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Posterboy

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Everything posted by Posterboy

  1. Posterboy
    babygirl6915, some people do respond more severely to gluten when they have been off of it for a while. Are you sure it is not a cross contamination issue (CC) even for those who are old hats at spotting gluten can sometimes be/get glutened by even small amount that before might of not bothered you before. I had a friend who had a similar skin...
  2. Posterboy
    Librarychick, There is a similar thread that you might want to read called "could Celiac disease really be making this sick" that similarly describes many conditions that doctor's sadly don't often connect the dots with. I recently started a survey question on this board (unscientific) that asks readers to list/answer what other diseases they were diagnosed...
  3. Posterboy
    To All those who have had other disease diagnosis's before your Celiac Diagnsosis, Someone more experienced on this board might set up a poll to see how many of the tags in the thread apply to those who have received either a celiac disease or NCGS diagnosis for those who read this board. See this new research as posted on Celiac.com today https...
  4. Posterboy
    Kam00096, I think everybody on this board feels your pain. 18 weeks seems like a long time but we all have to do what is best for ourselves. Try searching on this site for blood serology results they can be very helpful. https://www.celiac.com/articles/13/1/What-is-the-probability-of-false-positive-and-false-negative-results-from-the-serological...
  5. Posterboy
    tracym007, I think I mentioned this in another thread post. And why I mentioned the Niacin(amide) version for your lotion. Most people do not know there is actually two types of Vitamin B3. Niacin and the Amide version (non flushing) Niacinamide. B vitamins often help with stress. Vitamin B3 helps regulate histamine (think what cause's us to...
  6. Posterboy
    at wits end with this rash, Do you also have GI problems or has this rash preceded any GI issues (regular once a day). I did a quick search on Celiac.com and came up with this thread on the topic. I think it is very informative. Also have you tried a skin cream with Niacinamide in it. They can be hard to find. I am not recommending their...
  7. Posterboy
    manasota, When I first was diagnosed with Celaic disease I was beginning to have Thyroid problems. But I began studying up fortifying myself with knowledge which led me to Chris Kresser's site where he has a free book on Thyroid disorders it might be worth downloading it and reading it (I have not) but read some of his blog posts. I think of it...
  8. Posterboy
    Ryan7194, Timeline and history are important with diagnosing someone in any condition. I had similar symptom's many years ago now when trying Psyillium fiber (Metamucil) for regularity. It made me anything but regular! Did your downhill slide start soon after you started the Pysillium? If so you could be having an allergic reaction and have...
  9. Posterboy
    ryan1794, Have you considered the medicine's you are taking. Some medicines and antibiotics can give you "sprue like symptom's" ie mimic Celiac disease's often alternating with the C and D you describe. But with your anti-bodies test presumably still being low Gluten is not the trigger in this case but the medicine you might be taking could be. See...
  10. Posterboy
    ryan7194, I agree with cycylinglday I noted/noticed the same thing. See my comments to liz21 topic " 7 year, 5 years gluten free . . . still having problems" and my profile if you want to know more about the posterboy. That said I wanted to share my experience with Chronic Fatigue that presented before my Celiac diagnosis. Triggered by not being...
  11. Posterboy
    StephanieL, I have/had Celiac diease. It was not a wheat allergy and I know it technically not right to say "allergy" in this sense. It is a delayed autoimmune reaction that produces antibodies and yes I had them that immediately went down in the first month on a gluten free diet. Probably the worst week(s) of my life physically (terrible chronic...
  12. Posterboy
    cycylinglady, I did not say Niacin. Most people do not know there is actually two types of Vitamin B3. Niacin and the Amide version (non flushing) Niacinamide. B vitamins often help with stress. Folic Acid usually helps people with high blood pressure and Vitamin B3 helps regulate histamine (think what cause's us to itch) release's in the body and...
  13. Posterboy
    cyclinglady and Celiac Nutritionist You are right I was mainly referring to the fact that many more gluten-free people are not truly as gluten free as the sometimes think they are. Jefferson Adams wrote about this new research on celiac.com https://www.celiac.com/articles/24200/1/How-Are-Gluten-Immunogenic-Peptides-Like-Santa-Claus/Page1.html ...
  14. Posterboy
    You may not be gluten free as you think. See my profile. Try some Niacinamide. A healthy child burps! A sign of complete digestion. It (niacinamide) can be used topically (rubbed into creams) for the skin dryness. Most dermatologist know about this. INgest orally 1 large 300 count bottle should cause burping to occur and digestion to improve. ...
  15. Posterboy
    Golden Cross of Digestion This is correspondence with a fellow sufferer. I am including it here for information purposes only. ** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any changes to your medical regimen. “This may help to digest the food but does it actually r...
  16. Posterboy
    I actually think gluten triggered my type II diabetes. If I was first diagnosed with Celiac Disease I wonder if I would have developed pre-diabetes in the first place. Nevertheless nutriiton has helped me keep my sugars underway after going gluten free. My a1c often would go over 7.5 without metformin. Once I took some Chromium Polynicotate to help...
  17. Posterboy
    Still Showing Damage, Biopsy are the old school way to test for gluten free dietary compliance. The villi however take most people 1 year approx to heal the majority of the way. 2 years are needed for most people(if no cheating occurs hence the 2nd biopsy) for complete remission. If the Celiac is not in remission in 2 years it is consider refractory...
  18. Posterboy
    I found this link that summarizes it very well. Buyer beware. But other articles I read seemed to indicated maybe a NCGS patient might be able to tolerate some well seasoned sourdoughs, ie that had been allowed to grow for 24 hours to help predigest the gluten into smaller more managable peptides by the body (only theory on my part). Open Original...
  19. Posterboy
    Road/Way Back Timeline Dear Gluten Intolerant, This is not something I have arrived at easily, or accidently I believe but by the grace of God. I think it is important to give you a time line of sorts for my gluten problems. After 35+ years of not having a definitive diagnosis when I got the Celiac Diagnosis (which I prompted my doctor to...
  20. Posterboy
    My post is pink (I have trouble with colors) I think what does that mean? Will I get a notice if the post is approved? Does that mean the 'moderator' has not reviewed my post yet? Posterboy,
  21. Posterboy
    How can it be self promotion when the name of the book was not mentioned. No title was given. (As moderator moderate out offending references don't ban the whole post is the consideration I ask) when I spend hours taking the time trying to help fellow sufferers like myself. Either way I was trying to establish like many on this site once a sufferer you...
  22. Posterboy
    Pat, In response to the Chronic Prostatitis, I have had friends mostly women who have had either UTI's or Kidney infections and almost 90+ of the time D-Mannose wiped it out. It is just a simple sugar but really works wonders on E. Coli infections by the E.coli attaching to the sugar and being harmless flushed out of your system. If your prostatitis...
  23. Posterboy
    gluteymommy, I sympathize. See my profile Then follow this regimen if I am right you will see improvement in 6 months. It is just one vitamin and one mineral. Magnesium Citrate will help the fatigue, insomnia and give you restful dreams. Niacin(amide) - harder to find than Niacin but flush free/slow niacin will do the same. There...
  24. Posterboy
    Kareng, I had just answered the question does vilous atrophy heal J. Podi. See my profile. I want to know could I be in remission and I didn't think the moderator would let me post something that might be considered heretical thinking. I have no symptoms that last more than the two weeks medically speaking that is defined as diarrhea or constipation...
  25. Posterboy
    J. Podi, I did much research like your self and continue to research these questions you pose. Let me first refer you to Jane Anderson on About.com Refratory Celiac Disease: Frightening but very, very rare then let me add my two cents. She goes one to say in her linked article that it occurs in less than two percent of Celiac sufferers. So yes...
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