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NoGlutenCooties

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Everything posted by NoGlutenCooties

  1. NoGlutenCooties
    If you want to believe that what you read is "fact" and what I've read is unproven theory and conjecture... that's your prerogative. If you don't want to believe it could be true just because I can't put my finger on where I read it... that's also your prerogative. I've already said that I've gone to the source (Mars) and will share what I find out. I...
  2. NoGlutenCooties
    Doh! Darn it... that's twice now... gotta learn to look at the posting date. Sorry... and thanks for the head's up!
  3. NoGlutenCooties
    This is not related to Celiac, but I know some folks feel weird about not doing the gift-giving thing at the holidays so I just wanted to share this seeing how it came up... My family decided a few years ago to stop with the Christmas gifts. My mother is retired and on a fixed income and can't afford to buy gifts - and if we get her something of course...
  4. NoGlutenCooties
    Agreed! And I certainly did not mean for it to come across as a researched, proven fact - in fact, all I said was "beware the miniatures". The Hershey's mini's are definately off-limits. I know I read somewhere else about the issues with run-off chocolate... just can't put my finger on it now... and I don't believe they made any distinction between brands...
  5. NoGlutenCooties
    It absolutely has. It wasn't that long ago that doctors didn't even know it existed, then many that wouldn't believe it. We've come a long way since then. But before anything gets tested and proven, it is first someone's analysis/thoughts. If we can't think critically about what is going on for ourselves we're doomed to wait for the "professionals" to...
  6. NoGlutenCooties
    No worries... no one's trying to say you can't have your own opinion. I read so much information, on-line and in books, and get so much from family members who also have Celiac that I do not keep track of every source of the information. If I were writing a dissertation I would... but this is a forum where people are free to share experiences, theories...
  7. NoGlutenCooties
    Along with the Vit B and Vit D that others mentioned, make sure to have your iron levels checked too. Low iron can make you tired and contribute to brain fog. Getting enough protein is also very important. I try to get a bit of protein every few hours (nuts, cottage cheese, yogurt, a protein bar). It helps stabelize your blood sugar levels too.
  8. NoGlutenCooties
    Just wanted to add that the calories aren't the only reason to stay away from packaged gluten-free food. Some of it is ok, but a lot of it has a long list of crap in it to try to make it taste normal. Not only is your system likely to be very sensitive to this stuff for awhile, none of it is healthy for anyone - celiace or not, healed or not. It's really...
  9. NoGlutenCooties
    Maltodextrin is gluten-free: Maltodextrin Maltodextrin is gluten free. It can be made from a variety of starches, including corn, potato, rice or wheat. However the source does not matter because maltodextrin is such a highly processed ingredient that the protein is removed, rendering it gluten free. If wheat is used to make maltodextrin, "wheat" will...
  10. NoGlutenCooties
    It's great that they tested you, but the bloodtests are not as accurate as you would think/hope they would be - I've seen estimates that a negative bloodtest is only about 70-75% accurate. You could also either have a gluten sensitivity or a wheat allergy, which is a different animal but can cause the same symptoms - and would not test positive for Celiac...
  11. NoGlutenCooties
    True. But half the stuff we "know" about Celiac has come from someone's own analysis/thoughts. If we waited for hard "facts", half of us would be dead before the medical professionals figured this out.
  12. NoGlutenCooties
    I think the bottom line is that you can never be 100% safe eating out at a restaurant. But there are many, relatively simple things you can do to make it much safer. Should you eat out all the time, no - but anyone who gives a hoot about their health shouldn't eat out all the time - celiac or no celiac. But the reality is, is that sometimes it can't be...
  13. NoGlutenCooties
    Going gluten-free does not have to be expensive - in fact, it can be much cheaper. Stick to simple, whole food. Meat, veggies, and simple starches (potatoes, rice, quinoa, buckwheat, starchy veggies). It's actually very simple to make a very healthy, tasty meal in under 30 minutes. And once you start feeling better, you'll start only needing 8 hours of...
  14. NoGlutenCooties
    Just wanted to add that digestive enzymes are really helpful too. They help break down the food that your body isn't ready to break down on its own yet - which can help speed up the recovery too.
  15. NoGlutenCooties
    Ok... now I'm obsessing. I just wrote an email to the Mars people. I'll let you all know what I find out.
  16. NoGlutenCooties
    I think I may have first read about the danger of the minis on this forum... https://www.celiac.com/forums/topic/77321-are-hersheys-miniatures-gluten-free/
  17. NoGlutenCooties
    The original Milky Way is off limits, but a couple other varieties are ok: Open Original Shared Link I know this isn't the original place I read about the chocolate miniatures, but Hersey's miniatures are listed on the "not gluten-free list": Open Original Shared Link I'm still looking for the other stuff I read. Once I know it's on the off-limits...
  18. NoGlutenCooties
    I'm new at this and have not yet had to go through a post gluten-free glutening reaction, but in my pre-gluten-free days whenever I had a stomach bug chicken broth (I drink it like tea) helps tremendously, followed by a bit of an apple and green beans when my system feels ready for them. Gingerale is also helpful - and was helpful following my biopsy when...
  19. NoGlutenCooties
    Just wanted to add that a digestive enzyme may help as well, especially while your body gets back its ability to break things down on its own.
  20. NoGlutenCooties
    Just wanted to add that you should beware the chocolate miniatures. The miniatures are often made with run-off chocolate - meaning the chocolate could have been used to make a different type of candybar, one with gluten in it, and then the extra run-off chocolate is used to make the miniature - thus contaminating the miniature. So a full-sized Snickers...
  21. NoGlutenCooties
    Very unlikely. LADA folks require insulin injections at some point after diagnosis. My mother reversed the Type 2 diabetes all together and never took insulin, and now no longer gets the blood sugar spikes at all.
  22. NoGlutenCooties
    It seems like a lot of people have new or worse symptoms when they first go gluten-free. Based on all I've read about the disease, and this is just my own analysis of the situation, I think when you first go gluten free your body is busy healing itself and also starting to absorb stuff from your food that you haven't been absorbing for awhile. So just like...
  23. NoGlutenCooties
    The blood tests do not test for villi damage. They test for the presence of antibodies. Usually, with the presence of antibodies there is also villi damage, but not necessarily. And there doesn't seem to be much correlation between how high the numbers are on the bloodtest and the amount of damage there is or isn't either. The only way to know if there...
  24. NoGlutenCooties
    Yes, I think we agree. You cannot cure Type 1 diabetes. You can control it, but you can't cure it. But as far as being "cured" every time you take a shot of insulin, no, that's not at all what I'm saying. But you can cure Type 2 diabetes, if you catch it early enough. And I don't just mean getting your glucose levels temporarily down to normal......
  25. NoGlutenCooties
    Correct. However, your question was "why isn't everybody with diabetes cured if it's as easy as switching their diet?" - it is because there are different types of diabetes, and varying degrees of Type 2 diabetes. If you have Type 2 and catch it early enough, it can in fact be cured with diet and excersize.
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