HavaneseMom
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Latest Celiac Disease News & Research:
Everything posted by HavaneseMom
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ARCHIVED Pelvic Pain And Discomfort And Peeing All The Time
HavaneseMom replied to icelandgirl's topic in Related Issues & Disorders
Hi Icelandgirl, Another option for dairy, soy, egg free chocolate are these peanut butter cups (if you are eating nuts): Open Original Shared Link My health food store has them along with the Enjoy Life chocolate Kareng suggested and they are so yummy, but way overpriced, so I save them for a special treat. I get the bag of Enjoy Life mini chips and eat...- 60 replies
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- frequent urination
- non uti
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Hi Beth, I am sorry to hear you are having such a rough time. It is so hard to be patient waiting to see improvement when you are trying so hard to do everything right. I'm not sure if this will be helpful, but I saw very little improvement during my first 6 months or so gluten free. I was very frustrated, then one Sunday morning I woke up and the gnawing...
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Hi Beth, I do believe that many of us here have been diagnosed with fibromyalgia. I have been told I have fibromyalgia a handful of times, but I don't accept it as diagnosis for myself and won't take any meds for it. That is just a decision I made for myself, that is right for me though. I feel like it is a diagnosis similar to what many of us have been...
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ARCHIVED How Do You Mealplan For The Week?
HavaneseMom replied to JesikaBeth's topic in Coping with Celiac Disease
I have a gluten intolerant friend who just told me about a meal plan website that offers a gluten free plan. It's Open Original Shared Link . If you go to their website and scroll to the bottom of the main page, on the left side, they are offering a free one week meal plan. They give you a list of 20 ingredients to purchase at the store, and then give you...- 14 replies
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- gluten free
- grocery shopping
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I don't touch artificial sweeteners either. Nasty stuff - in my humble opinion. It's hidden in foods you wouldn't expect too, so it can be one more thing to look for when you read labels looking for gluten. There is lots of info on the Internet about artificial sweeteners and the different names it is called to look for on labels. Hope you have a better day...
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ARCHIVED Digestive Enzymes Make Symptoms Worse?!? Ugh Your Take On This?
HavaneseMom replied to ezgoindude's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you wanted to try a lower dose of enzymes, you could always open up one of the capsules you have and sprinkle a little bit, like 1/5 or 1/4 of the capsule contents on to your food, and just close the capsule back to use the rest later. Taking it with food might help it settle a little better too. I can't take anything on a empty stomach, so I was taking... -
ARCHIVED Cold Meals/packed Lunch Ideas Please!
HavaneseMom replied to KCG91's topic in Gluten-Free Recipes & Cooking Tips
I havent heard of cheese and jam before Katie. It sounds very good though. I'm guessing we would use cream cheese for that type of sandwich here. The little differences in the terms we use and how we all eat are very interesting. I always remember that you are from the UK because you had wrote that you were "chuffed" about your blood test in one of my topics... -
ARCHIVED Cold Meals/packed Lunch Ideas Please!
HavaneseMom replied to KCG91's topic in Gluten-Free Recipes & Cooking Tips
When I was a vegetarian and had to pack a lunch, I ate alot of peanut butter and jelly sandwiches, or cheese sandwiches with lettuce & tomato or whatever other veggies sounded good on it that day. I would bring some chips and a fruit or some veggies to eat too. I know it sounds simple, but it was easy to put together and got me through my shift. Congrats... -
ARCHIVED Vitamin Levels Ok, Still Exhausted, More Testing
HavaneseMom replied to CajunChic's topic in Coping with Celiac Disease
Hi CajunChic, I'm glad you came back to follow up. I know we talked about dairy earlier and I just wanted to let you know that I myself have been off of dairy for 10 days in an attempt to try to relieve sinus pain/pressure/headaches. They have all lessened a bit already and I have had a rather annoying buzzing noise in my left ear for years that is now down... -
ARCHIVED Looking For A Doctor In The Grand Rapids Area
HavaneseMom replied to samjayde's topic in Doctors
Hi samjayde, I just offered a recommendation for the Grand Rapids area in the other topic you posted in earlier. My GI doctor is Dr. Steven Crane at Grand River Gastroenterology. He was booked out for a while when I scheduled my initial consultation, so I saw his Nurse Practitioner, Tamra Groothuis for my first appointment. She is the one that suggested... -
ARCHIVED New Here: Especially Those From Michigan, I Urge You To Read.
HavaneseMom replied to DarkStar-X's topic in Doctors
Sorry to hear you have had so many problems. I live in West Michigan and have found a GI doctor here that I am happy with. If you are interested, his name is Dr. Steven Crane and he is at Grand River Gastoenterology in Grand Rapids. I would also recommend his Nurse Practitioner, Tamra Groothuis. She is the one I saw for my consultation and wanted to test... -
Low Ferritin
HavaneseMom replied to veryami1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Ami, I'm in the low ferritin club too. Mine was a lowly 2 at diagnosis and was only up to 9 at about 7 months post diagnosis. It was still that low even after taking 50 mg of iron bisglycinate daily(I think that's the same type of iron that is in Slow FE), but my CBC numbers are much better now. I was still have a lot of low iron symptoms and talked to... -
ARCHIVED Digestive Enzymes Make Symptoms Worse?!? Ugh Your Take On This?
HavaneseMom replied to ezgoindude's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi ezgoindude, I used the Enzymedica Digest Complete before I was diagnosed. It is their low dose version. I had constant stomach pain at that time, and the digestive enzymes really helped me digest my meals better. Now that I am gluten free and feeling better, I can't take them anymore. They really hurt my stomach now. I must not need them anymore and maybe... -
ARCHIVED Has Anyone Else Experienced This Before?
HavaneseMom replied to glutenfreemomma188's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I used to occasionally get zap type shocks that would run from my shoulders up my neck before I went gluten free. I never asked a doctor about it, but thankfully it hasn't happened since I stopped eating gluten. It sound like yours improve when you do eat gluten though??? I'm not sure why that would be happening. -
Does it look like the hump in the picture in this link? Open Original Shared Link If so, it can be caused by poor posture, weak muscles or scoliosis, all of which can be worsened with the upper body weight gain you mentioned.
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ARCHIVED Eating Gluten Free With Friends Visiting
HavaneseMom replied to user001's topic in Coping with Celiac Disease
Have you looked at findmeglutenfree.com yet? You can search by your city for places to eat and see how other people who eat gluten free have rated their experiences. -
ARCHIVED The Song Name Game
HavaneseMom replied to navigator's topic in Introduce Yourself / Share Stuff
Say - John Mayer -
ARCHIVED The Song Name Game
HavaneseMom replied to navigator's topic in Introduce Yourself / Share Stuff
Song Sung Blue - Neil Diamond -
ARCHIVED Teeth Becoming Translucent
HavaneseMom replied to twe0708's topic in Related Issues & Disorders
I have noticed this in my teeth over the last 5 years or so. I assumed it was part of aging, but I just did a quick online search and a couple of things came up that could apply. Vitamin D deficiency, which lots of us have or had. The other was acid erosion from acidic foods and drinks. I'm going to get some ProNamel Toothpaste and keep taking my Vitamin... -
ARCHIVED Decreasing Muscle And Joint Inflammation
HavaneseMom replied to sweetsailing's topic in Coping with Celiac Disease
Thanks us much for this tip sweetsailing! I'm ordering some today. My muscles have been so achy lately, I assume from the high humidity here, so I'm really looking forward to trying this. I don't like to take anti-inflammatory pills either and ginger has always helped calm my sensitive stomach so this will be a great tea for me to try. -
ARCHIVED First Big Barbeque/potluck Since Diagnosis.
HavaneseMom replied to GFAnnie's topic in Coping with Celiac Disease
Hi GFAnnie, As far as potato chips go, they are usually ok, but grab the bag and look at the ingredients before eating them. My first gluten free newbie mistake was with a can of Pringles. I was on the go and grabbed a can at the gas station assuming they would be just potato, oil and salt. I ate about five of them, then looked at the ingredients and was... -
ARCHIVED Vitamin Levels Ok, Still Exhausted, More Testing
HavaneseMom replied to CajunChic's topic in Coping with Celiac Disease
Hi CajunChic, I have sinus pain and pressure too. Have you tried eliminating dairy? I do notice that I have increased pain/pressure when I eat dairy and I recently learned that it is a known offender for causing some people sinus problems. If you call your ENT, they might have a diet they would recommend that you try. It might be worth a phone call to find... -
ARCHIVED Common Deficiencies & Shortness Of Breath
HavaneseMom replied to sidelined's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi sidelined, I had Vitamin D, B12 and Iron checked around the time of my diagnosis. My D and Iron came back deficient. Have you had your iron levels tested? I have noticed a lot of people on this forum have had anemia at diagnosis. Low iron or iron definciency anemia could definetely cause shortness of breath and fatigue. I couldn't walk up the stairs at... -
ARCHIVED Has Anyone Tried The Migraine Diet?
HavaneseMom replied to HavaneseMom's topic in Food Intolerance & Leaky Gut
Hi Renaye, Thank you so much for replying with this information. It's very helpful and encouraging to hear that this diet helped your son so much. I didn't really want to go on yet another restrictive diet just to see what happens, so it's great to hear that it has worked so well for someone. It's also helpful to know that it took several months for his... -
ARCHIVED Has Anyone Tried The Migraine Diet?
HavaneseMom posted a topic in Food Intolerance & Leaky Gut
Hi Everyone, I was told by my ENT doc a couple of years ago that I have a constant low grade migraine. My symptoms have been worse than usual lately and my primary care doc sent me home with a handout for a "Migraine Diet". It has me eliminating things like cheese, nuts, nitrates, canned food, etc. I am wondering if anyone has tried it and had success or...