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floridanative

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Everything posted by floridanative

  1. floridanative
    To pick a GI, I'd ask how many cases of Celiac they see a year. My GI said he'd seen only a few in his career (he's 50+). When he talked about the biopsy, I knew he didn't know how to do one correctly, saying he'd take a biopsy IF he saw something. You can't see all damage, even with the scope. So now I'm with another practice that explained that they had...
  2. floridanative

    ARCHIVED Good Pcp

    floridanative replied to floridanative's topic in Doctors

    Hi Stephanie, Yes - well this is my pcp, not my gyno. My pcp didn't even know I was going off the pills so she had no way to warn me what would happen. She was suprised that my gyno didn't explain things to me. I think my gyno will try and push meds on me in Jan. when I'm there for my annual check up. The doc today agreed that I need something like Premrose...
  3. floridanative

    ARCHIVED Good Pcp

    floridanative posted a topic in Doctors

    I didn't know where to put this post so I'm sorry if it's in the wrong place. Today I saw my PCP for a blood test not related to Celaic. I'm having trouble with constant PMS symptoms which started when I stopped taking my b/c pills after being on them for almost half my life. I had on my own started taking St. John's Wort in an effort to stay out of jail...
  4. floridanative
    I'm techno challenged so I don't know how to post Butterball's e-mail to me. They said they can't divulge the 'secret ingredients' for their frozen turkey products. They suggested I don't eat their frozen turkey or frozen turkey breast if I have a problem with gluten. Only their fresh products are guaranteed gluten free (that's them talking not me). They...
  5. floridanative
    I posted elsewhere about this but I think it bears repeating. Butterball explicitly told me that only their FRESH turkey and FRESH turkey breast was gluten-free. They said due to secret recipe for their frozen turkeys, they can't deny the pressence of gluten in it. I realize that not everyone eats Butterball turkeys but my guess is that fresh (not frozen...
  6. floridanative
    Well my experience so far has been, tested too high for tTg (I think) and the doc mentioned celiac disease, them promptly told me he was shceduling me for a colonoscopy. I didn't know at the time to question this. So when I found this site and others I knew the colon test would not show celiac disease, I called and asked for the endoscopy (with biopsy) to...
  7. floridanative
    Nancy - I'm so sorry about your Father but I'm thankful you shared his story with us. It helps to put things into perspective. At this point, I'm hoping that if all I have is celiac disease I will grateful it's not something worse. Have a lovely holiday season.
  8. floridanative
    This is the week for 'B' peolpe to e-mail Oprah. If your last name begins with a B, then it's your week. I agree that this campaign may be futile but it doesn't cost us money or much time to persue it. Other and better ideas are greatly appreciated. I just can't focus on anything else right now. It's my busy season and I'm late even posting this today...
  9. floridanative
    Well I think this post has answered a question about which test my GI did. I did have a full panel run Tues. so I will know more then but from the above info he must have run the TTG. He told me my level of a certain antibody should be 3 or 4 and it's 11.1. Can anyone help with how accurate that particular test is? Thanks in advance if anyone has time...
  10. floridanative
    I think if you check on the Celiac Sprue Association website you can e-mail them and ask if there is a support group in your area. Good luck! Also, I noticed you menioned an another thread about your BF's parents not inviting you guys over to eat anymore. I feel like most people are just afraid of things they don't understand. The fact that they didn...
  11. floridanative
    My B12 was low normal but don't know actual number. Since I went back on iron pills (anemia), I haven't felt great but I can get through the day at least. I started taking a B-complex pill every day two weeks ago and yesterday I felt like a normal person. Today I also feel good. However, there is no B12 in the pill as I checked yesterday. So I'm going to...
  12. floridanative

    ARCHIVED Ugh--doctors!

    floridanative replied to skyengabbie's topic in Doctors

    Well all I ever do when commenting on doctors is complain because I usually don't have anything nice to say about my experiences with them. With my first and former GI doc, I had to leave a message with his nurse if I had a question and I only did so twice in two months. Well she took 3 and 6 week days to get back to me respectively. She was also the rudest...
  13. floridanative
    I very much like this topic. My name is Tiffany and I'm not the Tiffany that is a great cook and shares all her great recipes. Thanks by the way Tiffany for doing that. Many Celiacs will enjoy their holiday feasts this year because of you I'm sure. Live in metro Atlana now with hubby of 16 years. We are DINKS. I'm from FL but left at 17. All my family...
  14. floridanative
    Matilda - it's so wonderful to read such good news!! I'm not gluten-free yet (still testing) and it's people like you that have gone through bad times and come out on the other side that give me hope. There is a light at the end of this very dark, scary tunnel after all. Best wishes to you!
  15. floridanative
    I would like any feedback about what I'm going through because now I'm really confused. About the time I was told about the possibility of having celiac disease (7 weeks ago), I went off bc pills I'd taken for 19 years. Well I'm having horrible mood swings that come on in an instant. One minute I get a ridiculous e-mail from a client and I'm thankful they...
  16. floridanative
    cinda - I'm so sorry for all you've been through. It's people like you that have been suffering for so long that make me realize that as frustrated as I am, I am better off than many. I have only been sick just over a year and I haven't been that sick compared to many others I've read about here. I'm glad you finally got the answer you searched so long for...
  17. floridanative
    George - I have posted elsewhere about similar issues but it was about family members. I think you are correct in saying that some people just can't face that something could be wrong with them. When my Mother found out what I was getting tested for, she asked me to wait while she found a pen. She wanted to ask her doctor to test her for it. Well once I explained...
  18. floridanative
    Claire - well I don't know that I have celiac disease yet. I don't really have the gastro symptoms. But I'm going to ask my doctor to check for ulcers just in case. She's an internist but she's young and she doesn't seem to worry too much about what's causing my anemia. I want to change to another pcp but I can't do that in the middle of all these tests....
  19. floridanative
  20. floridanative
    I found out from skbird that my b-complex was making my urine yellow. But this brings up another stupid thing the hemotologist said to me yesterday (others may have read about my experience on another thread) but I forgot to mention the following comment. I told the doc (who I'd never met before) that I have the frequent urination problem and wanted to know...
  21. floridanative
    Thanks jenvan! Is this sold in drug stores, or only online or what? I've never heard of anything like it. I want to get some tomorrow or at least order it.
  22. floridanative
    Thanks for offering a male point of view George. Guess it doesn't matter what sex you are. If doctors can't explain something, they just act like everything is fine.
  23. floridanative
    Thanks jerseyangel. I have only been sick for about a year (so I feel lucky) but have only known really for 7 months. And I can tell my family thinks celiac disease is the weirdest thing they've ever heard of - and I agree with them. But that doesn't mean it doesn't exist because they've never heard of it. They live in their own little world (sister and brother...
  24. floridanative
    Oh my gosh kelliac! That is horrible - what a jack $%&!!! And your question is perfect. What do they tell anemic men??? I guess I was just so shocked that I felt like I shouldn't question this guy because he seemed like he know a lot more than my GI for which I was grateful. But he pushed and pushed asking all the details of my monthly cycle and I told...
  25. floridanative
    Well at least I see that I'm not alone in dealing with family members that are less than supportive. My own Mother was going to ask to get tested for celiac disease when I told her I may have it and it's genetic. Well once I elaborated about the diet - for life - that was the end of her interest. She will never be tested no matter what so I won't waste my...
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