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NoGlutenCooties

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Everything posted by NoGlutenCooties

  1. For anyone looking for a great place to eat near Wilmington, DE, I did not find anyplace in Wilmington that looked like they could do safe gluten free. I was also there on a Sunday and most places are closed on the weekends. However, I found a really great place in Newark, DE - just 20min away. It's Ted's Montana Bar and Grill and it was absolutely amazing...
  2. Thanks Scott. That's why I was hoping for a recommendation of a place known to be safe. Jenny
  3. Hi all I'm looking for a safe place to eat in Wilmington, DE. Any ideas? Thanks Jenny
  4. I emailed them about this and this was their reply: I've been eating this every day for breakfast for years and have never had an issue. Jenny
  5. Actually, they do label the bag as gluten-free now.
  6. So sorry to hear you've been so sick! I can't speak to "cheap versions" of soda, but I never order anything that comes through a hose that could potentially be cross-contaminated with other fluids. For example, I don't ever trust draft gluten-free beer or cider. I'll only drink it if it comes in a bottle. I'm a bourbon drinker myself and always order...
  7. I was experiencing something similar, with low energy and a tendency to over-eat (which was never my thing). I started logging my diet and paying attention to the macros (protein, fat, and carbohydrates). I found that I was not getting nearly enough carbs, which the body uses for energy. Once I started making sure I was getting enough carbs (for me this...
  8. I'm so sorry you had a bad experience. I have Celiac and have been eating this every day since my original post, with no ill effects. Perhaps you had a reaction to a particular ingredient, or maybe you're one of the lucky folks with Celiac who also cannot eat oats (even certified gluten free oats)?
  9. Just wanted to share this with you all. I found a product called Ka'Chava, which is a plant-based powder made from a substantial list of various plants. (see www.kachava.com) I'm not trying to advocate for this product, but it was something that interested me and I decided to try it. I received my first packet and saw that it contains oats. As anyone...
  10. Hi - I'm in the middle of peri-menopause with hopes to be done with whole thing very soon (can't come soon enough if you ask me). I have been experiencing weird periodic nausea for the last couple of months and until I just read your post had not considered the two might be linked. I've actually had a couple of episodes where it felt like I would feel...
  11. FYI... as of Oct 2017, Green Chef is now certified Gluten Free. (Sun Basket states on their website that cross-contamination is likely and their food is NOT recommended for those with gluten intolerance.) I haven't tried Green Chef yet, but am due to get my first shipment in a couple of weeks.
  12. I just found out that there is a "The Counter" that opened in Clifton, right on Rte 3. I haven't been to the Clifton one yet, but I've been to the one in Reston, VA and the one in Times Square, NYC and they are awesome! Some of the best burgers I've ever had. And... their fries AND sweet potato fries are gluten free. And they are the best sweet potato...
  13. For me, it's butter, sour cream, mayo, and ketchup. I never trust these in a restaurant because you never know who stuck what in the tub of butter, etc. back in the kitchen. So even if they had decent gluten-free bread, which I could actually do without anyways, I wouldn't trust restaurant butter. And naked baked potatoes just aren't the same either. ...
  14. Speaking for the New Jersey and central New York state areas... Uno's Pizzeria & Grill has a full page of gluten free options, decent burgers, and a knowledgable staff. They have a dedicated Gluten Free area of the kitchen and typically have separate waiters bring out your food so it doesn't get stacked/carried with the gluten-eater's stuff. They...
  15. There is a Houston's in the Riverside Mall in Hackensack and they now also understand the true meaning of Gluten Free - and actually know what Celiac is. Houston's is an upscale steakhouse - quite expensive, but the steak is to die for. I only go there about once or twice a year. When I went last year, they kinda knew what gluten free was and I was...
  16. I'm with you! When I first told a friend of mine about the whole Celiac diagnosis and what I couldn't eat, etc. her first question was, "have you lost weight?" - I'm skinny. Always have been. There have been times in my life when I have needed to gain weight and couldn't. But I have never been chubby, let alone needing to lose weight. I just answered...
  17. Just to clarify - it's not the gluten that must be in your system, but the antibodies. And yes, false negatives do occur. False positives are more uncommon.
  18. Hi Kelscot30 and Welcome! Your symptoms sound very much how I feel when I get glutened. Only my intestinal tract doesn't wait until the middle of the night to send everything packing... as quickly as possible... if you know what I mean. But the sweaty, dizzy, light-headed, chills, ucky feeling... Yep! Right there with ya! Be insistent with the doctor...
  19. One other thing to consider... if they're willing to do the biopsy and you wouldn't have to wait long, you could go ahead with it and go gluten free as of today anyhow. I was gluten free for 3 weeks before my biopsy and it still showed moderate to severe villi damage. My doctor explained that going gluten free prior to biopsy is not ideal, but as long as...
  20. With the family history of health problems that you mentioned, I would be comfortable with the Celiac diagnosis that this doctor is willing to provide without bloodwork and biopsy. Maybe not ideal - but without a gluten challenge and without expensive testing, this sounds like the most viable route to me. I know some folks on here put quite a bit of...
  21. Hi Fayejw and Welcome to the Forum - you've come to the right place! First, I'm so sorry about what you've had to go through - unfortunately your story is a common one. Take solice in knowing that you are not alone. ((HUGS)) The question of whether or not to get tested is a personal one that only you can really answer. But I can share my opinion....
  22. Are you doubting that you have Celiac or NCGI and looking for a diagnosis? Still having symptoms? Without a good reason to have doubt, being that you had severe issues - went gluten free - had symptoms disappear - went back on gluten (or tried to) - and then had such severe symptoms that you could not tolerate the gluten challenge... I'm no doctor but you...
  23. True - but that's not what I meant. Coupled with the symptoms I would say Celiac is a safe bet if one of the kids also presents with Celiac. But you do bring up an important distinction - having a child with Celiac does not mean either parent necessarily has it. It just means that at least one parent carries the gene(s) for it.
  24. True. I was adding that to the list of symptoms. Taking both into consideration I think it's a pretty safe bet that Celiac is the issue. Not 100%. But a safe bet.
  25. I'm Celiac and at the time of diagnosis my biopsy showed moderate to severe villi damage, although I didn't have any noticeable symtoms. Despite the extent of the damage, within a few weeks of being gluten free I found I had more energy, needed less sleep, got fewer night sweats, could think more clearly, and was never bloated. At 6 months I redid the blood...
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