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HavaneseMom

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Everything posted by HavaneseMom

  1. HavaneseMom
    Sorry to hear you are having these issues. I had the genetic testing about 7 years ago. If I remember correctly, they took about 5 tubes of blood. When I asked my doctor,for the test he said the protocol was to send me to genetic counseling before having the blood work taken. I told him I wasn't interested in doing that unless it came back positive, so...
  2. HavaneseMom
    Hi Celiacandme, I was diagnosed and have been gluten free for about the same amount of time as you. My numbers started off pretty high and I was retested at 3 months. Only one of my numbers was still elevated, but I am still struggling like you. I am pretty sure it will take my body a couple of years to heal, since I remember symptoms as early as 3 years...
  3. HavaneseMom
    Sounds good Gottaski. Reading your profile, you must have done so many eliminations! I'm pretty sure white potato is an issue for me. I have horrible stomach aches and swelling after I eat them. I agree, some of the foods toward the bottom of that list I have never come across, so no problems eliminating them
  4. HavaneseMom
    I found this list online of Nightshades that I referring to and was going to use for the elimination. Is this incorrect? Do you think I could just start with eliminating the main four (tomatoes, potatoes, eggplants and peppers), or would I need to do a strict elimination of all the items to see the full effect? Here is the list of Nightshades I found...
  5. HavaneseMom
    Thanks so much for the ideas Bartfull! The italian spice mix and the others sound yummy. I just went and rechecked the dressing labels and the Organicville Dairy Free Ranch is nightshade free! I will try not to use it for a while though since it's processed. It was my husbands Marzetti Simply Dressed Ranch that had "spices" listed, and not the individual...
  6. HavaneseMom
    I will pick up some single spices then. I will have to look for some Nightshade free recipes to mix single spices, since I no zero about spices - well except salt and pepper . It sounds like this will be a lot of very plain eating. No more barbeque sauce, ketchup, dairy free ranch dressing etc...
  7. HavaneseMom
    I have had burning tongue too for many years. I read that iron deficiency anemia (which I have) can cause it, so I am hoping that it will go away as my iron levels increase. I see that you have reflux like me too. The other thing I have noticed is that my tongue burns more when my reflux/gerd is flaring up. I'm not sure, but have wondered if maybe the acid...
  8. HavaneseMom
    Hi All, I am pretty sure that I am having a reaction to Nightshades since I feel really ill after eating tomato or white potato, and have been having all of the other typical symptoms. I am starting a 30 day elimination today to see if my symptoms improve. I am wondering if any of the Nightshade free people out there could suggest some spices or condiments...
  9. HavaneseMom
    I can't wait to try all of these ideas and I am so glad I asked. On top of being a bad cook, I am not at all a creative when it comes to cooking and never would have thought of any of these ideas. I'm hoping as my cooking skills improve, I will enjoy cooking more too. I think I need to spend more time browsing the cooking/food related topics in this forum...
  10. HavaneseMom
    Thank you! These are great ideas and things I never would have thought of. It sounds like using broths as a base and adding interesting things to it can change the flavor quite a lot. I will be trying these suggestions soon.
  11. HavaneseMom
    Hi Everyone, Let me start off by saying, as of right now I am a terrible cook and the simpler the recipe the better! I have been trying to home cook more instead of eating gluten free microwave meals. My favorite thing to make is a big pot of either gluten free noodles or rice, with either turkey, chicken or beef added, then some veggies thrown in it....
  12. HavaneseMom
    After I wrote the above post, I decided that wasn't great advice to suggest you call the lab for these results. When I got my positive results for celiac, my doctors phone nurse called and told me I tested positive for Celiac Disease, asked if I had any questions, and the call was at the most two minutes long. I would have much preferred if my doctor would...
  13. HavaneseMom
    Did you have the blood drawn at a lab or at the doctors office? If you had it drawn at a lab, they might be able to get you a copy of the results. I always ask the lab to mail me a copy directly of my test results. They just have me fill out a form with my address and mail the results to my house then. If you had it drawn at a nearby lab, you might be able...
  14. HavaneseMom
    Hi VeggieGal, I stumbled across the info on tea when I was trying to research why my energy wasn't improving. There are lots of articles on the web about it, but my docs never mentioned it. I was drinking lots of tea throughout the day and with my meals. It's supposed to be healthy, so I saw no harm in it until I discovered it could be affecting my iron...
  15. HavaneseMom
    Thanks GFinDC! When I got my diagnosis, I thought all I would have to give up was gluten and I would miraculously recover. It's been a surprise to find out that there is more to it than that for some of us. I guess when a persons digestive system gets damaged over and over again for years, it's hard to digest lots of things. I had no idea about the Amy's...
  16. HavaneseMom
    Hi VeggieGal, So sorry to hear you are having bad after effects. You might already know this about iron, but I saw your name and thought It was worth mentioning. You had mentioned your caffeine intake and I was wondering if you drink a lot of coffee or tea in particular? The phenols in those drinks can greatly reduce your ability to absorb non-heme iron...
  17. HavaneseMom
    Thanks for all of the advice! GFinDC, I have seen some of those things mentioned, but not put together nicely in a list. Thanks! I am a horrible cook, so I do eat a lot of Amy's gluten free meals, but I will try my hardest to eat less processed foods...and the sugar. It's hard to give all of these things up, but I know it is for the best
  18. HavaneseMom
    Hi Greg, I have the gnawing symptoms like you and they drive me nuts. Out of all of my Celiac symptoms, that is the one that effects my quality of life the most. I can totally see how it would have effected you so much that you lost your job. It is a very draining type of pain and can wear a person down quickly. Mine can range from a mild gnawing hunger...
  19. HavaneseMom
    It sounds like others out there have the same thing happen as me too. I hope it is just part of the natural healing process and I am not getting glutened from cross contamination. I am so careful, but I know it will never be completely avoidable. 1deperateladysaved, As time goes on I am experiencing exactly what you said, I am having the highest highs...
  20. HavaneseMom
    Bartfull, I never did confront him, but my lab results and everything else that I have had done with my GI doctor since has been forwarded to that very bad doctor. I have told him off so many times in my head, but could never get the courage up to do it in person. I haven't seen him since my diagnosis and never will again. At least I learned a very valuable...
  21. HavaneseMom
    Thank you for all of this information. I didn't know about the antibody half life and inflammation. What you are saying makes total sense and would explain the feeling good for a while, then bad for a while cycles I seem to be having. I just get so excited when I have the stretches of time when I feel so great. Then when I start to feel sick again I feel...
  22. HavaneseMom
    Oops! I see they removed the name of the online retailer I mentioned. I didn't know I couldn't mention their name here. Hopefully you will know which one I meant. The online retailer that makes and sells the Kindle. Best of luck to you!
  23. HavaneseMom
    Yummy! Your baked goods look so delicious. I was going to suggest exactly what you said. Maybe you could get a job at a gluten free bakery in your area for a while and see what it is all about before taking the plunge on your own. Be careful about sharing your recipes with them though. I'm sure you worked hard to perfect them. Maybe a bakery would offer...
  24. HavaneseMom
    Hi Everyone, I have been gluten free since I was diagnosed in October, so about 4 1/2 months now. I have been experiencing something that seems really strange to me and I am wondering if any others have had this happen during their early stages of healing? I will feel really great and have very minimal symptoms for a few weeks and think I am getting...
  25. HavaneseMom
    It makes me so sad to hear that this is happening so often. It's a simple blood test, why don't they want to let us take it? I suffered for so many years because my doctor convinced me that all of my digestive issues stemmed from stress and anxiety. I asked him three times over the years to test me for Celiac Disease and he refused. The last time, he...
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