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Rachel--24

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Everything posted by Rachel--24

  1. Rachel--24
    Another option would be Enterolab testing. Its still costly but not close to what that blood test would cost. I did Enterolab because you don't have to be eating gluten at the time of testing. If you get all the tests done its $370 (including shipping). Oh yeah...I'm really skinny too My enterolab results showed bad malabsorption.
  2. Rachel--24
    Thats not exactly true....Candida will not show up in an endoscopy. There is no "definate" test for diagnosing Candida. I doubt you were ever tested for it unless you have an alternative type doctor. Most mainstream doctors don't acknowledge Candida even though its a common problem. An alternative or naturopath (sp?) doctor will dx Candida based on symptoms...
  3. Rachel--24
    Thanks Nini....I'll be looking for those sandwich cookies next The good news is I can eat all this new stuff without getting reactions like I get when I eat "regular" food. But the bad news is that now that I'm adding foods my stomach is very bloated and hurting I know I have bad malabsorption and when I eat I gain fluid retention...sometimes I can...
  4. Rachel--24
    I still have boxes of mac & cheese in my kitchen (I'll admit I sometimes stare at them longingly). I figured if I could use the sauce then at least they wouldn't be wasted. Its not worth getting contaminated though. I've never seen it in a can...maybe we don't have it in my area. I'll give the velveeta a try. I had oreo cookies in my fridge for the past...
  5. Rachel--24
    I love Tinkyada pasta! I was eating it last year and it was just as good as any pasta I've ever had. I went back to my mac & cheese after my blood test came back negative though. I went back to all my old foods...got sicker...just about died....this time around I think I'll stick to the Tinkyada I remember reading somewhere that the cheese packet that...
  6. Rachel--24
    Thanks, Thats exactly the kind of cookbook I need. I am no Martha Stewart in the kitchen so that should work for me. The only thing I cooked at home before this whole gluten thing was mac & cheese.
  7. Rachel--24
    Wow...thats 3 recommendations now. This is gonna be a good read! George I already checked out your post -Rachel
  8. Rachel--24
    Well thats two recommendations for Dangerous Grains so I'm definately gonna go to Amazon and order it. In case you havent noticed I like to educate myself Seems like theres no end to the questions that pop up in my head -Rachel
  9. Rachel--24
    Mariann, So if I'm understanding what Dr. Fine is saying then the HLA-DQ3 subtype7,9 or other DQ3 subtypes wreak the same havoc on the body as one of the Celiac genes (HLA-DQ3 subtype 8) without the villous atrophy? Am I understanding correctly? Could my sensitivity gene really be causing so much harm to my body? -Rachel
  10. Rachel--24
    Thanks for the heads up Kaiti, I've read some older posts where you and others are not too fond of this book so it wasnt my first choice but it was the only book they had other than recipe books.
  11. Rachel--24
  12. Rachel--24
    Janu, Yeah...feel free to email me anytime. The email address I used to register is not mine...so you can send a personal message or email me at Sunshne24@aol.com. I hope that doctor is able to help you. I'm in the Bay Area Ca...not exactly small town but I'm looking to get out of my HMO and find a real doctor who will be able to help me out...
  13. Rachel--24
    Emeraldskies, Don't worry about it. I totally "got" what you were saying You were right though...if I hadnt had my hyperthyroidism corrected it could've been causing malabsorption. Mariann, Actually all of my questions hadn't been answered. You addressed the one that has been on my mind all day. Can intolerance cause damage or malabsorption...
  14. Rachel--24
    Stephanie, You really described the emotional part of what I go through to a "T". Its exactly like you said...in the beginning I felt like this all the time so I didn't realize it was a reaction caused by food...just knew I wasn't myself. Even after KNOWING whats causing me to react this way its hard to rationalize while its happening. People around...
  15. Rachel--24
    Stephanie, Thanks for explaining the genes to me. I was kind of lost on that. Don't know if I still really "get it" but oh well it all boils down to the same thing anyways...no gluten. Which is really ok with me. I have no problems staying gluten-free for life if it makes me feel better. I guess I'll just have to wait and see if I notice any improvements...
  16. Rachel--24
    Hi Jan, I dont have any advice for you because I'm in the same situation right now. Just got my Enterolab results last night and I too was in tears. Your antibodies are a little higher than mine but my malabsorption is the worst I've seen. Hadn't seen anything close to it till I saw your results. Heres my numbers: Gluten Sensitivity Testing Fecal Antigliadin...
  17. Rachel--24
    Thanks Kaiti, I will be so happy if I don't have to follow a Candida diet anymore. I took stool tests for Candida and will get those results maybe today. It still seems weird to me that gluten can get me so sick. Pretty much my whole diet was gluten for my whole life and I was perfectly healthy...it just came on fast...during a stressful time...the...
  18. Rachel--24
    Thanks for the replies, I do feel better after reading your posts. The news was hard to take because I'm not too familiar with exactly what gluten sensitivity can do to the body. I was hoping for a more definate diagnosis. Emeraldskies....the malabsorption can't be due to hyperthyroidism. I had my thyroid "killed" with radioactive iodine more than...
  19. Rachel--24
    I just got my results and I just really don't know what to think.... Gluten Sensitivity Testing Fecal Antigliadin IgA 16 Units (Normal Range <10 Units) Fecal Antitissue Transglutaminase IgA 15 Units (Normal Range <10 Units) Microscopic Fecal Fat Score: 912 Units (Normal Range < 300 Units) HLA-DQ Gene Molecular...
  20. Rachel--24
    Kris, All these symptoms can be caused by an overactive thyroid as well. I had all those sypmtoms due to thyroid issues. -Rachel
  21. Rachel--24
    Emeraldskies, I'm glad you found a place to get these tests done. Hopefully you can get the results back soon so you can start to feel better. I hope you're not letting yourself suffer just so you can prove something to your docs though. Were you taking vitamins before and did you feel better? I was taking supplements but was getting worse...they had...
  22. Rachel--24
    What is wrong with my doctor???? I've asked him for this test 3 times now and he just looks at me blankly. He has no clue what this test is...keeps saying he needs to look it up. I told him its a standard test...any doctor can order it. He said its not a test hes ever heard of. Now suppossedly he's going to ask the nutritionist about it. I'm so angry with...
  23. Rachel--24
    Anyone know if Thai Kitchen canned coconut milk is gluten-free? I had a bad reaction each time I've tried it. Dont know whats causing it. -Rachel
  24. Rachel--24
    Nikki, There are many symptoms but here are some of the more "classic" symptoms. Hyper symptoms are almost the exact opposite of Hypo symptoms. Hyperthyroidism: Heat intolerance/excessive sweating Hair Loss Heart palipatations Eye irritation Weight loss Diarreah Shakiness Muscle weakness Behavioral and emotional changes...
  25. Rachel--24
    Thanks Kaiti! Thats something to look forward to if I do have celiac disease. I never got sick drinking them so thats a good sign -Rachel
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