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Posterboy

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Everything posted by Posterboy

  1. Posterboy
    Whos Afraid of a B Vitamin You needn’t Bee? An FAQs on Niacin(amide) and how to take Niacinamide and why you would want too in the first place. The very definition of a Vitamin is a Vital (life giving) nutrient needed in a minimum amount without which we become sick. This is especially so for B Vitamins since the body does not have g...
  2. Posterboy
    jmg, I hope I am not reading this wrong. but I took the lower levels were only for those who had been cross contaminated and were not trying to eat gluten. the higher gluten levels were for those who where trying to cheat with a high gluten load and indicates the upper response of the the peptide to eliminate all gluten from the meal. which...
  3. Posterboy
    admin, The way I read that research was even those on a strict gluten free diet up to 50% of the time had been cross contaminated from gluten. Allergic living covered about how hard it can be to be gluten free unless you have a dedicated gluten free house. Obvisouly food is very social and it is easy to feel left out. I think it nice to...
  4. Posterboy
    GFinDC, I don't think this is the same enzyme that is in dpp-4 products. Medicalexpress just reported digestive disease week findings on this product. Open Original Shared Link They estimate it is 85% effective. They note this product was not tested in Celiac patients because even small amounts of gluten can cause long term effects...
  5. Posterboy
    Ennis_Tx, Mainly the concept we actually have a lot of gluten free (yes they are packaged junk food) options but if the crowd moves to FODMAPs or what it considered the next food "demon" then if lectins are considered the new "gluten" it will be easy for our message that is this is a medical problem can gt lost on the next craze. Open Original...
  6. Posterboy
    This is an article that summarizes the pros and cons of being possibly what happens if being a celiac is abandonded by the "celebrity" of eating gluten free for weight loss. dedicated to JMG and other British/Irishers on the international board since this article comes courtesy of the Irish Times (IT) and my friend at work who found the fortune of finding...
  7. Posterboy
    This is for Anyone Struggling Bile Reflux, I said in another post (soo a not to make it too long) that I would post this here (a fellow sufferer's) experience with what he did to help his bile reflux. I hope it helps someone. Note: he mention toast to soak up the bile in this post (obviously it should be a gluten free bread) Open Original...
  8. Posterboy
    To All, (But I am thinking of Emma6, Gemini, Feeneyja, Mermaids Mom, Ennis_TX et al) specifically, As I write this I have no grand plan and will pose as many questions (hopefully not) as I am trying to answer (maybe). ****** PLease do not use anything in this post as medical advice. Do research this topic extensively and work closely with your...
  9. Posterboy
    Sarah9858, I used to have many of the similar issues. When I had "tongue" flare ups it was usually related to canker sores. Taking the Amino Acid Lysine can help with Canker sores so in theory it might help your "sore tongue". If you can stand it swilling with salt water it will help sores heal quicker. Here is a livestrong link about...
  10. Posterboy
    Mermaid's Mom and Freeneyja, I had recently done some research on this topic and how low b-12 develops when people have low stomach acid. Here is the thread but it turns out people with the MTHFR gene can be treated with (replacement stomach acid). this research is 30+ years old and taking betaine then and now can help people absorb b...
  11. Posterboy
    JaneWhoLovesRain, what is odder to me than that there is an older disease that Doctor's have forgotten that explains many of the same symptom's and doctor's do not even think about it today since the "War on Pellagra" was declared over a 100 years and why doctor's don't (at least in the West) think about it any more. Dr. Heaney wrote a nice online...
  12. Posterboy
    KathleenH, I swear by MatteosPizza and they make National Delivery. I have been known to buy them by the dozen. Open Original Shared Link BellaMonica's is not a bad corn based crust. By not bad I mean "suprisingly good" that can be bought at most grocery stores. Here is there ZIP locator page to see if they are carried in your local...
  13. Posterboy
    Feeneyja, This will be a little long but I will try to be brief as possible. See this discussion thread that talks about how Pellagra is often diagnosed as other disease's today because doctor's rarely recognize it today in a clinical setting. Pellagra's is described as the 3 D's if you don't count the 4th D of death if it goes long enough...
  14. Posterboy
    Is it NCGS or Low stomach acid misdiagnosed Low Stomach Acid and Celiac Disease Dear Gluten Intolerant please consider Low Stomach Acid as a possible Differential Diagnosis as a possible way to achieve remission of your GI symptom's. “Consider what I say; and the Lord give thee understanding in all things” 2 Timothy 2: 7 Low stomach aci...
  15. Posterboy
    Auberon, See this new thread started by Ennis_Tx that explain how Capsum in Peppers might mimic the same effect in the body. And here is an article featured on celiac.com that talks about how Medical Marijuana has helped others with their Celiac disease symptom's. https://www.celiac.com/articles/24644/1/How-Medical-Marijuana-Helped-Treat-My...
  16. Posterboy
    glutenfreegirlfriend, I hope you are still following this thread. The vomiting bile and unintended weight loss can be a sign of bile reflux. Here is a NYtimes article on it. Open Original Shared Link here is thread about it. Getting completely over bile reflux can be difficult. I hope he finds something that works for him. ...
  17. Posterboy
    This sucks, I want to add to what Knitty Kittty said. We are the Niacin warriors on this board. Here is a long but informative thread that talks about where others' have discussed this topic exhaustively. I also recommend this thread where Knitty Kitty talks about how Niacin helped her itching associated with a DH rash. I hope this...
  18. Posterboy
    spirit_walk, I am sorry but I have not been able to read the whole thread. but I experienced your "popping" that you describe in the bones. Taking Magnesium Citrate helped mine. Here is a thread talks about all the benefits of Magnesium. Ennis_Tx and myself are the Magnesium Warriors on this board. Magnesium is really wonderful...
  19. Posterboy
    mikehall117, GFinDC has given you good advice celiac's get low in a lot of nutrients. People who have low gastric function/stomach acid also have many of the same symptom's (and nutrient deficiencies) see this link by dr. myatt that shows the associated diseases that occurs when some one is low in stomach acid for years and years at a time...
  20. Posterboy
    chicago wendy, Let first say. wow if you were diagnosed in 1978 you were a pioneer in celiac diease becoming more commonly diagnosed. I wanted to address your PPI question. ***** note this is not medical advice PPIs can be hard to get off of but they are worth trying to get off. This link explains why taking PPI's can make things...
  21. Posterboy
    Carah, I think I am in that category. see my blog post where I discuss my experience and asked the same question "It has been 4 years is it now safe to eat gluten again" I think our stomach acid protects us against many of the foods/proteins we eat and when it is too low our autoimmune system gets activated. 70% of our immune is in the small...
  22. Posterboy
    Ennis_Tx, If at first you don't succeed try, try again. First I tend to be long winded from our discussions I begin to ask myself if it is not acid reflux then what are you refluxing. I had a friend who had similar conditions mainly puking back up and unintended weight loss and this explains exactly what she said she had and I didn't put two...
  23. Posterboy
    Jherm21, The people on this board have all given you some good advice. I would suggest B- sublinguals because if you have low stomach acid or are taking PPI's your B Vitamins can still be absorbed through the blood vessels in your tongue. People taking PPI's often have to take much higher levels of certain vitamin/minerals because they absorption...
  24. Posterboy
    Mermaid's Mom, Tg6 is the antibody test you are looking for to see if the neuorlogic problems are gluten related. Just search on celiac.com for Tg6 and several articles will come up. I will link a few here for you to research. https://www.celiac.com/articles/23275/1/Can-Transglutaminase-6-Antibodies-Help-Diagnosis-of-Gluten-Ataxia/Page...
  25. Posterboy
    bl0nde, I don't have a lot to add but this thread talks about how to substitute any ingredient in sushi to make it gluten free. https://www.celiac.com/articles/23449/1/How-to-Safely-Order-Gluten-Free-Sushi/Page1.html Maybe it will be helpful to anyone trying to figure how to do that. I like steamed rice just fine but find sushi rice to...
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