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jajus100

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Everything posted by jajus100

  1. jajus100
    Well, I tested negatively for the Ttg test. I was postive on the Antigliadin IGG, but that was the only one. My GI basically said that test was worthless. My general was the one who first suspected Celiac and tested me for it. My GI said it was impossible because the ttg was negative. Well anyway, while I was being tested in all kinds of ways from my...
  2. jajus100
    You know, it is very interesting to read this board. When people say the test results are in with a frown face, you don't know if it is because the results were positive in which case they have a disease which will really change their lifestyle for life, or are frowning because the test is negative which means they know no more than when they started and...
  3. jajus100
    I'm in the same boat...waiting to get in with specialists. You should be able to go back to your doctor and tell them you want the celiac panel blood work done, though. ANY doctor can order this and it is an easy test for them to do. You should get results back from the lab in a short amount of time. Be demanding... You are the customer!
  4. jajus100
    To me, one of the biggest issues, is that Gluten intolerance seems to be much more of a problem than "just" celiac disease. There are also other food related intolerances. If the probability of celiac is 1/100, I wonder what the probability is that someone would have some kind of food related inolerance? I think part of the problem is that medical doctors...
  5. jajus100
    Kaiti, I have two links on the previous page that discuss why there would still be the problem with gluten even though the host was now body, blood of Jesus. In Catholicism, communion is more than symbolic. That is the difference between it and many other Christian denominations. For Catholics, though, having the precious blood is every bit as good...
  6. jajus100
    Jenvan, Thanks!
  7. jajus100
    I have a question for all of you, and this thread got me to thinking. I started having some of my problems when I upped the amount of yogert I was eating... Hmmm. I know one of the first things the doctor did was to ask if I was lactose intolerant, and I told her I never drank milk, but I told her I had plenty of yogurt. She told me not to worry because...
  8. jajus100
    Not sure why you felt such a need for such a "snarky" response. You feel the Church should change its teachings, I feel that it would be entirely inappropriate to do so on such an important matter. Can't you just agree to disagree.... Some of us are traditionalist Catholics who don't want all the changes that some of the progressives want. We simply...
  9. jajus100
    Found the exact question on ETWN... Open Original Shared Link
  10. jajus100
    Here is an article by another priest. Would a person with Celiac disease be protected by transubstantiation from being harmed by gluten in the host? The argument that the accidental qualities of bread cannot harm the intestine of one who suffers from Celiac disease (due to non-tolerance of gluten in wheat bread) is false. It is of course true that the...
  11. jajus100
    I am ONLY talking about the Catholic Church. The Catholic teaching is different from most protestant teachings in the meaning of Holy Communion. When I speak of church doctrine, I am only speaking of the doctrine that relates to the Catholic Church. I was a protestant for years. In my non-denominational church, I really don't think there would have been...
  12. jajus100
    Okay, Where as you say the Church has problems with Celiacs, I think you have a problem with Church teachings. The bottom line is that the "matter" of the bread and wine during communion DO matter! A simple matter of researching church teaching for the last 2000 years will explain why. The church can't just change because some people can't take gluten...
  13. jajus100
    I have never heard the "Catholic Church" calling celiac scandalous. They have provided options for Celiacs. Please tell me where you are getting that... What is scandalous, to me, is that children aren't tested. 1 out of 100 is a VERY high number. Not only is it not routinely tested for, but as this board clearly demonstrates, when people WANT to...
  14. jajus100
    Okay, My Gastro said he pretty much ruled out Celiac because the TTg was negative and the antigliadin IGA was negative (zero in fact). The Antigliadin IGG was 21 where 0-9 was normal. He had me do the barium test and the 72 hour fecal fat test. (HORRID test). That showed 15.4 where (0-6) is normal, so I showed for malabsorption. So anyway, here...
  15. jajus100
    LOL For what it is worth, IMO, waiting one or two days to go gluten free wouldn't be the end of the world for you... If he tells you to start on Thanksgiving, I think I would start the day after....
  16. jajus100
    I would have the biopsy done. Jut for the fact that it is the "gold standard." It might also lead other family members to go ahead and be checked. It would also be good to know how much damage you have.
  17. jajus100
    I was also charged on the day I ordered. I have not yet received the kit. I wrote an email, but I never received a response from it. I called, and I got a "live person" who was very well informed about the product and testing. I think the bottom line, is this company is very poor at answering emails. I am still waiting for my test kit. Diane
  18. jajus100
    In my never ending desire to understand all these tests more, I was suprised by the following article: https://www.celiac.com/st_prod.html?p_prodid=1070 Based on most of my readings, I thought the tTG test to be pretty specific and sensitive. According to this article, it seems to be very lab dependent. They did the blood test at the same time they...
  19. jajus100
    Here is another article to look at: Open Original Shared Link In this article they found "Marked increased anti-tissue transglutaminase concentrations were found in celiac sprue, while low-positive values were also found in Crohn's disease and ulcerative colitis. Anti-endomysial antibodies were detectable only in celiac sprue." They concluded, "These...
  20. jajus100
    My doctor's asst. won't even tell me WHAT blood test he did and they denied doing a full panel Celiac test before scheduling a biopsy. <{POST_SNAPBACK}>
  21. jajus100
    I ordered it too, just a few hours ago!
  22. jajus100
    This sounds fantastic. I went to the website, but I didn't see a cost associated with it. Since it doesn't need to be analyzed by a lab, I assume it won't be that costly. Does anyone know?
  23. jajus100
    It is strange that a lab on its own would just decide not to run other tests. I would guess that they are thinking that the TTG is pretty specific and sensitive, and that should have picked it up. I bet if the Total IGA would have been low, that is when they would have run the TTG (Igg) test.
  24. jajus100
    I really don't know if the test is worth it or not, so I will comment on insurance. I have some children with special needs. I had problems with insurance paying for some of their services. I protested their decision by writing a letter along with my doctor's recommendation. I was granted the services. A lot of times insurance says no, and all you need...
  25. jajus100
    I don't know, but I have the same thing. High IGG, but absolute 0 for IGA, and a 1 for ttG. Saw the GI the other day, and he said the high IGG could mean all kinds of things and it was a bad test for Celiac. I wanted the Total Serum IGA test run, but he didn't seem to care about that either. I have seen some other things that can cause the Igg to be high...
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