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NoGlutenCooties

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Everything posted by NoGlutenCooties

  1. NoGlutenCooties
    I disagree. This may be true of many people - especially those who have gone a long time without a diagnosis and those who have really crappy diets to begin with. But stopping eating gluten is the only mandatory action for a Celiac or NCGI person. Digestive enzymes, probiotics, a whole foods diet - all of that is great and can really speed up the healing...
  2. NoGlutenCooties
    I think you are confusing different sets of symptoms with different "versions" of a disease. The disease is the same - it is an autoimmune disease in which the body generates antibodies in response to gluten proteins. Some people do, however, generate different antibodies (which is why there is about 5 different blood tests for Celiac). To my knowledge...
  3. NoGlutenCooties
    Welcome to the Forum! I just wanted to add that it would be a good idea to get your kids tested every couple of years. If any of them ever develop Celiac, then you can rest assured you have it too - it's genetic. So at the very least, you'd have to be a carrier for them to get it and coupled with your symptoms, it's a safe bet. If it were me......
  4. NoGlutenCooties
    I would ask if they ran the complete Celiac panel, to include: AGA (antigliadin antibodies)-IgA AGA-IgG tTG (anti-tissue transglutaminase)-IgA EMA (anti-endomysial antibodies)-IgA Total serum IgA It is not uncommon to be negative in one and positive in another - that's why it is so important to run all of them. I'm also not surprised that a 5 year old would...
  5. NoGlutenCooties
    The Luna Protein Bar line is gluten free: Open Original Shared Link The regular Luna Bars are not. I don't know if they have cheese curd available where you live but they will survive in a bag for the better part of a day without an iceblock and be fine. In the winter months you can order it from Helluva Good - they make the very best cheese curd,...
  6. NoGlutenCooties
    Hi KayM - The genetic tests don't actually tell you much. Approximately 30% of the population have at least one of the two known Celiac genes even though only about 1% of the population actually gets the disease. There have also been folks who have tested negative for either of the 2 known genes and were still diagnosed with Celiac via blood test and...
  7. NoGlutenCooties
    I found this interesting: Open Original Shared Link They suggest that if you are continuing to have joint pain to try cutting out the "gluten free" processed foods because they can still contain minute traces of gluten.
  8. NoGlutenCooties
    Welcome to the Club! And I know what you mean about feeling oddly happy. You know what's wrong and there is a relatively simple way to fix it, that does not involve surgery, or kemo, or a lifetime of medications with all kinds of side-effects. If you have to have a disease... this one ain't so bad.
  9. NoGlutenCooties
    Just want to add that while having nuts show up in your stool may not be indicative of a serious health issue... being "normal" just because it happens to just about everyone does not mean that it's healthy. Not getting enough sleep is normal too - but very unhealthy (just as an example).
  10. NoGlutenCooties
    Because that's what people tell themselves about everything else all the time. Smoking a little bit won't hurt... Driving a little above the speed limit won't hurt... One piece of cake won't hurt (says the diabetic)... How often do we rationalize by telling ourselves, I know I shouldn't but... just a little... or just this once... or you gotta live...
  11. NoGlutenCooties
    I don't touch anything that says "may contain gluten" or "may contain wheat". They're telling you up front that there is a cross-contamination risk. I can respect that. And eat something else. As far as cashews... Planters just warns against traces of tree nuts and peanuts. I've never had an issue with their cashews or anything else.
  12. NoGlutenCooties
    Hi Emily and Welcome! Just wanted to add that my ttg iga was 13, on a scale that considered anything over 11 as positive. My biopsy showed moderate to severe villi damage. So don't be fooled... positive is positive. Welcome to the one club you never really wanted to join!
  13. NoGlutenCooties
    IMO... I would grab your food before anyone has had a chance to contaminate it and then don't touch it again. Not that I really care about accusations of being "OCD" (that's their problem) - but it avoids that whole conversation. It also alleviates you from hawk-watching, tong-duty. And it's just plain safer.
  14. NoGlutenCooties
    I've always found roasted nuts easier on my system than raw ones - and I always take a digestive enzyme when I eat them. Always. And be sure to chew them really well. Food that makes it through your entire system still intact isn't doing you any good, because if it isn't being digested then the nutrients in it are not being absorbed.
  15. NoGlutenCooties
    Literally laughed out loud at the mental picture of a cow laying an egg...
  16. NoGlutenCooties
    They probably have anger issues from eating too much gluten.
  17. NoGlutenCooties
    I don't ask. I do let them know that I will be bringing my own food - seems only polite to let them know they don't have to count on another person to feed. And I bring my own. If they don't like it, that's just tough nuggies for them. If they argue, I make it clear - I either bring my own food or I don't go. Period. Also... are you sure the ham...
  18. NoGlutenCooties
    Yep - on the rare occassion that I brave going to a restaurant I tell the server.. I'm gluten intolerant. I'm not one of those annoying people to claim to be "gluten free" because they think it sounds cool. If I get so much as a crumb I will actually get very, very ill.
  19. NoGlutenCooties
    I actually had a check-out girl at the grocery store need me to identify a cucumber for her so that she could figure out how to ring it up. People can be ignorant about a lot of things, and unfortunately food is high on the list of common ignorances. So we really shouldn't be all that surprised that people do not have a clue about a particular protein....
  20. NoGlutenCooties
    Whoa! Slow down and take it one step at a time! You've only been gluten free for a month. It takes awhile for your body to rid itself of the lingering antibodies (I read somewhere that the antibodies have a half-life of 3 to 4 months). It also takes some time to heal, start absorbing nutrients again, and use those nutrients to start making all the repairs...
  21. NoGlutenCooties
    Your doctor is right. After being gluten-free for that long there is no point in getting tested. However, if you are getting even more sensitive to accidental glutenings then you can pretty much rest assured that you have Celiac. Tell your husband that wanting to stay alive and healthy isn't weird.
  22. NoGlutenCooties
    Hi Michelle and Welcome! With a ttg iga of 18, it is highly likely you have Celiac. Get the biopsy to confirm though. Keep in mind that it is possible to have a negative biopsy result and still have Celiac - the testing isn't perfect. But they will check for other possible issues, so the test is definitely worth getting. FWIW... my ttg iga was...
  23. NoGlutenCooties
    Hi Susie and Welcome to the Forum! It is possible for Celiac symptoms to appear suddenly. But if it is Celiac, don't be fooled - it could have been going on for quite some time and it has just recently gotten bad enough for the symptoms to show. Or it could be something else entirely. Yes, I think you should get tested. Don't go gluten-free until...
  24. NoGlutenCooties
    I don't think that it is just antibodies. NCGI folks have reactions too - and they don't make antibodies. I think it's more complicated than that. It is the entire immune system reacting and basically freaking out because it sees the gluten as a foreign invader. And the digestive tract is one of the ways the body has for getting rid of foreign invaders...
  25. NoGlutenCooties
    I had an otherwise very intelligent friend tell me that Italian bread was safe... because it's Italian, not wheat. Apparently there is a grain called "Italian" too. And it's gluten-free.
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