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Posterboy

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Everything posted by Posterboy

  1. Posterboy
    Texasjen, There is a group that certifies restaurants if you are super sensitive and need a certified restaurant. It is called the gluten-free Food service. Here is their link Open Original Shared Link But I think it is a little try and error for local restaurants. A little trick I employed was when I went to my favorite chinese restaurant...
  2. Posterboy
    Renaye, I just got timely information about what often can trigger a Gall Bladder attack. See this link Open Original Shared Link I subscribe to her news letter. I will quote from the link what I think is revelant information. I just read this a couple days ago so it was fresh on my mind. I noticed you mentioned egg as one of your...
  3. Posterboy
    GFinDC, I might not be doing it right. I have done more testing. When I go to "home page" when you put in celiac.com and start searching for a topic nothing comes up as found though I know it exists. But if I go to the forum section and use the search there I get results for the same search topic. Same thing happens if I search in Advanced...
  4. Posterboy
    Search function seems to have stopped working properly Up until recently. I could search for old threads or comments. About three days ago when I now use or try to use the search function on this board nothing comes up. In the past something would come up. It was not sorted in any fashion but now nothing comes up in the search box when I...
  5. Posterboy
    VikingMac, I have tried writing about these connections you have observed but most people don't see the connection(s) today. I find good research goes unheadead for many years after it has been discovered/or reported by people only to have it rediscovered later by other people. Take the research by Prousky that Niacin treats digestive problems...
  6. Posterboy
    Kamoko, Gluten Free 9 months should be more than enough time to be regular. Try changing your laxative. Sometimes overuse of some laxatives can contribute to the constipation you are trying to avoid. Taking iron supplements are also known to cause constipation. I used Colace and Pericolace for years to gently cause a regular movement before...
  7. Posterboy
    christine1962, Cyclinglady has given you good advice. A food journal might be helpful too to see what your triggers are. Buy a meter if you don't have one now and you will soon learn what to avoid. The only thing I would change from what cyclinglady said was not to exclude beans. Beans by their nature are resistive to digestion being...
  8. Posterboy
    Erikarae, I think waiting on "biopsy proven" diagnosis only delays his recovery at this point. See this link where a noted NZ Pediatrician Dr. Rodney Ford discusses the approach he uses in his clinic. Open Original Shared Link You will have set backs but cycylinglady I think has the right approach to address your son's newly diagnosed...
  9. Posterboy
    Prologue I never know what to call a post. What Else Could it Be; Co-Morbidity in Celiac disease and what else could be causing your Celiac like symptoms or I had Celiac Disease and developed Pellagra. This is my story yours may be similar. I have tried to write as much as I could of this beforehand to summarize some of my experience and research since I...
  10. Posterboy
    tammi22, I agree with Gemini. The link she provided is the best information I have read on the subject. You also might look up the Niacin protocol. It involves taking Niacin 100mg titrating it up on 100mg steps till you get up to 500mg and depleting your histamine reserves by way of the Niacin flushing that people get in taking Niacin in...
  11. Posterboy
    GFinDC, I agree sites that don't sell something are better are at least they should be but as kareng points out . . . they can be useful resources for plain english explanation to laymen. I do find most doctor's sites that recommend vitamins/minerals also sell them. You can take the wrong kind/form (non-bio-available) like Magnesium Oxide and get...
  12. Posterboy
    gigdeb, It is amazing how many things line up when you first discover you have developed Celiac disease after all these years. Some of the same things associated with Celiac disease are also associated with having low stomach/poor gastric function. https://www.drmyattswellnessclub.com/GastricAcidFunction.htm And Graves disease is an associated...
  13. Posterboy
    artsunshine, We are glad to help if we can. I have had your legs cramps before. Taking Magnesium CITRATE 200mg 3 to 4 a day (at least 2 hours between doses) will get rid of most people's leg cramps. posterboy,
  14. Posterboy
    coolclimates, I don't know if this will help you are not. I once did research for someone at work who was having constant nose bleeds and why dry weather can make it worse all my research lead me to believe low Vitamin C was the problem. See this link that summarizes some of the things that contribute to low vitamin C levels. Open Original...
  15. Posterboy
    Ariel90, Take the amino acid Lysine. I have had them several times. Lysine always got rid of them for me. If you are prone to have them often Lysine can be used prophylactically (as a preventive). 500mg once a day usually keep them from coming back. I don't usually get them now unless I am feeling sick and they break out ahead of a flu...
  16. Posterboy

    ARCHIVED Canker sores

    Posterboy replied to kkgirl's topic in Doctors

    kkgirl, This is a two part answer I say you had asked in another thread about decreased folds. cycyclinglady commented that duodenal folds where a sign of possible "silent" celiac (my term) before villious atrophy showed up. don't trust dr. google for a dignosis but it can be helpful to guide you in the right direction. So i was curious...
  17. Posterboy
    artsunshine, Let me add to what GFinDC said. The cancer concern usually is only for those who continue to eat gluten. You will find there will be good days and bad days when you are cross contaminated but you will learn quickly in which food "hidden gluten" lays. You will become an expert label reader. Fortunately now it easier than it...
  18. Posterboy
    kareng, Your are probably right. But the same could be said about Celiac disease 15 or 20 years ago. Rare enough to not be diagnosed nearly as common as it is is today. Thanks to education doctor's now know to look for it today. Sadly though often patients often still have to educate our physician's Celiac is a lot more common than it is diagnosed...
  19. Posterboy
    cycylinglady, I don't know where that leaves me. There is no good medical answer. My chart says I am a celiac but my GI symptom's seem to be in remission. Maybe I am now a silent celiac and damage is being done that I don't see or is now occurring in other organs that I am not aware of. I might be in a "honeymoon" period and it will soon...
  20. Posterboy
    emma6, Yes thank you. Ooooooooooooooooooooops! of course I did not know her license had been suspended. I will be sure not to quote her again. It seems the more I try the worse it gets. Would you take a link from Pubmed that note a similar link of the possible connection betwen "Niacin metabolism and Parkinson's disease." Open Original...
  21. Posterboy
    ravenwoodglass, I am not sure exactly what you mean by the "psychological aspects" of a Celiac. I mean it to mean any of many related "dementia's" including depression, anxiety, MS, ALS, Cerebral Palsy or ataxia's linked or suspected to be linked to gluten consumption or a Celiac diagnosis. 40% of Celiac's go on to develop Depression. I...
  22. Posterboy
    squirmingitch, I owe you an apology. I never meant to misrepresent what you said. When I read "I thought the first sign of a glutening with me would be a flare of the rash but it wasn't. Mine begins with the neurological aspects, then GI symptoms" . . . I miss understood what you were saying. I should of noted only my depression and excessive...
  23. Posterboy
    Cyclinglady, I was serology confirmed as a Celiac. It is true I was not "biospy proven" but there are others on this site like Gemini and I think Ironictruth who were only blood test confirmed but we are no less Celiac's. Than those who have had a biopsy proven diagnosis I believe. we had a gluten antibody response while consuming gluten and our...
  24. Posterboy
    squirmingitch, I usually mention the Niacinamide form of the Vitamin because it avoids the flushing people find annoying about the commonly available Niacin form used for cholesterol management. Knitty Kitty used the Niacin form to help her itching. You ran review how she took in the above thread or research the Niacin protocol to relieve itching...
  25. Posterboy
    squirmingitch, It may have not been the doxycycline. You didn't mention any more about your Niacinamide from your first post. Niacin on this board has been used to treat the itching effect of dh the celiac rash. You note despite usingy doxy you still continue to have flares but when you started the Niacinamide and doxy you noticed improvement...
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