floridanative
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Everything posted by floridanative
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ARCHIVED What's Going On At Cbs?
floridanative replied to floridanative's topic in Publications & Publicity
Oops! I defer this topic to one started by jaten...I was looking for something about CBS and missed that post about the Sunday morning segment. -
My Celiac mom was visiting over the weekend and I went to the CBS website to show her the video about Celiac that aired a couple of weeks ago. To my surprise, a new video popped up about Celiac and dementia as well. Then yesterday we watched just part of Sunday Morning on CBS and they did a story about food allergies and showed a restaurant in Boston (I think...
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ARCHIVED Monosodium Glutamate
floridanative replied to Tavi2's topic in Gluten-Free Foods, Products, Shopping & Medications
Organic produce isn't supposed to have MSG in it. I started reacting to it about three months into the gluten-free diet. I only buy organic meats and produce now, turkey bacon with no nitrates....organic soups...anything I can find that I think is the healthiest option around. My system is pretty clean now so I can really tell when I have MSG as my stomach... -
ARCHIVED Health Valley Will List All Forms Of Gluten
floridanative posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I found their soup at Publix and they had a cream of mushroom that seemed gluten free but of course I would not know if it contained barley so I e-mailed them about their policy. They said they list all forms of gluten in addition to the main allergens, one of which is wheat gluten. They process wheat in many products so if you buy from ded. gluten-free facilities... -
I e-mailed CBS as well....we all need to do so if we want to see a more comprehensive story on Celiac in the future. A CBS producer today could be working for NBC or ABC tomorrow. Producers get credit if a story gets a lot of feedback, especially if it's good. Since Dr. Green was in the segment I figured his staff would know how it came about. One of...
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ARCHIVED Thanksgiving
floridanative replied to skipper30's topic in Parents, Friends and Loved Ones of Celiacs
Yes - I was going to try and do the same thing. I want to make a test batch before the holidays. Wonder if they'll freeze okay? -
ARCHIVED Thanksgiving
floridanative replied to skipper30's topic in Parents, Friends and Loved Ones of Celiacs
I was so worried about ruining Christmas dinner last year that I put off my biopsy until Jan. Now that I know I can still make pecan pie with gluten-free crust, cornbread dressing, green bean casserole sans onions/with Progresso soup, and I never ate gravy anyway, I feel silly that I thought I'd not be able to enjoy eating during the holidays if I was dx... -
I also watched (or listened rather) to Oprah today while working on a project in the kitchen. I could not believe that poor lady with the *D* after having the baby....um, yeah she needs to get tested for Celiac - STAT! Here is what I'm going to do as mentioned above. I'm going to e-mail the Oprah show, yet again, and I'm not even going to mention her doing...
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CBS Evening News with Katie Couric will be featuring a segment on celiac disease with Dr. Peter Green tonight at 6:30 pm Eastern Standard Time. Tune in! Above is just one of the listserv posts about the program tonight. Another group posted about it as well. par18 - listserv is something you have to subscribe to. It was originally started at John...
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On the East coast it's on at 6:30 pm tonight.
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Well my instincts didn't let me down. Dr. Green had one of his staffers post a listserv notice that CBS will do a story tonight about Celiac on the evening news. I doubt such a segment will be able to be compreshensive but at this point, any publicity is good publicity in my view.
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I was just watching the CBS evening news and there was a teaser for a story coming on tomorrow night. The teaser went something like this: this whole family has a disease but none of them knew it until little Emily got sick. It's thought a million Americans have it but most of them don't know it yet (end of tease). Chills went down my spine and I usually...
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ARCHIVED Calling All New Yorkers
floridanative replied to floridanative's topic in Traveling with Celiac Disease
Thanks and I know it's expensive for a room with a view of the parade. The lowest price I see this year was $499 and that wasn't for a suite or room with a kitchenette. Same room without a view was $349. We may end up a a B&B which we prefer anyway and several in Greenwich Village (and other areas) have mini kitchens for less than $300/nt. This will mean... -
ARCHIVED Online Article From The Gourmet Retailer
floridanative replied to LKelly8's topic in Publications & Publicity
Wow! Thanks for posting. What I think this means is that once regulations are in place for labeling gluten free food, some of the main food companies will want to get in the gluten free food game because they want every penny out of every consumer they can get. There are many companies (P&G) that think gluten free is a flash in the pan and therefore won... -
ARCHIVED Calling All New Yorkers
floridanative replied to floridanative's topic in Traveling with Celiac Disease
Thanks Jessica. It was my sister's idea. We were going to go this year but decided to wait so maybe her kids can enjoy it too. I already have a list of places to eat in NYC that is too long for the trip! I'm so jealous of you New Yorkers up there! To have a bakery and a place to order pasta, pizza and beer. You guys are just plained spoiled! -
We are planning a family trip (10 or so of us) to NYC for next Nov. to see the Macy's parade among other things. Does anyone know of a good hotel on the parade route that we could book a room in with a view of the parade so we don't have to be on the street? I know they book up fast, so we're tyring to book now for next year. We really need a suite set up...
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ARCHIVED Know Of Any Good Doctor In Philadelphia?
floridanative replied to rutland's topic in Doctors
Go to www.celiacawareness.org and post this question to them. The woman who runs it lives there (I think) so they should be able to point you to the right place for Celiac dx. -
ARCHIVED 2005 Toyota Camry
floridanative replied to floridanative's topic in Introduce Yourself / Share Stuff
Yes, the Accord was the other car we were considering but I like the look of the Camry so much better. I'm a bit of a car snob and my DH would drive a wreck if I let him. Growing up we had a new demo every six months so for me to keep a car for three years is quite difficult. The other day I drove around a parking lot to find a newer Accord and a newer Camry... -
ARCHIVED Greatest News Ever!
floridanative replied to mommyetb's topic in Parents, Friends and Loved Ones of Celiacs
I had a doctor actually tell me he was hesitant to put me on the gluten free diet since my worst symptom was anemia. This was AFTER my positive blood tests and biopsy for Celiac. Unfortunately it seems that some doctors are very hesitant to diagnose Celiac, and even if they do, you still have knuckleheads out there like my ex-doc hesitant to prescribe the... -
ARCHIVED 2005 Toyota Camry
floridanative replied to floridanative's topic in Introduce Yourself / Share Stuff
Thanks everyone. The seats are a non issue for my husband and it's his car. We would only take his car to TN (two hour drive) and we'd take my car on any longer trips than that. We can't take his current car out of town because I don't think it's reliable and the seats in it are so worn out that it's like sitting on cardboard (I'm not exaggerating). My... -
ARCHIVED 2005 Toyota Camry
floridanative replied to floridanative's topic in Introduce Yourself / Share Stuff
Thanks Carla for letting me know my box is full. I'll clean it out now. -
I'm helping my DH shop for a new (used) car. He is specifically looking for a Camry if we find what we want, at the price we want. Can any of you that may own a Camry say in the last four years post if you like it, don't and why? So far we have found a '04 and '05 model that might work. Most reviews I've found are positive with the biggest complaint being...
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ARCHIVED I Had Pizza Today!
floridanative replied to jerseyangel's topic in Gluten-Free Recipes & Cooking Tips
Oh my that seems even easy enough for me to make Patti - lol! I just got some cornstarch and zanthum gum so I think all I need is the potato starch and the shortening. I'm going to have to give this a try this weekend. Thanks for sharing! So happy for you too! -
ARCHIVED Glutino Pizza, Pastas Now At Whole Foods
floridanative posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Maybe other stores already had this brand but my old Whole Foods did not. Now they have the frozen pizzas, mac & cheese and penne alfredo and something else I didn't get at the new store in Duluth, GA. I was already sold on the m&c since I got it elsewhere but it's cheaper at Whole Foods than where I used to get it. I've yet to try the penne alfredo... -
ARCHIVED Manna From Anna
floridanative replied to skinnyminny's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't have a bread machine - one bag makes two loaves of bread. And regarding what makes it different well.......it tastes like really good bread. Not like that spongy stuff that I had with every other type - Pamela's, Authentic, every other one I tried was not like bread to me, or good bread anyway. Breads from Anna (new name) is just fantastic! It's not...