretty good with no rash showing up and it didn't seem to trigger his usual 'stuffiness' either... -
ARCHIVED Food Allergy Trials
Lfrost replied to Lfrost's topic in Parents, Friends and Loved Ones of Celiacs
We are doing the trial through the doctor's advice. We see an allergist on Monday. Also, his peanut allergy is pretty low. He scored .31 kU/L which is just under low. It falls under 'Clinical Relevance Undetermined' (0.10-0.34). -
ARCHIVED Kids Snacks, Candy, Treats
Lfrost replied to Mom-of-Two's topic in Parents, Friends and Loved Ones of Celiacs
Is this only on new bigger bags? I buy the 50 ct. chip bags at Costco and on the ingredients it still says the Nacho flavored Doritos (red bag) contains wheat. I haven't checked the bigger bags recently. -
ARCHIVED 4 Year Old Won't Eat
Lfrost replied to Lfrost's topic in Parents, Friends and Loved Ones of Celiacs
I have a quick question about poop if anyone is still following this thread. So now that is has been 4 days since we fed Colton all of the Miralax, his poops are soft, but more solid (no longer liquid the last couple of days). My question is, his poop is still pencil thin. Is this because of the Miralax, or is this suggestive of continued blockage?... -
So my son has many other allergies besides wheat, peanuts being one of them. Prior to going gluten-free he never showed rashes or anything, he was just stuffy and always constipated. We still struggle with the constipation. Now that he is eating again, we have decided to trial peanuts again. While keeping a food diary, something caused him to break out in...
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Ok, so my doctor is still an idiot, but at least we got a referral! Thank goodness I insisted on my husband getting off work early and coming with us to my son's appointment. So we got in there and talked about my son's improvement since cutting his allergies out, but our concern is with the constipation still recurring. My doctor thinks the improvement...
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Thanks for the laughs Kareng!
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ARCHIVED An Update On Us...
Lfrost replied to Sesara's topic in Parents, Friends and Loved Ones of Celiacs
I am really hoping you find some answers soon! Will you be pushing for allergy testing at this appointment? -
LOL, Best of both worlds! When I was in high school my friend's mom (they lived in WA) used to have me come up to shop at Vancouver Mall with them for school clothes so I could show my Oregon ID and not pay sales taxes.
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I must say, I was actually born in Florida and then my family lived in Alabama. I was way too young to remember any of it. We have lived in Oregon since I was 5 and it makes it very difficult to visit other places without feeling way too hot! I love that there is not much humidity, because I cannot stand to 'glisten' (since girls don't sweat). I think the...
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ARCHIVED 4 Year Old Won't Eat
Lfrost replied to Lfrost's topic in Parents, Friends and Loved Ones of Celiacs
I Just wanted to update everyone. The poops are thickening (no accidents today) and my son ate a great breakfast, asked for a snack between breakfast and lunch, and is currently devouring his lunch. His bum is also no longer sore. He says his tummy does not hurt and he is doing great. Who would have thought he could make such a turn around after a day... -
Currently 59 degrees at 9:00 am in Oregon. Supposed to get up 82 today! We still have lush green grass and no sprinklers yet this year!
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ARCHIVED This Diagnosis Process Is Maddening!
Lfrost replied to Mom-of-Two's topic in Parents, Friends and Loved Ones of Celiacs
I am a teacher at a school and while most teachers and school personnel will work with you and accommodate, A 504 is still as good idea. I would particularly add into the 504 that the people who work with your child are 'educated' about your child's needs. There are many people who have never even heard of celiac before. -
ARCHIVED Strange Skin Problem On Hands.
Lfrost replied to fikct's topic in Food Intolerance & Leaky Gut
Ravenwood is another member on this forum. I would be very interested to hear if you find out any information on the red burning skin on the backs of your hands. My oldest daughter used to get this often, usually in the wintertime. Her doctor just dismissed it as eczema, but I never really bought that. After a few years, she started getting a similar... -
If I remember correctly, with the medical expense you have to itemize your deductions. If you just claim the standard deduction, it would not matter. If you do itemize, I believe that it then depends on how much you make as to whether it makes a difference. I am not 100% on this, but I know we were checking into since we put 3 kids in braces last year...
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ARCHIVED This Diagnosis Process Is Maddening!
Lfrost replied to Mom-of-Two's topic in Parents, Friends and Loved Ones of Celiacs
I am almost hoping that it is celiac related! I REALLY do want to quit, but when I did (5 years ago) I had not heard of Celiac, so didn't know about gluten free. The canker sores began 7 months after quitting and I suffered through them for about 8 months before starting smoking again! My mother is in Canada right now and has been hunting down a home test... -
Yes, that is the test (or bio card), but don't they actually have them on pharmacy shelves? Since she was in Canada, she was just going to pick one up.
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ARCHIVED Surprised By The Test Results, And A Little Confused
Lfrost replied to Whitewall's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
From what I understand, IgE antibodies are what are called 'true allergies'. These allergies cause immediate reactions and at their worst can cause anaphylactic shock. IgA and IgG antibodies show food sensitivities. These reactions are not immediate and can take up to 3 days to develop. Here are some references that I found: Open Original Shared Link... -
ARCHIVED 4 Year Old Won't Eat
Lfrost replied to Lfrost's topic in Parents, Friends and Loved Ones of Celiacs
Thank you. We did get an appointment with an allergist, but not until the 17th. I called my human resources department for my work to see if we need a referral to a GI, but she hasn't gotten back to me, yet. I have been doing more research and the more I do, the more I think we need to get him in to a GI. I mentioned before that what started us on allergy... -
ARCHIVED 4 Year Old Won't Eat
Lfrost replied to Lfrost's topic in Parents, Friends and Loved Ones of Celiacs
Is the Mt. Dew colored stool going to be liquid, too? The boy's poor bum is hurting right now from the liquid poops. We have been putting A&D on it. -
I had heard that home test kits for Celiac Disease were available in Canadian pharmacies. My mother is up in Canada and went to 3 different pharmacies, but each said they have never heard of them. One even told her they were only available in US pharmacies. Was I mistaken?