
upsilamba
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by upsilamba
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Hi! I've just been prescribed sertraline and can't find if there are any safe versions out there. The pharmacy gave me a generic by aurobindo with sodium starch glycolate (no source specified). And the brand name (Pfizer) also has that ingredient, no source specified. I'm trying to contact both companies to see if I can get a straight answer, but I hate...
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Daily Med is a website where you can look up any drug and find the inactive ingredients listed. But if they say any form of "starch" and don't specify the source, it could be wheat (not safe!) or corn/potato (fine). The only way to find that one out is to call the manufacturer and hope they can give you a straight answer : (
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ARCHIVED Does anyone else take Prozac/Fluoxetine?
upsilamba replied to Zachm's topic in Gluten-Free Foods, Products, Shopping & Medications
I've been taking fluoxetine for the past couple of years - I got very lucky that for me, it overall reduced the stomach issues that I was still dealing with due to celiac (now I only get diarrhea sometimes instead of constantly, ha). I also dealt with the sexual side effects, which were really upsetting to me at first (if you're feeling depressed, you definitely... -
ARCHIVED Safe food in Kansas/Recommendations NC to Denver?
upsilamba replied to upsilamba's topic in Traveling with Celiac Disease
Thanks karen g! I actually did some more searching and found a few places that look like they might be hopeful (and someone really nice in the Topeka celiac association chapter wrote me back with some advice!). There are a few places that show up in Manhattan, Kansas, including one called Tall Grass Tap House. And then a chain that the woman from Topeka... -
ARCHIVED Safe food in Kansas/Recommendations NC to Denver?
upsilamba replied to upsilamba's topic in Traveling with Celiac Disease
Thanks! the first time i clicked it seemed like nothing happened, and then I couldn't figure out how to delete the second one : ) -
ARCHIVED Safe food in Kansas/Recommendations NC to Denver?
upsilamba posted a topic in Traveling with Celiac Disease
Hi all! I'm planning a road trip with my best friend from Durham, NC to Denver, CO this June. I'm plotting out our itinerary now, so of course I'm searching up places to eat along the way! We're going to need to drive across Kansas (probably sticking to I70), and since it's at minimum 9 hours driving from Kansas City to Denver, we'll most likely... -
ARCHIVED How Do You Deal With Waves Of Depression Post Exposure?
upsilamba replied to MermaidPaz's topic in Coping with Celiac Disease
So sorry you've between going through this, sincerely. I experience the same type of symptoms from glutening and it's incredibly difficult - honestly it's a traumatizing experience to realize that all of your emotional stability can spontaneously disappear, in a way that you're powerless to do anything about until it passes. My boyfriend tells me it's like... -
ARCHIVED I Gave Up Waiting For Insurance Approval...
upsilamba replied to Georgia-guy's topic in Coping with Celiac Disease
I was a beer snob too - although I had mostly stopped drinking it for the free years before I was diagnosed cause it always made me feel sick (mystery solved now, haha) Congrats on the diagnosis and on finding the health food store! Ordering online is also a great way to go for products you come across or hear about and want to try - often prices are better... -
Hi all, Does anyone know a decent primary care doctor in NYC (ideally Brooklyn, but i don't want to get too greedy with my wishlist)? I was diagnosed w/ celiac almost a year ago and am still struggling to feel healthy again (despite never eating out and following a totally paranoid diet). I know it can take more than a year to feel better, but between...
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ARCHIVED Just Want To Be Able To Eat Out Like A "normal" Person!
upsilamba replied to icelandgirl's topic in Coping with Celiac Disease
I totally get this. I've been avoiding restaurants completely for several months now, and I doubt I'll eat at a restaurant again for a loooong time, sadly. I learned that I get just outrageously sick from any gluten contamination, for about 3 weeks, so it is just not worth the risk to me at this point. just knowing that even at a generally safe place, there...- 25 replies
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Oh wow, so glad this topic popped up - and interested that I'm not the only one! I always had horrible periods (a bit irregular but crazy PMS involving mostly gastro symptoms - I generally had to avoid eating the whole first day of a period, or spend the day puking, not fun). So I went on a low dose birth control pill that helped to moderate those symptoms...
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ARCHIVED Still Feeling Awful. All The Time.
upsilamba replied to upsilamba's topic in Coping with Celiac Disease
Thanks guys! i'm having another cold and wobbly day, but at least my brain is sort of working so that feels a lot better. Here's hoping it lasts a little while this time : ) I think i definitely need to try the elimination diet and see what it turns up - I'm trying to find a good nutritionist to work with for it, so once I can get an appointment for it... -
I agree - even though I'm pretty paranoid, I don't tend to worry about shampoo/conditioner or hand soap, but for anything that goes on my face or is meant to cling to skin (like lotion, hand sanitizer, etc), I won't use anything that has gluten or might be contaminated with it. It's been a pain finding and buying new things, but it's so worth it to not worry...
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ARCHIVED Still Feeling Awful. All The Time.
upsilamba replied to upsilamba's topic in Coping with Celiac Disease
Hey, thanks for the replies. I do take a multivitamin (actually the naturemade one with iron), and digestive enzymes and probiotics. and i've also been avoiding dairy almost completely for 3 months (very occasionally i bake or cook w/ a little butter - but it doesn't seem to make a difference for how i feel either way, so i think i just avoid it out of habit... -
Hey all, I've posted here a few times before - I got diagnosed with celiac last June, at first felt much better (briefly), and then kept getting glutened about once a month for the next several months (and made the fun discovery that my symptoms are crazy severe and last for about 3 weeks - paralyzing depression/anxiety/brain fog, then bad pain/gastro...
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ARCHIVED Best Way To Deal With Servers?
upsilamba replied to annajazz's topic in Coping with Celiac Disease
To quote my favorite sage on food, I want to go to there!!! But seriously, my boyfriend and I have been talking about moving to Portland since we went there on vacation last spring (right before i got dx'd, so I didn't sample any of the apparently glorious gluten free offerings...). I think i need to shift into hard-core lobbying mode now, haha. -
ARCHIVED How Long Do Symtoms Last?
upsilamba replied to Jennifer333's topic in Coping with Celiac Disease
Hey Jennifer, That's rough! I do get symptoms that last at least that long, I'm finding (I've been gluten free since getting diagnosed this past June, but unfortunately I've had a good number of mishaps since then to learn all about how my body reacts, ugh). The worst part for me is the emotional part like you described - just a horrible sense of anxiety...- 3 replies
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ARCHIVED Dealing With Getting Glutened?
upsilamba replied to upsilamba's topic in Coping with Celiac Disease
Hey again! Ironically since I've finally felt better enough to go out and do some normal-ish life things instead of just moaning sadly on my couch, I've been away from the thread a little while. But thanks so much to everyone for the advice! This is definitely an ongoing struggle... Nick, ugh, so sorry you're in the same boat...it's a miserable, miserable... -
ARCHIVED Ridiculous Conversations
upsilamba replied to Auntie-Manda's topic in Coping with Celiac Disease
So I definitely would LOVE to give up all the health problems and the cross contaminations and the restrictions on my life from celiac, but I have to admit that no longer being tempted by treats all the time is one of the silver linings I treasure...not that I'd ever volunteer for celiac, but I really do enjoy not having to stand there and debate should I... -
ARCHIVED Dealing With Getting Glutened?
upsilamba replied to upsilamba's topic in Coping with Celiac Disease
Thanks for the encouragement! I'm definitely on board with anything that might help get my body calmed down, at this point, so I'm all in for home cooking everything for a month or so at least, and I'll see how it goes. How far did you go, though, in terms of cutting out any "prepared" foods - would you do basic things that are sort of semi prepared, like... -
My first real experience with a dr (aside from check-ups) was when I broke a finger as a 7 year old and my pediatrician told us it couldn't possibly be broken because I didn't seem to really be in pain, and x-rays "weren't worth it." so I walked around with a broken finger for 6 weeks until we finally went back to see an orthopedist since it still hadn't...
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ARCHIVED Dealing With Getting Glutened?
upsilamba replied to upsilamba's topic in Coping with Celiac Disease
Thanks so much for the advice! I'm working from home today for the second day in a row (taking a little break to pop onto the forums now : ) ). I think you're all right that I do just need to get completely strict about what I eat for a long time to let my body get itself together - I've just been having a hard time bringing myself around to face that. Not... -
Hey everyone, So I was diagnosed with celiac back in June, been doing my best to avoid gluten like the plague since then, but I still seem to get glutened about once every few weeks. Unfortunately my reactions are pretty delayed- i don't feel it for a day or two - so it's really hard to pin down the causes. Especially the last two times, I honestly have...
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ARCHIVED New To Celiac - Trying To Plan For 2 Day Meeting Out Of Town?
upsilamba replied to upsilamba's topic in Coping with Celiac Disease
Thanks so much for all the advice! It's really wonderful to have people who've been there and learned some of the tricks/hazards to turn to while I'm still such a newbie, it's just really comforting. I did end up packing some hard boiled eggs - thanks for that suggestion! Maybe I'll make muffins my goal for next time I travel. I've always loved baking...