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africanqueen99

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Everything posted by africanqueen99

  1. africanqueen99
    We eat out, too. So know you're not alone. I have two kids with celiac and the other three people in the house are not, but eat gluten free (well, my husband eats gluten lunches a lot at work). Anyway, when we eat out we eat family style and everybody orders gluten-free meals and we mix and match plates. In the 1.5 years we've been at this we've had...
  2. africanqueen99
    iPads here too. Honestly, I like how I can click the boxes of our needs and go from there. But, yeah, the food is nothing to write home about. We eat there maybe once every six months when the kids are Jonesing for fries. Luckily we have a local place around the corner that has gluten-free friers (the owner's kid has celiac). Much better food.
  3. africanqueen99
    Welcome to the board. Like you, my youngest was DX when she was very young. No weight gain and dropping off the chart between 12 and 18 months caused her DX. At the time I thought her only symptom was no growing, but looking back I can see other things that I blew off because I had other kids (never slept, screaming at night in pain, nursed around the...
  4. africanqueen99
    Cara - I've heard from others that kids jump to an IEP and lose their 504 if there is a learning issue. I wonder if that's law or just common practice?
  5. africanqueen99
    My kids are insane about yogurt (you can sweeten with honey, but my kids prefer the organic Stoneybrook - strawberry flavor) and spoonfuls of sunbutter. Have you tried giving her shelled peanuts? Not really a daycare option, but 3 year olds can totally break them open and it's a massive time killer.
  6. africanqueen99
    I wouldn't be comfortable with regular play-doh - too many chances for gluten. Even just under fingernails. At my daughter's preschool there are two schools of thought: 1. have an all-gluten-free play-doh room 2. have the necessary child use gluten-free play-doh on a separately colored tray I've seen both styles work. Since my kid is celiac and...
  7. africanqueen99
    We have one old lab that is on gluten-free food (Costco) and gluten-free "treats" (Costco dried chicken breasts that I tear into smaller pieces). Because the celiacs in the house are still young I didn't want their hands near any gluteny foods. For the record, the dog's coat has never looked better!
  8. africanqueen99
    It's also good to have a "same page" mentality. If you talk to the teacher about unrestricted bathroom access and she abides. Great. But what about when a sub shows up, your kid has an issue and runs out of the room? That's not fair to the kid that everybody doesn't follow the same rules.
  9. africanqueen99
    The letter from her physician with her DX listed as celiac is all you need to get a 504. How badly do you want to fight for it?
  10. africanqueen99
    The cafeteria wipes down tables with their old dirty rag, so my kid owns her own health. A thing of wipes is attached to the wall for her to grab one and use (school provided). She also keeps a container in her desk, just in case (mom provided). Like Stephanie said - figure out what you need and go from there. And be ready to put in the leg work b/c...
  11. africanqueen99
    My oldest is a super social kid that can make friends with a brick wall. She was also so worried about this stuff. You're going to become a pro at making gluten-free pizza for parties...and gluten-free cupcakes. Michael's has an awesome cupcake decorating class so they look fancy like a pro shop. Sorry about the possible DX, though. Those first months...
  12. africanqueen99
    Yes, celiac is covered for a 504 Plan. Were you asking for an IEP for the ADHD? It's been my experience that IEPs are much more difficult to obtain. Just having a true celiac DX is enough to get a 504 in a *publicly funded school*, though. You'll need to ask the school to put together a 504 meeting. They'll pull the people together (Principal, VP...
  13. africanqueen99
    Yes, celiac is correct. We did blood work today to look for vitamin deficiencies also.
  14. africanqueen99
    Well, we met with the doctor to get to the bottom of this. After hearing my concern and then talking to my girl we figured it out. Going to the bathroom is her behavioral tic. That's right, she does it out of habit with us. Doesn't happen at school. I love that weird, quirky kid that uses peeing as her way to be different.
  15. africanqueen99
    If you order online through a scout its $10+ shipping (in addition to the $5 cookies). Crazy high! Our baker is offering the toffee ones and only by jumping through hoops.
  16. africanqueen99
    My council is using the other bakery right now (we do one for three years and then the other for three). I look forward to having them in my house again. When my daughter was a kinder I bought 24 boxes so she could hit her goal! Last year that number was vastly reduced and we didn't eat one cookie.
  17. africanqueen99
    My gluten eating kid is almost five. He knows that his sisters need us to keep the house safe and that food can't enter our house or my car unless they are approved by me. So when he is given something (say a party at school or a birthday party) he will do one of two things: 1. hand it over and ask what we need to leave behind (I go through the bag and...
  18. africanqueen99
    Did she have stomachaches pre-DX? My oldest's main symptom was stomach pain (had been going on for well over a year before DX. Anyway, once we went gluten-free it went away, but it took her the healing time before they were gone for good - I'd say 4-5 months.
  19. africanqueen99
    I have a lot of play dates over here and every child that walks in my door walks straight to the bathroom to wash hands. After taking off their shoes it's the first thing they do. Kids never question it, but I'd be honest if they did. My own kids have been doing that since birth (pre celiac). I'm not even a germ phobe, but it has always been our standard...
  20. africanqueen99
    For the safe snack drawer they should be only things from you. That way you know which items are in it and that the ingredients are safe *at that moment in time*. Because things like holiday m&ms and differently sized Hershey bars DO throw people off if they're not in this life. Are you in a public school? If so, request a 504 meeting that first...
  21. africanqueen99
    Oh, man. This is killing me. So she can come back negative from the genes and still have it? Without a positive biopsy I feel like I'm swimming with the sharks... Well, the stomach aches have gone away altogether so stripping out gluten has done wonders. I wish I could figure out the bigger picture.
  22. africanqueen99
    I agree that nobody should be feeding your child but you. Period. Like Mammaw, both my girls (two different schools) have a bag of "safe lunch/snacks" and a bag of "special treats". For my oldest, she has Go Picnics to grab from the nurse if I forget her lunch (it hasn't happened yet, but she has eaten the entire lunch and then grabbed a box from the...
  23. africanqueen99
    Definitely not vomit. She's young enough that needing to vomit still causes a lot of anxiety and tears.
  24. africanqueen99
    So, knowing the basics of this, where would you (all of you) go with this? Would you start with the genetic test and then regroup? Do a challenge before the GI visit without her knowing about it before you got there? Wait and talk to GI and plot out a program?
  25. africanqueen99
    I know it's not a horrible diet, but being "different" is a big deal for this age. You know what's funny is that this kid is such a little Punky Brewster - she marches to her own beat. She's a *cool* kid in every way that she gets to choose. So having this imposed issue just isn't cool to her. Looking back I have always had GI issues. In fact, I was...
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