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HavaneseMom

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Everything posted by HavaneseMom

  1. HavaneseMom
    I too have Gerd and it can be really hard to manage and figuring out your trigger foods is tough. Are you taking a digestive enzyme? I have found that taking one before every meal helps me digest food more quickly. I like Enzymedica Digest Complete. They might possible make you feel less full and more hungry, since the enzymes will help you digest your food...
  2. HavaneseMom
    I noticed you mentioned your hands weren't shaking at 9:30pm, but they would be in the A.M. Is it before you eat breakfast, or shortly after? I only ask because I tend to get shaky hands when I haven't had anything to eat for a while. I am guessing it has something to do with blood sugar. That could possibly explain why you shake in the morning, but not...
  3. HavaneseMom
    Hi StacyLynch, Sorry to hear about his painful mouth ulcers. Another poster just started a topic about mouth sores and I mentioned a couple of things that have helped me here: https://www.celiac.com/forums/topic/111132-tongue-sores-anyone-how-do-i-get-them-to-go-away/ I honestly don't know anything about seizures, but if it is causing him to bite or...
  4. HavaneseMom
    Wow, that sounds painful and I'm sorry to hear your doctors haven't been able to help you yet. I would keep on them though, especially if it continues to progress. I did have tongue sores for years before diagnosis, and they are 90% gone now. One tip I read here (I think from KarenG) is to use a SLS free toothpaste. The relief in tongue pain and sores that...
  5. HavaneseMom
    My cholesterol has gone up and is high since going gluten free. I have also gained weight and haven't been eating as healthy as I was before, so I am sure that plays in to my higher cholesterol some. Have you had your Vitamin D level tested? I have been reading up on Vtiamin D deficiency and found that it's connected to high cholesterol. My husband has...
  6. HavaneseMom
    I was told that I needed to eat the equivalent of two slices of bread a day. I have never heard that it has to be bread. As far as I know, gluten is gluten, so eat lots of the good stuff! You could always eat two slices of bread plus the yummy gluten filled foods. I would really question and research what your new doctor is telling you about your previous...
  7. HavaneseMom
    Hi icelandgirl, I heard back from both of the doctors nurses following up on the low Ferritin. My regular doc said to keep supplementing, but when I asked his nurse if he said how much I should take, she said he didn't and to just do whatever I can to boost it up. My gastro doctor threw me for a loop and wants to do a follow up endoscopy and biopsy...
  8. HavaneseMom
    Yes! That is what I was thinking too. I don't know why the nurse at my GI's office said it's not likely the cause. Everything I have read says it very well could be. Could you tell me where I can find the PubMed info you referenced. I would love to read it. Thanks
  9. HavaneseMom
    Hi icelandgirl, I have calls in to both of the doctors to find out what I should take for my low Ferritin and will come back and let you know what they say as soon as I hear back from them. Yep, I have read a lot of info saying that long term use of PPI's can stop you from absorbing nutrients. I think it has something to do with there not being enough...
  10. HavaneseMom
    Hi cyclinglady - It is so great that you were able to get you nutritional deficiencies corrected so quickly and were able to stop supplementing! I am going to work hard extra hard now to get my numbers up through supplements and food. I have had my B-12 tested and i was pleasantly surprised it was pretty high at around 700. I last had my Celiac panel ran...
  11. HavaneseMom
    Hi Everyone, I'm back with my test results already! I was very surprised to get a call so soon with the results. My TSH came back at 1.98 and my Free T4 at 0.82 . She said both of those numbers looked good. I didn't ask for the detailed Thyroid test when I was talking to her, because I wanted to check with my gastro doctor for the results of the follow...
  12. HavaneseMom
    Yes! That would be nice if they were more helpful. He did admit to me a few times that he doesn't know a whole lot about Celiac and a couple of things he said led me to believe this is very true.
  13. HavaneseMom
    Hi cyclinglady, He did put his fingers over the area of my thyroid and had me swallow twice. It just took a few seconds for him to do that and he said it felt fine. Is that the same type of thing your doctor did when he examined your neck?
  14. HavaneseMom
    Thank so much for the replies! Icelandgirl - That's a great idea to call them to see if they can add to the testing, but the lab closed at 4pm and it's almost 6pm here now. They move things through pretty fast, so I think it's too late for that now. I'm bummed that I gave in like that. It happened so fast that I wasn't even aware of it at the time. Thanks...
  15. HavaneseMom
    Hi Everyone! I was able to get an appointment with my doctor right away and saw him this afternoon. Well, I pretty much caved in and went along with what he wanted to do. I didn't even realized it had happened until I got in my car and was driving away. At first he said he would run all of those test, then as we were taking he said that my insurance wouldn...
  16. HavaneseMom
    Hopefully you will be able to get your Ferritin up quickly supplementing. 15 is really low. That normal range of 15-150 is too wide and is just terrible. It took me a while to figure out my egg intolerance because the symptoms would last about 5 days. I was eating them every few days for a meal so I was having a continuous overlap of symptoms. I ran out...
  17. HavaneseMom
    Wow! I'm surprised to see so many doctors have graduated from The Bad Doctor School. While it's comforting to know you all understand what I went through, it is very unfortunate that it is so common and has caused needless suffering. I'm going give that doctor heck until he agrees to run these test! Doctors are service professionals who should be working...
  18. HavaneseMom
    I'm glad to hear you have seen improvement! The setbacks can be tough, physically and mentally. I hope the new medication will make a big difference for you. It is very rewarding to be able to knock down another symptom, although it seems to take a while to get to that point sometimes. I finally had a ah-ha moment and realized I am egg intolerant, and eliminating...
  19. HavaneseMom
    Thank you everyone!!! I will definitely make a list of the test you mentioned and bring it with me to my appointment. I am going to print off the symptom list from WebMD and Mayo to bring with me too so he can see that I have all of the typical symptoms. I'm a little nervous about asking him to run the test, since my last doctor would get very upset anytime...
  20. HavaneseMom
    Hi icelandgirl, I'm sorry to hear your still not feeling well. I remember we came on this forum around the same time. I am still in the recovery process too. I feel much better than when I started, but I still have some stretches of time where I have a set back despite a strict gluten free diet. One of the first books I read about Celiac Disease said...
  21. HavaneseMom
    Hi Everyone, I haven't been on the forum in a while and have been moving right along with recovering from most of my symptoms since I was diagnosed in October 2013. I am still experiencing fatigue and am very sluggish, and have some other lingering issues, so I started to do some research and discovered the strong connection between Hashimoto's and Celiac...
  22. HavaneseMom
    I see I should have expanded on the reason why I wash my produce before eating or slicing it. It is due to bacteria and dirt like LauraTX mentioned, and added links with info about, not gluten. I forgot that I need to be more specific about these things on this forum, since most topics are gluten related and it could easily be assumed I was talking about...
  23. HavaneseMom
    I was following this topic when it started, since I have been wondering about the handling of store cut produce. Out of curiousity I called Meijer, which is a major super store chain in my area, and found out that they cut the produce on site at each store (not the distribution center) and they have a designated area in the produce department where there...
  24. HavaneseMom
    Thank you for sharing this! I am definitely going to look in to these.
  25. HavaneseMom
    Hi Bartfull, That is great news! This sounds just like me. Before I went gluten free, I had terrible insomnia and bad dreams when I would sleep. I would also often wake up in the middle of the night sweating and gasping for breath with my heart racing. I'm so glad that is over! Now I sleep like a baby and could easily sleep for 10-12 hours a night...
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