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TGK112

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by TGK112

  1. TGK112
    Also considered myself to be asymptomatic. Doctor had me tested for celiac to rule it out as the cause of my osteoporosis. I was shocked and thought it must be a mistake when the results came back positive. But then I realized that it explained the weight loss which I had the previous year. Once I was gluten free, I also realized that I was no longer getting...
  2. TGK112
    I was diagnosed with osteoporosis several years prior to my celiac diagnosis. In fact, it was my bone doctor who suspected celiac and ordered the initial blood test. Despite going gluten free, increasing exercise, taking vitamin D and calcium, my bone density was not improving. So I was put on Prolia about four or five years ago, and there has been some...
  3. TGK112
    I kept getting very similar rashes prior to diagnosis. The only treatment that seemed to work was Prednisone for extensive periods. The combination of Prednisone and undiagnosed celiac wreaked havoc on my bone density-- which then did lead to a diagnosis. My blood test did show high antibodies and it was confirmed with an endoscopy. I never got a DH diagnosis...
  4. TGK112
    I've had osteoporosis for about 8 years. I was put on Alendronate ( generic Fosamax) -- had no side effects from it, but my bone density was not improving. I eventually saw a bone specialist ( at the age of 56) - who ran some tests to rule things out. And that's when Celiac was ruled in. Unfortunately -- a perfect storm was happening all along. I had gone...
  5. TGK112
    I will be travelling to Montana soon. Does anyone have some good suggestions -- particularly for Whitefish Bay and Bozeman? Thanks much!
  6. TGK112
    I was also asymptomatic when diagnosed and have always been nervous that I will never know when/if I've been glutened. Six months after diagnosis I had a repeat blood test and endoscopy. The endoscopy showed complete healing and the blood work was very near normal. After this, I have had blood tests on a yearly basis - showing that I am in the normal range...
  7. TGK112
    I was what I thought to be asymptomatic. But for several month prior to my diagnosis I kept getting canker sores. I'm guessing the lip balm that I kept putting on them was doing more harm than good! Since being gluten free - past almost three years - I now rarely get them -- maybe once or twice a year. I have no doubt that they are related.
  8. TGK112
    Thanks for all the support. I looked all over online regarding the safety of dental floss - and got a lot of mixed comments -- but bottom line was no one seemed to know. I thought it would be helpful to post my findings to this forum in case anyone in the future had a question regarding dental floss. I didn't realize it would be so amusing.
  9. TGK112
    I've always been one of those people who will not lick an envelope -- something I read somewhere about the glue containing gluten. It occurred to me that there seems to be stickers on nearly every piece of fruit and many vegetables as well. They must have some sort of adhesive -- should I ( we) be worried about those as well?
  10. TGK112
    I am 2.5 years post diagnosis. I have had a celiac panel done six months after diagnosis and then each year since. I am always eager to get those test results since I had no symptoms when I was diagnosed, and have never felt "glutened" even though I'm sure I must have made some mistakes along the way. Luckily the results of the Celiac Panel have been very...
  11. TGK112
    I recently wrote Oral B to check if their dental floss is gluten free-- and I thought people may like to see their response: No. None of the ingredients in Oral-B/Glide floss contain gluten. All of our flosses are made on designated lines so there is no chance of cross contamination with gluten. Thanks again! Paul Oral-B Team Yeah! Good News...
  12. TGK112
    Thank you for the responses. It seems, from the responses, that "no gluten ingredients" can be posted - but that doesn't necessarily make it gluten free. I've been disappointed with Trader Joe's. Everyone else seems to have jumped on the bandwagon. They have so many products with "no gluten" - I wish they would test them and verify that they are gluten...
  13. TGK112
    I was hoping with the new FDA labelling law that it would be easier to determine if Trader Joe's products are indeed gluten free. Many products have the "g" icon, and a statement "no gluten ingredients" - with a disclaimer that it was manufacturered on shared equipment. Does anyone know the law well enough to tell me - does a label saying "no gluten ingredients...
  14. TGK112
    I also get hives - on occasion. But once they start, I can't get them to stop unless I take a lot of meds to treat them - Benadryl, a prescription anti-histamine, and prednisone as well. I had this problem before I was diagnosed with celiac - and was referred to an immunologist. He said there was no way to determine what caused the hives - but he believe...
  15. TGK112
    Am I the first lefty to reply??? Now this is interesting - after I was diagnosed - I encouraged my siblings to get tested. My left handed brother has the celiac gene (but normal antibodies for now) - and my right handed sister does not have the gene.
  16. TGK112
    I usually will preface my order by saying, " I don't want to be a pain, and I am NOT on any sort of fad diet - but I have a severe allergy to gluten" Sometimes I'll throw the word celiac in. Even though I am asymptomatic - I want to stress that I will have a severe reaction if I am served gluten. It's been nearly two years since diagnosis - and I find...
  17. TGK112
    I was asymptomatic when diagnosed - I don't count osteoporosis as a noticable symptom. I had a follow up blood test and endoscopy six months after diagnosis - with good results. I then had only a follow up blood test a year following that - also showed normal antibody ranges - and it also showed there was no inflammation going on in the body. I am on schedule...
  18. TGK112
    So - I decided to write to Costco - and let them know how appreciated their gluten free products are - and to encourage them to read this post and start carrying more of these products across country. I received back what seems to be a "form letter" Dear Tina, We appreciate you taking the time to email Costco Wholesale. Thank you for sharing your...
  19. TGK112
    And - they did it again! This weekend we discovered a new gem at Costco--- fresh Linguini (RP's Pasta Company Gluten Free Linguini). I have never tasted gluten free pasta as good as this one. And it was easy to make -- and best yet - it didn't all stick together. I'm going to pass along this thread to Costco - and hopefully some of these products will...
  20. TGK112
    Thanks all! Lots of helpful responses! Agreed - there's a lot we still don't know!
  21. TGK112
    Since being diagnosed - I have always wondered about our differences. Reading this forum, it is very apparent that we all react with varying types and degree of symptoms - from having no symptoms to becoming violently ill. I have always been curious - do we also have differences internally. I know that the standard is that we are able to tolerate 20 ppm...
  22. TGK112
    I went on a cruise with Princess Cruise line. They were fantastic. I let them know ahead of time and was told to introduce myself to the head waiter at my first meal. Each evening I would order for the next day. There were plenty of options, including desert. I had absolutely no need for the Kind bars which I brought along.
  23. TGK112
    Keste's Pizza- West Village Friedman's Lunch (also open for dinner at midtown location)--2 locations-- Chelsea market and midtown (around 31st and 6th.
  24. TGK112
    I shop at the Costco in Issaquah, WA, where Costco also has its headquarters. So maybe they are trying it out here. I'll do my best to let them know that they should keep it coming!
  25. TGK112
    Just went shopping at Costco, and they have really expanded their gluten free offerings
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