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TGK112

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  1. Also considered myself to be asymptomatic. Doctor had me tested for celiac to rule it out as the cause of my osteoporosis. I was shocked and thought it must be a mistake when the results came back positive. But then I realized that it explained the weight loss which I had the previous year. Once I was gluten free, I also realized that I was no longer getting...
  2. I was diagnosed with osteoporosis several years prior to my celiac diagnosis. In fact, it was my bone doctor who suspected celiac and ordered the initial blood test. Despite going gluten free, increasing exercise, taking vitamin D and calcium, my bone density was not improving. So I was put on Prolia about four or five years ago, and there has been some...
  3. I kept getting very similar rashes prior to diagnosis. The only treatment that seemed to work was Prednisone for extensive periods. The combination of Prednisone and undiagnosed celiac wreaked havoc on my bone density-- which then did lead to a diagnosis. My blood test did show high antibodies and it was confirmed with an endoscopy. I never got a DH diagnosis...
  4. I've had osteoporosis for about 8 years. I was put on Alendronate ( generic Fosamax) -- had no side effects from it, but my bone density was not improving. I eventually saw a bone specialist ( at the age of 56) - who ran some tests to rule things out. And that's when Celiac was ruled in. Unfortunately -- a perfect storm was happening all along. I had gone...
  5. I will be travelling to Montana soon. Does anyone have some good suggestions -- particularly for Whitefish Bay and Bozeman? Thanks much!
  6. I was also asymptomatic when diagnosed and have always been nervous that I will never know when/if I've been glutened. Six months after diagnosis I had a repeat blood test and endoscopy. The endoscopy showed complete healing and the blood work was very near normal. After this, I have had blood tests on a yearly basis - showing that I am in the normal range...
  7. I was what I thought to be asymptomatic. But for several month prior to my diagnosis I kept getting canker sores. I'm guessing the lip balm that I kept putting on them was doing more harm than good! Since being gluten free - past almost three years - I now rarely get them -- maybe once or twice a year. I have no doubt that they are related.
  8. Thanks for all the support. I looked all over online regarding the safety of dental floss - and got a lot of mixed comments -- but bottom line was no one seemed to know. I thought it would be helpful to post my findings to this forum in case anyone in the future had a question regarding dental floss. I didn't realize it would be so amusing.
  9. I've always been one of those people who will not lick an envelope -- something I read somewhere about the glue containing gluten. It occurred to me that there seems to be stickers on nearly every piece of fruit and many vegetables as well. They must have some sort of adhesive -- should I ( we) be worried about those as well?
  10. I am 2.5 years post diagnosis. I have had a celiac panel done six months after diagnosis and then each year since. I am always eager to get those test results since I had no symptoms when I was diagnosed, and have never felt "glutened" even though I'm sure I must have made some mistakes along the way. Luckily the results of the Celiac Panel have been very...
  11. I recently wrote Oral B to check if their dental floss is gluten free-- and I thought people may like to see their response: No. None of the ingredients in Oral-B/Glide floss contain gluten. All of our flosses are made on designated lines so there is no chance of cross contamination with gluten. Thanks again! Paul Oral-B Team Yeah! Good News...
  12. Thank you for the responses. It seems, from the responses, that "no gluten ingredients" can be posted - but that doesn't necessarily make it gluten free. I've been disappointed with Trader Joe's. Everyone else seems to have jumped on the bandwagon. They have so many products with "no gluten" - I wish they would test them and verify that they are gluten...
  13. I was hoping with the new FDA labelling law that it would be easier to determine if Trader Joe's products are indeed gluten free. Many products have the "g" icon, and a statement "no gluten ingredients" - with a disclaimer that it was manufacturered on shared equipment. Does anyone know the law well enough to tell me - does a label saying "no gluten ingredients...
  14. I also get hives - on occasion. But once they start, I can't get them to stop unless I take a lot of meds to treat them - Benadryl, a prescription anti-histamine, and prednisone as well. I had this problem before I was diagnosed with celiac - and was referred to an immunologist. He said there was no way to determine what caused the hives - but he believe...
  15. Am I the first lefty to reply??? Now this is interesting - after I was diagnosed - I encouraged my siblings to get tested. My left handed brother has the celiac gene (but normal antibodies for now) - and my right handed sister does not have the gene.
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