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tarnalberry

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Everything posted by tarnalberry

  1. tarnalberry
    Could you direct me to those studies? I've seen nothing that supports that on PubMed, but may very well have missed it. I can't find the results paper at the moment (it was from four months ago, not too long after these problems were really bothering me), but I'm 90% sure that they ran a Western Blot that came up negative.
  2. tarnalberry
    the docs aren't too concerned about lyme for a couple of reasons - I've never lived in or spent much time in a state that has annual lyme cases above a couple dozen, and the symptoms have come on within the past year without a preceeding flu like stint (or bite mark), while I've been in WA, the whole time - again, anything but a hot spot for lyme when they...
  3. tarnalberry
    Mostly just a vent here... I go in to a rheumatologist on Thursday, to see what she has to say/do on the subject, but my GP thinks I might have fibromyalgia. He ran a whole host of blood tests to rule out lyme, lupus, RA, hypothyroid, deficiencies, iron issues, and I think one other thing. All turned up quite normal. (Yes, he ran the better tests...
  4. tarnalberry
    they do make gluten free ice cream cones. I don't know where to get them online, but I know that Mora's (an argentinian ice cream shop in puget sound) has them.
  5. tarnalberry
    while we certainly can't say "oh, yeah, that's totally it", it's a possibility. he really should go to the doctor and demand a blood test (the full celiac panel). get it over and done with. then, when testing is done, he should consider going gluten free for at least two or three months. yes, he may get very hungry - that wouldn't be surprising since...
  6. tarnalberry
    Some folks on here have noted problems getting private insurance with classically diagnosed celiac, either not being able to obtain coverage or having to pay more. That's not everyone everywhere, but sometimes. Of course, if you end up getting married, you may be able to get coverage if your spouse has employer provided health care. Not exactly something...
  7. tarnalberry
    my dad never physically abused me. it was all verbal/emotional. things were often not good enough for him, and meeting his expectations (regardless of the fact they were neither stated nor attainable) was all that mattered. it has taken years (I'm 29) to best put into perspective the full effect that has had on me, and to realize that there is absolutely...
  8. tarnalberry
    I think there are two big learning curves when it comes to celiac: 1) learning what substitutions you can make for the things you already like - be it the gluten free beers, or pastas, or breads, or whatevers. 2) adapting YOURSELF to socializing without the need for food, regardless of how other people socialize. they're both challenging adaptations...
  9. tarnalberry
    his behavior IS abusive. at the least, I would suggest that YOU go to counseling, and look into how you can cope with it. it's already teaching your child about tolerating abuse. I'm sorry that you are in a position where you feel that you have to put up with this sort of behavior, no one should have to.
  10. tarnalberry

    ARCHIVED Poll

    tarnalberry replied to L.A.'s topic in Coping with Celiac Disease

    I eat out, but at a limited number of places. I'll go out and not eat at many places, but there are only a few places at which I'll eat. I just crossed one of those off my list from uncertainty, actually - Mediterranean Kitchen is supposed to be gluten free, but my stomach hasn't been quite happy two of the four times after I've eaten there. There isn...
  11. tarnalberry
    almond or hemp have both fat & protein, but may have trace soy - check.
  12. tarnalberry
    I use their Food-Based Calcium. It claims to be soy-free. (and diary and gluten and lactose and yeast free)
  13. tarnalberry
    Citrical is a good supplement, but doesn't have the magnesium needed to absorb the calcium it provides. (Even the version that has it doesn't have the 2:1 ca:mg ratio needed.) I would suggest either taking an additional mg supplement (the form of calcium in citrical is readily bioavailable), or look at other supplements. I take Rainbow Light, which is...
  14. tarnalberry
    on my last backpacking trip, I took quinoa flakes with freeze dried mango cream of rice with flax meal with freeze dried strawberries for breakfasts. there were nuts, clif nectar bars, think organic bars, alpsnack bars, and dried fruit for lunch/snacks. and there was precooked, dried bean flakes and corn chowder, both with freeze dried vegetables and spices...
  15. tarnalberry
    I have been led to understand that it can be ... not-recommended to try to specifically boost the activity of the immune system for celiacs if there is any chance that they could get gluten. vitamins, iirc, don't directly boost the activity of the immune system, however, but make resources more available for it, and shouldn't be a problem. things like echinacea...
  16. tarnalberry
    goat's milk has casein - all forms of dairy have casein - but the proportions of different subtypes of casein vary between different mammalian milk. there are theories that people are often primarily intolerant to one or two subtypes, so trying a milk that has a significantly different proportion of proteins may make a difference and be low enough in the...
  17. tarnalberry
    there are not currently any pills, prescription or over-the-counter, that can digest wheat such that the immune system doens't respond by destroying your intestines.
  18. tarnalberry
    vegetable rolls and cooked salmon rolls are what I tend to go with, sometimes shrimp nagiri. check on the internal ingredients, of course, but they are often safe. "what" you can have depends on the kind of sushi available to you. I've found that the sushi selection (of the more esoteric things) in SoCal is different than Seattle, and that varies greatly...
  19. tarnalberry
    That's the position for CODEX - the international standard - but not the US law. There's a reference in there to the proposed US regulations, however: Open Original Shared Link
  20. tarnalberry
    They already had a time period for input from celiacs on the new laws - in order to get the definition of gluten free. (There were links posted to it here earlier this year or late last year to submit your responses.)
  21. tarnalberry
    Your distinction may be sufficient for an average person on the diet in this case, but it would not be sufficient for a medical community trying to do accurate differential diagnoses and research treatment and cures. As for the first analogy, that's exactly the reason why it *IS* important to make the distinction. Knowing how these things works tells...
  22. tarnalberry
    Not true. Most plant proteins do *not* evoke an auto-immune response - they do not cause the body to produce chemicals that attack itself, they do damage directly.
  23. tarnalberry
    100 times - ditto. There will never be a "gluten free means 0ppm gluten" law. It is not enforceable. Additionally, expecting lots of foods to be made in gluten-free facilities is unreasonable - production facilities are too expensive. Have you ever let a pretzle or granola bar or cookie in your house? Then YOU have a SHARED FACILITY.
  24. tarnalberry
    if it's labeled "vinegar", just like that, nothing else, on a package label, it means apple cider vinegar, and is gluten free. you may want to look at what else you ate.
  25. tarnalberry
    There are a number of recipes using pumpkin that I've put on Open Original Shared Link. But making a low-fat pumpkin pie gluten and casein free is pretty easy. Basically, you stick with a regular recipe, with some substitutions. I make pumpkin bread, and turn it into a crumb crust by 'dehydrating' it in the oven after I make it, but you can use cookies...
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