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Latest Celiac Disease News & Research:
Everything posted by flowerqueen
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Yes, definitely give low FODMAP diet a go, it can make a real difference. After 2 months you start to re-introduce foods which are not allowed, one at a time, to see if you can tolerate them - it helps weed out the real offenders.
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ARCHIVED Had enough of being sick, what now
flowerqueen replied to markb's topic in Coping with Celiac Disease
I agree with Ennis too. I experienced withdrawal symptoms for a while and even then I didn’t recover for quite a while. Eating foods that harm the gut takes its toll on the whole body and, you will not have been absorbing nutrients from your food once you do start to absorb them again, it’s going to take a while to replenish your ‘stocks’ of vitamins and min... -
Was it a gluten free bagel? If so, you may have become intolerant to foods in your diet. Have you looked at the low FODMAP diet? I have recently gone on this and it does seem to be helping.
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ARCHIVED At the end of my tether - intolerant to nearly everything!
flowerqueen replied to flowerqueen's topic in Food Intolerance & Leaky Gut
Hi cyclinglady, yes, it does sound like a good diet, but a little strict. I have been doing the low FODMAP for about a week now, which seems to be going okay, although last night I did have some gluten free popcorn last night, but half way through eating realised it had Demerara sugar in it which has molasses in it, so woke up with stomach ache this morning... -
ARCHIVED At the end of my tether - intolerant to nearly everything!
flowerqueen replied to flowerqueen's topic in Food Intolerance & Leaky Gut
Hi Christiana, you have a good memory, I do indeed live in the UK. My consultant does a full panel every time I visit, so I doubt it’s gluten. I have started a low FODMAP diet, and am feeling quite hopeful, although the amount of other things I’m having to give up, as well as the usual gluten/dairy etc., is a bit daunting, but if it helps get me back on ... -
ARCHIVED At the end of my tether - intolerant to nearly everything!
flowerqueen replied to flowerqueen's topic in Food Intolerance & Leaky Gut
Thank you for the suggestions. I love salmon and eat it at least once a week. I have decided to go on the low FODMAP diet, so fingers crossed ..... -
ARCHIVED At the end of my tether - intolerant to nearly everything!
flowerqueen replied to flowerqueen's topic in Food Intolerance & Leaky Gut
I don't really eat much processed food, only gluten free bread. Most of the meals I have are cooked from scratch at home. I'm now on the FODMAP diet and apart from running out of ideas for meals, it's going fairly well I just hope it continues to be like that. -
ARCHIVED At the end of my tether - intolerant to nearly everything!
flowerqueen replied to flowerqueen's topic in Food Intolerance & Leaky Gut
I'll have a look, but it does sound intimidating, I agree, from what you've said and I'm finding the FODMAP diet challenging enough. -
ARCHIVED At the end of my tether - intolerant to nearly everything!
flowerqueen replied to flowerqueen's topic in Food Intolerance & Leaky Gut
Hi, Thank you for replying; it's strange you should mention rice, I must admit I do find my stomach settles after I've eaten rice too. I will have a look at the Macrobiotic diet, it seemed big years ago, and have forgotten all I knew about it, so will need to refresh my memory. -
ARCHIVED At the end of my tether - intolerant to nearly everything!
flowerqueen replied to flowerqueen's topic in Food Intolerance & Leaky Gut
Hi, you have a lot to contend with there. A lot of the things you have mentioned, I too have problems with. I think also, my problem maybe, because I have a small list of 'safe' foods, I over-use them, and am worried I am setting myself up for further intolerances in the future. -
ARCHIVED At the end of my tether - intolerant to nearly everything!
flowerqueen replied to flowerqueen's topic in Food Intolerance & Leaky Gut
Wow! It sounds like you have been through the mill too. I was beginning to think I was alone in this, thank you for sharing. I too, can no longer have beans, I drink decaf coffee, but I'm wondering if I'm going to have to give that one a miss too, it was bad enough giving up caffeine, but to have to give up the taste of coffee too ...... I can't tolerate... -
ARCHIVED At the end of my tether - intolerant to nearly everything!
flowerqueen replied to flowerqueen's topic in Food Intolerance & Leaky Gut
Thank you, that looks very interesting. It looks a very strict diet, and not sure how I could implement everything as my medication contains things which are on the list of "no no's". I will definitely look into it more though! -
ARCHIVED At the end of my tether - intolerant to nearly everything!
flowerqueen replied to flowerqueen's topic in Food Intolerance & Leaky Gut
I regularly get blood tests from my doctor as I have more than one auto immune disease, and the recent one came back okay. I feel like I have so many health issues, that I'm playing a juggling act with them all. -
ARCHIVED At the end of my tether - intolerant to nearly everything!
flowerqueen replied to flowerqueen's topic in Food Intolerance & Leaky Gut
That sounds like a lot to contend with. I have wondered for a while if any sugar/glucose could be a culprit too, it’s hard trying find out exactly what is causing the problem, I’m keeping a food diary. Did you have to have another colonoscopy to get UC diagnosed? -
ARCHIVED At the end of my tether - intolerant to nearly everything!
flowerqueen posted a topic in Food Intolerance & Leaky Gut
Since being diagnosed Coeliac a good few years ago now, I seem to have become to intolerant to so many things. At first I just experienced the usual withdrawal from gluten, which took about 6 weeks. Then came intolerance to soya (where I had really bad IBS, including really bad stomach cramps). I had already become intolerant to dairy before being diabetic... -
Yes, it’s a mine field when there’s an in store bakery. I usually cover my mouth and nose with a scarf as I pass by the bakery. One supermarket near me (in the UK) has put their gluten free isle right next to the in store bakery. It makes me wonder sometimes about who’s running these places.
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As the flu shot is given in your arm and not ingested, it will by-pass the stomach and should be okay. I have Coeliac disease and I get mine each year, if that helps you.
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ARCHIVED Gluten Free Bread and Pasta (United Kingdom)
flowerqueen replied to ConfusedCeliac's topic in Coping with Celiac Disease
Hi, to be declared gluten free, pasta, etc., has to be less than 20 parts per million, so there is always a possibility of cross contamination. There are a few website that you can subscribe to, so if gluten has inadvertently got into the foods, and they are recalled, they will notify you by text or email. I agree with the above comment regarding xanthan... -
ARCHIVED Unknown source of gluten
flowerqueen replied to heatman's topic in Coping with Celiac Disease
Hi, I live in the UK and have not heard of this product, however, I have heard of gluten being in some washing-up liquids, so it is possible that dishwasher products could be effected too. The best thing to do, to eliminate (possibly) the product from your investigations, is to contact the manufacturers. -
Hi, that is very interesting, I wish we had that sort of thing in the UK, I wonder if it is available on the UK's Amazon as well as Amazon.com? I will investigate this. I think we have lagged behind in some areas of food substitute varieties over the pond. Thank you for the information about Doctors Best.
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It sounds like anxiety to me. I know exactly what you mean, and I've had issues like it in the past. Also, if you have been gluten free for a while now, it could be that your diet is different or you maybe eating more of certain foods and you may have an intolerance to them. I found more food intolerances took hold after I've been gluten free for a while...
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Best wishes winging their way to you from the U.K.
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I have fibro too, along with quite a few other conditions, including an under active thyroid. I'm saying this, not to point score, but to give you hope, as my thyroid improved quite a bit after going gluten free! Again, it wasn't over-night, but a gradual thing, and now take a lot less thyroxine because of it. I mentioned this to my doctor recently and she...
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Hi Dayle, We can't change our past, but we can change our future. You have taken the right step in going gluten free, it may take quite a while for your gut (and the rest of your body) to heal because you have had coeliac disease for so long, but any positive step is the right one! When I was in my early 20's I was diagnosed with IBS, but in more...
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All the above posts are full of good advice. What I'd like to add is, if you have coeliac disease and continue to eat gluten, you run the risk of other autoimmune diseases in the future as well as osteoporosis, malnutrition and even cancer, so even if you had no symptoms at the beginning, and may also not have any symptoms if you eat gluten (not all coeliacs...