CajunChic

Man....a shrimp poboy sounds amazing! I'm replying to see the answers, I'd love to know! I must say, I think my hubs and I mastered a gumbo with sweet sorghum flour incase you haven't had a gluten-free gumbo yet ; )

I've been successful at Outback, Bonefish Grill (my fav!), and Mellow Mushroom Pizza. I know everywhere is different, you're only as safe as the people preparing it care.. Good luck finding new places! As always, I'd speak to someone in management to see if they have gluten-free practices in place, then give it a go!

Good to know! Nothing beats a good Mac and cheese! I'm always looking for a good gluten-free one.

I have raynauds, too. I used to have oily skin and scalp and when we believe my celiac was "activated" my skin and scalp became very dry. Neither have changed gluten-free.

I love the Mai Fun rice sticks. Sit them for 5 minutes in hot water and they're done. I love the texture, too.

Very interesting! I'll ask on my next follow up. However, I was seronegative on the celiac panel so I'm not too sure if I make antibodies, lol!

I don't believe, I'm not sure what that is!

I get hypoglycemia often. I can drop to 30 after a PB&J sandwich : ( My endo said I am prediabetic, one of the lovely comorbidities of celiac. I eat low carb, and about 5-6 times a day. I haven't had an episode since changing my diet this way. The less you ask of your pancreas to to send insulin surges, the longer you can prevent full blown diabetes....

I've definitely seen the squirrel : / "well you obviously can hold weight, so you're fine. this one test is negative. Best I can tell you is, you're broken." then breaks out in laughter....

I definitely see a gain anywhere from 4-8 pounds. After a week, it goes down slowly.

Do you have GERD? I know I'm in a great deal of pain without my nexium. I also had to cut out dairy for the first year and a half, im just adding it back in small amounts. Yay! I was also on Carafate for my ulcers, a second EGD showed they healed, so I no longer have to take that. I take activated charcoal pills to help with trapped gas, it works wonders...

Thank you all so much! I'll update as soon as I get answers from my endo!

Wow, thanks for the info! I am waiting for an endo appointment soon. I do eat pretty balanced, but could find snacks that are better through the day. Just this week, I ate a ham/cheese sandwich for breakfast, 2 hours later my sugar was at 30! The next day, just one piece of toast woith PB and flax seeds, no episode. I can wake up with low sugar, other days...

I was diagnosed the same way. Seronegative with a marsh 1. I had my genes tested and found I have double DQ2 genes. Went gluten free and saw changes, then felt bad again. Found other intolerances. There are days I doubt this dx and wonder since I'm not "officially " diagnosed. But, my body speaks for me. My dr and I are confident its celiac. Good luck...

Has he been eating a lot of meat? Particularly red meat? My doctor told me that was a cause when I found I was more smelly after workouts than normal. I cut back on meats and added more plant protein and it was gone. I hope y'all find the root of his issue!