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Latest Celiac Disease News & Research:
Everything posted by Rachel--24
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ARCHIVED Is It Just Me? But Some Of This Stuff Seems A Bit Overkill.
Rachel--24 replied to jacklyn1981's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Jacklyn, Just wanted to mention that as previously stated gluten is highly addictive so you may actually feel worse from withdrawl once you start the diet. That happened to me big time...but then again you can see what my diet was like from my previous post....so its not surprising. My body must have went into shock. -
ARCHIVED Is It Just Me? But Some Of This Stuff Seems A Bit Overkill.
Rachel--24 replied to jacklyn1981's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
After being on this board for about a month my doctor sent me to a dietician who was very nice but honestly, I could have taught her about the diet. It was a waste of time for me. Also, I was someone who had never read an ingredient label in my life, never cooked (other than mac & cheese), McDonalds was my favorite resteraunt and I never ate fresh... -
ARCHIVED Mouth Blisters
Rachel--24 replied to Rachel--24's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Abbie, Pretty much all potatoes have sulfites...so that would include potato chips. I'm not talking about the whole potatoes in the produce dept but anything that has been "prepared"....fresh or processed. Instant mashed potatoes, all the fozen fries, stuff like that. Jersey, I cant eat the coconut because the one I have isnt organic. I was... -
ARCHIVED Is It Just Me? But Some Of This Stuff Seems A Bit Overkill.
Rachel--24 replied to jacklyn1981's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
They may become stronger....this does happen to alot of people. Its mainly because your body has been dealing with the gluten for a long time...its always in a reactive state and so your body has adapted to this. Once you eliminate what is essentially "poison" to your body....reintroducing it can cause noticeable reactions which can seem more dramatic than... -
ARCHIVED Is It Just Me? But Some Of This Stuff Seems A Bit Overkill.
Rachel--24 replied to jacklyn1981's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi and welcome to the board. First you should know that many Celiacs are overweight....in fact I believe more are overweight than underweight. It is a misconception that Celiacs are all thin and malnourished looking. Just because you dont experience severe symptoms doesnt mean that damage isnt occurring....obviously with a positive biopsy you do have... -
ARCHIVED Anyone With Dq3?
Rachel--24 replied to Nantzie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah...me too. I only go over there for the real "technical stuff". -
All grapes are also sprayed with sulphites. I believe spraying sulphites on fresh produce has been banned with the exception of grapes and fresh cut potatoes. Some people died from consuming salad bar foods that had been sprayed with sulphites so it is now illegal...although it is still done occasionally....illegally.
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ARCHIVED Anyone With Dq3?
Rachel--24 replied to Nantzie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have DQ1 and DQ3. I've done more research on DQ1 though...it seems like DQ1 is the one that can cause severe symptoms. Some biopsy diagnosed Celiacs have DQ1 without having either DQ2 or DQ8. If you visit the braintalk gluten intolerance forum you will find a wealth of info on both DQ1 and DQ3. Open Original Shared Link Do a search on DQ3...should... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
I know all about that...I'm in denial of all kinds of things! -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Floridian, I dont know anything about blood sugar levels but heres a thread that was going on recently which talked all about it and the testing, fasting, etc. Its a pretty long thread....well not quite as long as this one...but still long. Open Original Shared Link -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Ok...I talked to the pharmacist tonight and I'll be getting the drug either Thursday or Friday. I found the info. my doctor gave me as well. Its called Ketotifen and its an antihistimine. I'm getting it from a compounding pharmacy in Washington. The paper I have says its not commercially available in the US. The pharmacist told me that its very well... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Yeah....it stopped when I shut the freakin thing down. I'm sure when I turn it back on its gonna start doin' its thing again. I swear it seemed like everything was going wrong yesterday. Besides the computer getting possessed and the birds crapping all over my doorstep my cat barfed all over, my lawn was dying cuz somethings not right with the timer for the... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Negative on the cereal....for now. I'm feeling pretty optimistic right now though. -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Darn. I actually thought they were gone this weekend because it was real quiet and I didnt see the mommy and daddy flying back and forth like the previous weeks. Last week I could see the babies looking out of the nest and I could hear them chirping. It was very quiet this time so I thought "Cool, I'll just clean up this mess and deal with the nest later... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Jersey, The baby birds in the nest have been there a couple weeks now...how long do they stay? I came home to another big mess on Sat. and one of the birds was dead on my doormat. Don't know what happened....maybe he fell out of the nest? Maybe got thrown out? It made me sad. I'm getting tired of the mess though...its been like 2 months almost. ... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Donna, Good to know about the cucumber skins. I actually havent eaten the skin in over a year...I peel everything....I get a little crazy with my peeler. I got some home grown carrots I'm munching on right now. My mom brought me some stuff from her father in law's garden. You could try the tortillas again and see if you react. If... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Jersey, My mom has been waiting for that. She keeps asking me "Has that thread reached 1000 yet? Let me know when it does." She's all excited about that. Arent fibroids in the middle? My doctor didnt tell me what kind of cysts I have cuz she was too busy worrying about my ringback tones. I cannot believe girls are getting their periods... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
I was reading some of the questions to the doctor...saw something about cysts. I think I may post some questions. See what this guy says. Thanks. -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Thanks Floridian. I do get more sensitive leading up to my period....everything I read says ovarian cysts are totally normal in menstruating females. How will they really know if mine are normal or not? That confuses me. Thanks for helping me out with this...its making me feel better talking about it. -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
I started taking my digestive enzymes again cuz last time I was taking them it seemed like I was having less reactions...we'll see how I do now. I'm gonna call the pharmacy tomorrow...I posted last week about some drug that my doctor perscribed for healing the gut. I never called about it and the pharmacy was leaving me messages trying to get ahold of me... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
I did react to the cucumber cuz right after I ate it my head and nose started swelling and. My mucus membranes get "sticky". This is what happens with me and chemicals so it was probably cuz it wasnt organic. I dont know if the sweating was related to that reaction though. I was reading all morning trying to find a link between the cysts and all that... -
ARCHIVED Megan's Gagging Isn't Any Better
Rachel--24 replied to TCA's topic in Parents, Friends and Loved Ones of Celiacs
TCA, I've just been going through the posts on this thread...I had no idea how much you were going through with little megan. I was crying as I read the first pages but now I'm really happy to read that she's feeling a little better. I'll be praying for you both. I cant tell you how much I admire your strength through all of this. You are an amazing mom... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Manja, Have you found any toothpaste that doesnt bother you? How about Tom's of Maine? I was using that for awhile and didnt get any obvious symptoms from it but doing baking soda now just to be extra cautious. I'm sensitive to alot of scented perfumy type things so I use a deoderant I found at whole foods. Its Crystal something or other. I cant think... -
ARCHIVED Ttg And Negative Biopsy
Rachel--24 replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Was it the Ttg that came back positive or the anti-gliadin Iga? A positive Ttg = Celiac. I wouldnt exactly call yours a weak positive....especially since you'd been on a gluten free diet and still had positive test results. A negative biopsy doent rule out Celiac...the test is very flawed and often comes back with false negatives. They can easily miss... -
ARCHIVED Omg...i Might Be On To Something
Rachel--24 replied to Rachel--24's topic in Food Intolerance & Leaky Gut
Thanks Andrea, I bought the hothouse kind thinking it probably wouldnt have auxigro....but I really dont know...it was just a guess. I wish I knew somebody in the farming business. I am so full of questions. Yeah...it seems like my appt. is soooo far away. I'm going to call and see if it can be moved up. Time always flies by but because I keep...