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Ciel121

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  1. Apparently there is a doctor saying the same thing: Open Original Shared Link Don't know. Don't care. I don't drink coffee anyway. Didn't realize I'd have to do citations like in a dissertation. Do you need an M.D. to chat on here? Didn't realize. Perhaps you have an M.D.? No? Is there absolute proof that Dandy Blend has gluten in it? Probably not...
  2. I'm impressed by Celiacs who try to eat at restaurants or Starbucks. I won't go to any restaurants...perhaps there are 2-3 exceptions, but I go very rarely. They are always restaurants that are off the beaten path. I'm horribly suspicious of chains catering to Celiacs. I'm betting on the coffee itself. I know when I'm around gluten I never feel it. I can...
  3. Ha, good question. I have Mitral Valve Prolapse and get heart palpitations. I've had numerous trips to the ER over this, and usually not at my request. A doctor sent me to the ER after he gave me Lidocaine by injection at age 21 when I was in college. All started then. It's not comforting when your doctor starts to panic. I remember sitting there with all...
  4. It's exciting, isn't it? I remember that first week on my elimination diet...ah. I told the doctor it felt like my stomach and abdomen had simply disappeared. I swear I had to look down to see if I still had an abdomen because I felt like a floating head. :-) Great feeling. Congrats to you! Stay with it. I was lucky and my test came back positive, but...
  5. Um...because I want coffee. Tea gets old. I'm Polish. We drink more tea than the English--much, much more. No more tea. I'm tea-ed out. Sick of it. Green tea, white tea, black tea, darjeeling, Thai tea, jasmine, rooibos... had them all. And the coffee substitutes absolutely do resemble coffee. Have you tried them? Taste much better actually. Don't intend...
  6. I may have found another option in coffee substitutes. I'm contacting the company now. It's called Ersatz and is not made with barley or any extracts of it at all. It is apparently not processed with anything like gluten or barley or soy. They list it as gluten-free. Very excited to check it out. Thought someone else might be interested...
  7. So funny! I have to agree that there is something that just makes me paranoid and others paranoid about gluten to extreme levels! This can drive you nuts after a while. I've been gluten-free for 4 years, so I'm not new to this and I have read every book, article on the market and internet on this, yet I am still learning something new every day. What is annoying...
  8. If barley gluten is not accurately tested by ELISA tests then this is quite a problem because barley extracts and enzymes are used in many gluten free products like Soy Dream and Rice Dream. This was in interesting article: Open Original Shared Link
  9. No, the chocolate peanut butter is a very different issue. I'm pretty sure I'm allergic to chocolate. I never react to Dandy Blend, but it might be time to toss it. Sad. The woman who posted about it and where I found it has a wonderful web site and is a gluten-free vegan. She is a Celiac, so maybe I'll mention this to her.
  10. Thanks! I came to similar conclusions as what some people posted. I might be allergic to chocolate, though I'm not sure. My reaction is definitely not from soy because I never ever get headaches from soy. So the black circle logo means it is always certified by the Gluten Intolerance Group? That is what is on the package of this chocolate peanut butter...
  11. I have been drinking the most delicious and healthy coffee substitute, Dandy Blend. It is a blend of roasted dandelion root (which detoxes) and beets. It is also a blend of rye and barley extracts...I know, I know. Apparently gluten is removed and only the extracts are used and the product is repeatedly tested. I get no reaction to Dandy Blend that would...
  12. I bought a chocolate peanut butter powder by the brand Just Great Stuff that states it is certified gluten-free and felt sick, so I double-checked the package...apparently it is made in a facility that processes wheat, yet it is certified gluten-free... That is very confusing because I can tell you, it's NOT gluten-free. I got a mild headache compared to...
  13. Aha, then that could have been it at Jamba Juice...I will stay clear of it. Thanks.
  14. Does anyone know if wheat grass is gluten-free? I always assumed it was not and avoided it until recently I read an article that stated that wheat grass does not contain gluten. Can that be true? I was even more confused when I ordered a smoothie at Jamba Juice and felt very sick, definitely glutened. Of course I thought it was from contamination from...
  15. Wow, great idea. A non-processed food diet is ideal, right? Very healthy and great for weight management. I guess that's what I do automatically if I don't have the energy to explain Celiac disease, ha. Also, eblue, tell your family that Celiacs and people with food allergies are officially considered disabled by the government under the Americans with Disabilities...
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