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HavaneseMom

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Everything posted by HavaneseMom

  1. HavaneseMom
    Thanks GottaSki! I am very happy to see that the numbers are consistently dropping. Just that one little nagging high number is still out there. I guess I am a little on the defense about the elevated TTG IGA, since the physicians assistant insisted that the level was high at 3 1/2 months because I had to be ingesting gluten. I remember asking you all about...
  2. HavaneseMom
    Hi Everyone, I just picked up my blood work results, so I could look them over before my 6 month post diagnosis follow up appointment I have tomorrow. I was surprised to see that my TTG IGA level has lowered, but is still high and above the normal range. It was also high when I had blood work done at 3 1/2 months post diagnosis. I had posted a question...
  3. HavaneseMom
    I can't speak to the histamine issue with the Teflon pan, but broccoli makes be blow up like a balloon. I can eat a very small portion as a side, but have learned that much more than that will cause me major pain and discomfort! Before my diagnosis I had searched online about it because I had such bad pain after eating it. Here are a couple of interesting...
  4. HavaneseMom
    Oh my! Thank you both for that info, I had no idea. I am wondering -Since you both have worked in restaurants and have an idea of what goes on behind the scenes, what would you suggest that people order when eating out?
  5. HavaneseMom
    Thank you for that information! I think you are very right and I had corn overload. I have been avoiding the obvious corn products for the last four days, and have felt much better than I have in the last two months. My tummy actually feels calm :-) . I'm glad I have been able to see results without having to be super strict and look for all of the ingredients...
  6. HavaneseMom
    I'm in the same boat as you too. It's 3:30 in the afternoon on a Saturday and I'm in my jammies. I am going through a particularly hard rough patch in my health right now for some unknown reason. Seems like I should be feeling better. I so am thankful that my hubby can provide for us, since I have had to cut back from my 45 hour a week job to about a ...
  7. HavaneseMom
    Thanks for the advice! I have been reading through some of the other threads about corn, and it sounds like it is a very serious offender to some people like yourself. For now, I am going to go grain free for a while and just avoid the obvious corn ingredients and hope that will be enough for me to see a difference. There are so many more hidden corn ingredients...
  8. HavaneseMom
    Hi Everyone, I have been gluten free almost 6 months now since my Celiac diagnosis. In that time, I have only felt well about 3 weeks total. The good days have been scattered around, but in the last 2 months, I have only had a couple of good days. I have been scrutinizing my diet and have tried other eliminations, but am starting to think that maybe corn...
  9. HavaneseMom
    Hi dmarie725, I have been gluten free for almost 6 months now and I still burp like crazy. It doesn't really seem to be connected to what I eat either. When I woke up this morning, I burped probably 20-30 times within 15 minutes after getting out of bed and I hadn't had anything to eat or drink yet. I burp a lot! I do think that it is celiac related for...
  10. HavaneseMom
    Hi Ami, I'm glad to hear you are feeling so much better after going gluten free! It can be hard for people understand how sensitive our bodies are to gluten and the damage it can cause us. I don't think it is something that people can fully understand unless they are in your shoes. I usually just toss out a simple fact, stand firm and then change the...
  11. HavaneseMom
    Biokleen says all of their products are gluten free. The fourth question down in this FAQ's link says so: Open Original Shared Link Their dish soap is good and I LOVE their Spray & Wipe All Purpose Cleaner so much that I buy it by the case from amazon. It's great if you don't like heavily scented products. I don't know if cleaning products need to...
  12. HavaneseMom
    Hello, If it were me, I would call and ask them to mail or email a copy of both your blood test results and your biopsy results. It sounds like the girl you spoke with on the phone wasn't very informed, and there may have been some terminology on the report that she didn't understand. It's always a good idea to get copies of all of your results and keep...
  13. HavaneseMom
    Hi curiousgirl, Have you had your blood work ran lately to see if you may have been accidently glutening yourself, like you mentioned? It might be helpful for you and your doctor to find out if any of your celiac related numbers are elevated. Best of luck to you.
  14. HavaneseMom
    I will try not to over think it! I think since my recovery has been slow going, I now tend to think about every little thing that could cause a problem or possible flare up. I guess I am a little paranoid about it, but I am going to try my best to reel those thoughts in and not think that way :-)
  15. HavaneseMom
    Thanks for the advice! It sounds like it will be ok, as long as it's a peck on the lips. If it is more than that, I will ask him to brush his teeth first :-). He comes home for lunch every day, so I just wanted to make sure a peck goodbye after lunch and after he has wiped his mouth won't be doing me any harm. As far as what I was asking about him spreading...
  16. HavaneseMom
    Hi Everyone, Please excuse the silly name of this topic, but this is how I refer to it at home:-). Unfortunately, I do not have a gluten free household and would of course like to avoid cross contamination from my gluten eating husband. I am wondering how strict we have to be about this? I have asked him to wash his "gluten fingers" after eating gluten...
  17. HavaneseMom
    w8in4dave - I am in Grand Rapids too! I think a lot of places around here still have lots of learning to do. I'm not going to eat out for a couple more months, then will be very selective if I do. You probably already know this, but I was surprised to find out a lot of places add bread/crumbs to their hamburgers to make them moist and softer. I went to a...
  18. HavaneseMom
    I have been struggling to loose weight too. For some reason, I gained about 30 lbs during the year before my diagnosis, without changing any of my eating/exercise habits. My energy is quite low, so I don't exercise much, but have tried calorie counting, low fat, etc. and my weight wasn't budging. Well... I decided to give up dairy because my pre-diagnosis...
  19. HavaneseMom
    Hi Coffngrl, I'm sorry to hear you had another bad experience with a doctor. He is obviously not the right match for you and I hope you will be able to find one that you like soon. I found this older thread that had recommendations for doctors in NC. There are a few mentioned, but I don't know if any of them are near you. https://www.celiac.com/forums...
  20. HavaneseMom
    Thanks so much for all of the advice and support! It's nice to know I am not alone in feeling this way. I am going to start making special meals once in while and I'm sure it will help make up for not being able to eat out. I didn't really eat out a whole lot before, but like others, that convenience aspect once in a while will be missed for sure. It...
  21. HavaneseMom
    Hi LolaBean, I'm glad to hear your doctor is looking in to your symptoms further. My doctor had ordered a ultrasound of my gallbladder and pancreas at one point due to my symptoms, but nothing showed up and after a quite a bit of time, I finally went to a GI doctor and found out it was Celiac. I waited what seemed like forever to get a referral to a GI...
  22. HavaneseMom
    Bartfull - Thank you for that info. I went that site and there were about 10 restaurants listed in that area. I will wait until the last day to try one like you suggested, just in case FruitEnthusiast - Thanks for the kind words. It's nice to know that it will get easier. I will try my hardest not to focus on this and will enjoy my time away!
  23. HavaneseMom
    Hi Bartful, Yes - We have a PF Changs and Outback here! I will give them a try for sure. I will try not to think about it too, like you mentioned. I think it might be on my mind more right now because we have a vacation coming up. We always go to this little resort type area for a week every year. They don't have many chain restaurants there, and...
  24. HavaneseMom
    Thanks so much Bartful! It's nice to know I am not alone in feeling this way. I know I have to get over my mental road block and trust a restaurant at some point. I just am so afraid of getting glutened. I'm not 100% better yet, and I don't even know what it will feel like if I get glutened. Hopefully it won't happen, and if it does, it won't be too horrible...
  25. HavaneseMom
    Hi Everyone, I have been gluten free for 5 months now. The first few months I accepted that gluten free was my new life and was so happy to finally know what had been making me sick all of this time. For the last month or so, I have been really down about never being able to eat gluten again. It's no problem at all for me to think about eating gluten...
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