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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Mayasmum
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ARCHIVED Craft at DS's school... Am I overracting?
Mayasmum replied to Ginkgo100's topic in Parents, Friends and Loved Ones of Celiacs
It's a sugar cone - it worries me that the school was meant to be educated about this and still let this happen. I would be mad too. And as for the poster who said you were, and the world does not revolve around celiacs- shame on them - it's a child!- 17 replies
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ARCHIVED Public Schools Shrugs Celiac
Mayasmum replied to GFX3's topic in Parents, Friends and Loved Ones of Celiacs
I would notify the head, this is unacceptable from them. My daughter's school has been amazing - it helps that her nurse and teacher are on board and they call me if something is beng offered that is questionable. They were fully informed about it - they have no excuse. I would call for a interview with the head. -
ARCHIVED Venting About Lazy In-Laws
Mayasmum replied to ljgs's topic in Parents, Friends and Loved Ones of Celiacs
Same sort of thing going on here. It annoys me so much tbh that grown adults cannot accomodate a child. Really - I would go out of my way for others if they had an allergy. Some people also think it is a "fad" uh no - it's not a fad. We have missed out on a ton of stuff because it really was not safe for her to eat at certain places as they would not accomodate... -
ARCHIVED Help Interpreting Labs
Mayasmum replied to snowmom's topic in Parents, Friends and Loved Ones of Celiacs
If his IgA came back as low/deficient, then the celiac test cannot be trusted. IMHO I would keep him gluten-free. With the side effects - they can vary from person to person, and it can be very hard for a little person to tell us what is going on. If you can do the stool test, that will tell you a lot about his gut, and that will help with some of the puzzle... -
ARCHIVED Help Interpreting Labs
Mayasmum replied to snowmom's topic in Parents, Friends and Loved Ones of Celiacs
Quick question - how much gluten was your son ingesting before taking the test? -
ARCHIVED Help Interpreting Labs
Mayasmum replied to snowmom's topic in Parents, Friends and Loved Ones of Celiacs
TBH, I decided that even though we had a negative response on the celiac test, we decided not to let the others have gluten at all, especially as a sibling has it. It may be worth looking at a comprehensive stool sample test as well - we did ours through Great Plains. Our doctor also advised them going gluten-free as the low IgA means they could be celiac... -
ARCHIVED Help Interpreting Labs
Mayasmum replied to snowmom's topic in Parents, Friends and Loved Ones of Celiacs
And this would not be a cut and paste scenerio, as not everyone has low IgA. -
ARCHIVED Help Interpreting Labs
Mayasmum replied to snowmom's topic in Parents, Friends and Loved Ones of Celiacs
Open Original Shared Link Basically - if you have low IgA - your body will not mount a defense to the gluten, so the antibodies will not be there to test for - kwim? Hope I explained that right lol, super tired right now. There is a higher prevalence of IgA deficiency in those with celiac disease than in the general public, and there is a higher prevalence... -
ARCHIVED Help Interpreting Labs
Mayasmum replied to snowmom's topic in Parents, Friends and Loved Ones of Celiacs
Two of mine have low IgA also - basically our doctor has said that this means any Celiac test may give false results. As their sister has confirmed celiacs, we have been advised to keep them gluten-free. A stool test showed the youngest has a problem, and she may have celiacs - they all have at least one celiac gene as well. -
ARCHIVED Am I Being Too Cautious?
Mayasmum replied to Mayasmum's topic in Parents, Friends and Loved Ones of Celiacs
Well, I spoke with her teacher, and they want me to speak with the nurse again. They do not think the other children are mature enough to deal with personal space near her... -
ARCHIVED Am I Being Too Cautious?
Mayasmum replied to Mayasmum's topic in Parents, Friends and Loved Ones of Celiacs
I am going in again on Friday, so will also speak to the staff. I think part of the problem is that they know she has this, and do not want to be liable for anything as well. -
ARCHIVED Am I Being Too Cautious?
Mayasmum replied to Mayasmum's topic in Parents, Friends and Loved Ones of Celiacs
I have been to lunch with her, the seats are very close. She does have other people on the table with her, just not sat directly next to her. So she is not toally isolated, that would freak me out for sure. -
ARCHIVED Am I Being Too Cautious?
Mayasmum posted a topic in Parents, Friends and Loved Ones of Celiacs
My 6 year old goes to a local school, and I have been told my some family members that I am being too cautious re her lunch situation. All of her other classmates eat gluten - the school menu is full of it, so, I requested that she does not have people sitting directly next to her. I do not want her to be on her own, but am also weary of the fact that kids... -
ARCHIVED How Many Times Did Your Kid Test Neg Before Pos?
Mayasmum replied to Fourmonkeysjumping's topic in Parents, Friends and Loved Ones of Celiacs
My two youngest tested negative, as did I. We had only been eating one slice of bread a day though for 2 weeks, so not sure if that was why, but my 6 year old came back very positive on that. With my youngest two, they also have low IgA, so we were told that a negative Celiacs test could be false because their low IgA could mess the test up. Stool tests have... -
ARCHIVED Is This Far-Fetched? Breastfeeding Question
Mayasmum replied to D-borealis's topic in Parents, Friends and Loved Ones of Celiacs
oh good! Just saw your last update! -
ARCHIVED Is This Far-Fetched? Breastfeeding Question
Mayasmum replied to D-borealis's topic in Parents, Friends and Loved Ones of Celiacs
I would def stay with breastfeeding, she truly needs that especially as her gut is compromised by the celiacs. -
ARCHIVED Contamination From Toys?
Mayasmum replied to emsimms's topic in Parents, Friends and Loved Ones of Celiacs
I would not serve food with gluten in to be honest especially to children. We are lucky, we have a completely gluten free home, with 3 young children, I cannot trust them to do what they should. -
ARCHIVED Is This Far-Fetched? Breastfeeding Question
Mayasmum replied to D-borealis's topic in Parents, Friends and Loved Ones of Celiacs
A friend gave me this link - Open Original Shared Link -
ARCHIVED Had Blood Test - Do I Still Need To Eat Gluten?
Mayasmum replied to Mayasmum's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you - hopefully we will have the results by Friday....I hate gluten, it makes me hurt! -
ARCHIVED Had Blood Test - Do I Still Need To Eat Gluten?
Mayasmum posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
And the title says it all - my 3 year old and I went back on gluten after being off it for 2 months - I am having horrible side effects from being back on it - can we go off it now? We have to be a gluten-free household as my 6 year old had celiacs, so we were eating it outside of the home...I cannot wait to be gluten-free again, I felt so different off it... -
ARCHIVED Hepatitis Shots
Mayasmum replied to Ginnie64's topic in Parents, Friends and Loved Ones of Celiacs
sorry - I am English and saw grade 7 and thought 7 lol. I would assess the situation as to whether you think he really is at risk for hep. -
ARCHIVED Hepatitis Shots
Mayasmum replied to Ginnie64's topic in Parents, Friends and Loved Ones of Celiacs
is he likely to get hep at the age of 7? I would not do the shot personally. -
ARCHIVED My 6 Year Old Just Diagnosed - Question About Reflexes
Mayasmum replied to Mayasmum's topic in Parents, Friends and Loved Ones of Celiacs
Thank you! - we go to her dr's tomorrow so I am mentioning this and what steps to take next. -
ARCHIVED Wish Us Luck (Nothing Too Serious)
Mayasmum replied to AGH2010's topic in Parents, Friends and Loved Ones of Celiacs
Good luck, this is the part I worry about as well, hugs -
ARCHIVED Chilis In Savannah Is Not Following Gluten Free Guidelines
Mayasmum replied to Bruisin's topic in Gluten-Free Restaurants
I have decided not to eat out just yet unless it is a gluten-free restaurant.