jhol
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Latest Celiac Disease News & Research:
Everything posted by jhol
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ARCHIVED Allergy Tests?
jhol posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
hi, just received my appointment for allergy tests on the 8th may.so now ive got to go through all the notes ive made over the months and try and make some sense of them. im really worried coz i just clam up when im in the docs, i do it every time even when i write notes down and take them with me. is there something i should be asking for or saying... -
ARCHIVED Tried Gluten For First Time
jhol replied to jhol's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
hi jiggles, dont know where youre from but im in manchester, england. a wholefoods store is basically a health food shop! from what ive read on here in america it seems like you can virtually buy anything at the big supermarkets but here if youre looking for something a bit different like an organic,gluten free make-up range, or flouride free toothpaste... -
ARCHIVED Joint Pain / Bone Inflammation
jhol replied to StormyWen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
hi, i can only answer one of your questions- about acid reflux. this was the only thing the docs found when i had my celiac tests. theres nothing wrong but reflux- heres 2 prescriptions for it. i just thought im not getting into taking medicines for this and that!!! - i went gluten and dairy free the next day (with a few mistakes). ive only had one problem... -
hi all and thanks for answering, i have been thinking of sjogens but didnt know it caused red eyes, just because my mouths been very dry and "other bits" lol but just put that down to age! i,ll google it again and check it out. thanks
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hi there, about 4 years ago i had what i thought was recurring conjunctivitis and basically just put up with it until one day when i woke up and both eyes were devil red.went to the walk in center and the doc sent me straight to the eye hospital. so to cut a long story short, i went 4 times, cost me 20 quid each time, they didnt know what was wrong,...
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no nothing like that at all. just had a vision of myself pumping iron with loads of muscles-that just made me laugh. dont take any medications at all if i can help it. just took some extra pain relief paracetamol with aspirin yesterday and its from then really. its 12-30 at night here in uk an im fighting the gnawing hunger - its my own fault for staying...
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i know this sounds really stupid, but ive been bloated for so long i cant remember what hunger feels like! its been abt 10 weeks now gluten and dairy free and just this week ive noticed that ive started to lose a bit of weight ( yeah!!!- its only took 10 years)and i can lie on my stomach again.. yesterday morning i had a reaction to paracetamol and...
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im not a lover of taking pills if i can do without them- but had period pains today. which is a bit odd coz i dont really "do" periods. well not since i started having my problems "that dont really exist" - about 16 years ago. does this mean goin gluten free will give me "proper periods"!!!!! nooo! anyhow took some paracetamol but the extra strong fast...
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ARCHIVED Help. Pain In My Gut & Not Digesting, Probio's
jhol replied to designerstubble's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
hi designer stubble, you sound just like me at the moment- im really struggling. im veggie too( 20 years) and ive seriously been thinking of buying some meat to try!!!!! i too felt fantastic the first few weeks and its been downhill from there. foods that i was eating last month are now a no go. i just took some rice noodles out of the cupboard- there... -
hiya, welcome to the forum - just thought id let you know im 10 weeks gluten free ( with a few slip ups)and i havent had a crazy dream since. must have been gluten withdrawal.i also got a crop of very nasty spots on my bottom!! which i was extremely worried about - theyve gone and not been back. that gluten can do some weird stuff lol any problems any...
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hi, gemini- i had thought of these but i thought id see what the doctor had to say- think im gonna have to get a bit more "aggressive" in my dealings with them lol. thing is all my tests came back negative so ive kinda been left to it- as far as the doctors concerned theres nothing wrong with me. im thinking of finding out how much it,d be to go private...
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so, went to the docs today to see if i could hurry up the allergy tests. while there i mentioned the weird tingly thing thats going on with my "ladybits" the really dry mouth, cold hands, feet going "white" in the bath, the rash on face thats not gettin any better ect,ect. what did she do for me? she told me to go and buy some anti histamines , take...
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ARCHIVED Any Uk People Joined Celiac Uk
jhol replied to jhol's topic in Introduce Yourself / Share Stuff
hi, there is a forum of sorts kind of connected to the site. i only found it by googling celiac uk forum - one of the sites that came up said useful links celiac uk. it brings up a page ,scroll down til u find the message board. dont know why they,ve made it so difficult to find. ive found though its mainly food based with people telling you that theyve... -
ARCHIVED Possible Acid Reflux That Won't Go Away
jhol replied to MIgrainePosterChild's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
when i got the results of all my tests, the only thing they found was acid reflux!!!. i was given a prescription but decided there and then that i wouldnt start taking medicines for this and that.if something is irritating you it can only be something your eating or drinking. i went straight on the gluten and dairy free diet. i havent have any reflux from...- 14 replies
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- acid reflux
- burning chest
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ARCHIVED I'm Too Hot Or Too Cold, Chills, Never In Between Today!
jhol replied to learning2cope's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
the only way i know ive eaten "the wrong thing" is because i go absolutely freezing cold, get the chills, thankfully since ive gone gluten free i dont get the bloating any more. i hate getting wrapped up though because then im too hot!! it happened last night when i had some popcorn - think it was the soya!!! it could be a gluten symptom or could be a... -
ARCHIVED An Introduction :)
jhol replied to Auntie-Manda's topic in Introduce Yourself / Share Stuff
hi there, just saying ,you might be better off introducing yourself in one of the lists on the forum page. theres one for friends of a relative with celiac - or something like that. just click on that then on the start a new thread button. more people will see your post that way.ask any questions you want, even if you think its stupid/dumb - ive asked... -
hi, just had another thought on the matter- i wonder if the manufacturer of the sausages has modified the recipe recently - maybe you could email them. sometimes its easy to get hung up on the gluten. even though they were gluten free they could of added a new herb or spice to the mix - its just a thought! with my own experience with coleslaw i tried...
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ARCHIVED Celiac Testing
jhol replied to zombiezombie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
to be honest, its completely up to you if you want the testing or not. or whether you could cope with the symptoms long enough to have the tests. there,s many on here who havent had the tests and some - like me that had the tests and they turned out negative!!! you could be gluten intolerant rather than celiac -and you,d only know if you have the tests ... -
hi dont know if this helps or not, i dont have any gastro problems at all - but i had the most horrible symptoms one night after a meal at my friends house. this was before i went on the gluten and dairy free diet.i retried everything i ate that night - it was the coleslaw!!! ive put it down to either the cabbage or the vinegar. ive not tried any of...
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ARCHIVED Im Desperate For "bread"
jhol replied to jhol's topic in Gluten-Free Recipes & Cooking Tips
i forgot i did buy buckwheat and quinoa ,but i,ll have to google chia seeds- im sure they,ll sell them at holland and barretts(wholefoods shop) i bought a ready made tortilla mix to try.it made 2 tortillas (did half the mix) im absolutely stuffed now lol think the mix was a little bit too thick but what i really need is a good non stick pan if im gonna be... -
please bakers i need your help, does anyone have any really easy recipes for flatbread, tortilla, or pittas- im not really bothered about baking a proper loaf. just need something dead quick and easy. im rubbish at baking and just bought some different flours, got rice,brown rice, maize, chickpea and the baking powder and stuff. the only thing is -no...
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ARCHIVED Tried Gluten For First Time
jhol replied to jhol's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
thanks everyone for your reply,s, just feeling so sorry for myself today, and thinking about it, this is how i felt every single day before i started this diet. its hard to believe how far ive actually come. ive gotta stop being so hard on myself. phoned the doctors today- no appointments for a week!!!! oh well .... found a wholefoods store in manchester... -
ARCHIVED Tried Gluten For First Time
jhol replied to jhol's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
sorry - yes when i said wheat i kinda mean gluten as in a celiac problem. i must admit im struggling with not being diagnosed with anything yet. i feel like i need to apologise for not having a diagnosis and feel my family would take me seriously if i had one . anyways just a little tired and confused at the moment -probably delayed symptoms. gonna phone... -
ARCHIVED Tried Gluten For First Time
jhol posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
so last week was so fed up i bought some lactose free cheese- out of desperation, hoping it was just the lactose that was the problem. well, had all the intolerance symptoms, cold, ache in cheeks,tingly cheekbones, tired, achy. so i now know cheese is out! had a few days off over easter so decided to try wheat. had 2 white muffins ( english -so bread... -
ARCHIVED Toothpaste? But Clutching At Straws Here.
jhol replied to jhol's topic in Gluten-Free Foods, Products, Shopping & Medications
hi, im off work tomorrow so i might just skip toothbrushing and have breakfast first for a change. im currently waiting for allergy tests - i get reactions in my mouth about 15-20 mins after eating . not gluten reactions , just more intolerences..fruit and stuff