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Latest Celiac Disease News & Research:
Everything posted by Posterboy
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ARCHIVED Feel like I'm going insane
Posterboy replied to pavlovcat's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
pavlovcat, Plumbago is right you have a medical problem. We can't diagnose or treat you but we can offer you advise based on our own research and the symptom's we have had for ourselves that have occurred as part of our celiac diagnosis. Using my the SWAG method. If you don't know what SWAG stand's for look it up. Cycylinglady this is...- 19 replies
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ARCHIVED Feel like I'm going insane
Posterboy replied to pavlovcat's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
pavlovcat, I wanted to speak to your depression and anxiety. Anxiety is a separate condition but often common in depressed people. I have had both. When I took a Zinc lozenge (think the kind you find/take for colds) will help unnatural anxiety. By that excessive worrying and fretting over everything. Or having repeated worry about did...- 19 replies
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ARCHIVED Now it's my turn
Posterboy replied to Feeneyja's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Freeneyja and jmg, Previous thread getting a little too long so I needed to start another. as to the columbia research I think it is the smoking gun of sorts for NCGS. It seems clear to me that celiac is a "sprectum" of disease(s) and we get frustrated we don't find them both in the same person. and that is because they are the same disease... -
ARCHIVED Now it's my turn
Posterboy replied to Feeneyja's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Feeneyja, I don't think I said it well. Kind of Like SIBO girl and captain NCGS I see everything (or most everything) through the paradigm of (low) stomach acid mostly. And why I mentioned my experience with taking Niacinamide to raise my stomach acid to to healthy levels. Anemia is a classic sign of low stomach acid. If you haven... -
ARCHIVED Now it's my turn
Posterboy replied to Feeneyja's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Feeneyja, This is why some/many on this board have been diagnosed (technically) as NCGS because it is not a "biopsy" proven Celiac though we know in our heart of heart it (gluten) was the trigger. And while it shows up with gluten and or lactose intolerance form for most first . . . I believe it from our defense's being weak to begin with that is... -
ARCHIVED Now it's my turn
Posterboy replied to Feeneyja's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Feeneyja, I think your doctor needs to read to be made aware that blood serology can be used to diagnose someone as a celiac. New research indicates serology alone is within 3% accuracy of a "biopsy" diagnosis. Here is the thread about it based on new research. I still say you need to consider Pellagra as a differential diagnosis. B... -
ARCHIVED insomnia after going gluten free
Posterboy replied to JennyRob's topic in Related Issues & Disorders
JennyRob, I believe Knitty Kitty is right about the form used for pregnant ladies is the Sulfate form. Knitty Kitty is a good researcher she has provided you some good links. here is the webmd article on the Magnesium sulfate form used in IVs. Open Original Shared Link Notice the higher dose amounts used. Most medical uses of Magnesium... -
ARCHIVED Magnesium citrate
Posterboy replied to Victoria1234's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Victoria1234, I tried to quote your post for context but couldn't get it to work for some reason. That is the great thing about Magnesium when you find it in the right form aka Citrate or Glycinate. Such is the benefit even small amounts make a BIG difference in your energy levels and how you feel. (reread my thread about the "Magnesium... -
ARCHIVED Side effects after discontinuing long term PPI therapy for GERD
Posterboy replied to trents's topic in Related Issues & Disorders
trents, You might have a Magnesium deficiency. It is not uncommon to feel run down when your body can't absorb enough Magnesium. here is the national institutes of health link about the power of Magnesium. Open Original Shared Link If you look at the side effects of most PPI"s they actually say this on the warning and they advertize... -
ARCHIVED insomnia after going gluten free
Posterboy replied to JennyRob's topic in Related Issues & Disorders
JennyRob, Sleep problems are cured or greatly alleviated with Magnesium. here is the national institute of health page about the benefits of Magnesium. Open Original Shared Link but if you really want to learn something about magnesium check out george ebbys research on Magnesium. Or dr. carolyn deans book "the magnesium miracle" but taking... -
ARCHIVED Magnesium citrate
Posterboy replied to Victoria1234's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Victoria1234, wait till the interview is over then try Magnesium Citrate. Not to contradict ennis_tx but I find in the beginning a capsule works best (always 200mg) or 150mg liquid gel in the nature's made at krogers. a half teaspoon max to start the natural vitality because it works soo well......if you round up the teaspoon this can be too... -
ARCHIVED Canker Sore/mouth ulcer - worried
Posterboy replied to cristiana's topic in Related Issues & Disorders
Fbmb, You are welcome. I just try and pass on what worked for me on to others. here is a quick search on celiac.com that explains it well. I used to have them all the time and Lysine was a god send. see the last poster in this thread it has to do with arginine/lysine balance and supplementing with lysine restores the ratio restoring... -
ARCHIVED Canker Sore/mouth ulcer - worried
Posterboy replied to cristiana's topic in Related Issues & Disorders
Fbmb, Search for Lysine on the celiac.com forum. Lysine can help canker sores. this topic comes up often. Lysine 500 to 1000mg in divided doses 2 to 3 times daily will help most canker sores on your tongue and mouth in two or three days. Lysine can be taken prophyaltyically too (in advance of an outbreak) to keep it in check. You Use... -
ARCHIVED Canker Sore/mouth ulcer - worried
Posterboy replied to cristiana's topic in Related Issues & Disorders
Cristina, first ditto to everything Knitty Kitty said. she does good research. as to the Magnesium find you a Magnesium Citrate or Magnesium Gylcinate (non flushing form) and your body will thank you for it with restful dreams, energy and your charlie horses will vanish. 3/day plus bedtime will really perk up your energy levels. here... -
ARCHIVED Labs in- all negative and very frustrated
Posterboy replied to Casy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Casy, I wanted to answer your question "Very much limboland! I have read quite a bit on DH... so much so that I don't really know what else this could be." It could be a little known disease today but people don't think to consider it today known as Pellagra. Pellagra even means sour/rough skin where it is first diagnosed in Italy where the... -
ARCHIVED Do Doctors Diagnose without an Endoscopy?
Posterboy replied to Madeline A's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Madeline A, There was new research posted on the celiac.com site today about Celiac disease in kids that backs up what your doctor's office was claiming. mainly serology alone can spot celiac disease in pediatric patients (children) https://www.celiac.com/articles/24797/1/Can-Antibodies-Spot-Celiac-Disease-in-Kids-Without-a-Biopsy/Page1.html how... -
ARCHIVED Red Meat Intolerance Related to Celiac?
Posterboy replied to BarryC's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
BarryC, You are getting classic rebound symptom's. See this study about why taking PPI's make the symptom's worse. Open Original Shared Link I also recommend chris kresser's 3 part series on the subject. Open Original Shared Link if it (gerd/heartburn/happens) when you are eating something then your stomach acid (SA) is already... -
ARCHIVED Red Meat Intolerance Related to Celiac?
Posterboy replied to BarryC's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
BarryC, Have you considered digestive enzyme's like Pepsin (not pepcid the acid reducer). Open Original Shared Link It is important for protein digestion. It is usually sold in combination with BetaineHCL (powerdered stomach acid) or alone without BetaineHCL. if you take it (BetaineHCL with Pepsin) be sure to drink it with a glass... -
ARCHIVED Do Doctors Diagnose without an Endoscopy?
Posterboy replied to Madeline A's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Madeline A, I think cyclinglady has it right. It is a matter on individual perspective or confidence needed to adhere to a strict gluten free diet. some doctor's will use serology alone to diagnosis but traditionally a "biopsy" proven confirmation is used to confirm the blood tests. here is a thread that talks about some of the issues... -
ARCHIVED Blood test results
Posterboy replied to Lindsey1978's topic in Parents, Friends and Loved Ones of Celiacs
Lindsey1978, I don't know if it will help you are not but these threads might be of help to you. And a thread on those who react to gluten by vomiting. I hope there is some information in these threads that you might find helpful. your might also PM ennis_tx he used to have similar issues of vomiting but now controls it with digestive... -
ARCHIVED positive dgp not celiac
Posterboy replied to ironictruth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Feeneyja and Captain NCGS, and Ironictruth It could be SIBO or it could be NCGS as Captain NCGS pointed out. see this research that matches your 84% of SIBO patients. https://www.celiac.com/articles/24058/1/Large-Number-of-Irritable-Bowel-Syndrome-Patients-Sensitive-to-Gluten/Page1.html Below I summarize their findings I quote “n... -
ARCHIVED positive dgp not celiac
Posterboy replied to ironictruth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ironictruth, I think that is a very insightful thought. since different antibodies present for different body systems all the ways gluten affects the body is still not well understood. Here is a case of presumably someone who had the gut damage of a celiac but also had neurological damage. Open Original Shared Link entitled "A case... -
ARCHIVED positive dgp not celiac
Posterboy replied to ironictruth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Estes, I want to respond to your question might it be Pellagra instead? It might be but it will be hard to prove by testing. See my response to this question from an earlier thread. The in International Journal of Celiac disease noticed this connection in 58% of Celiac's. Here is the link Open Original Shared Link quoting ... -
ARCHIVED positive dgp not celiac
Posterboy replied to ironictruth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
ironictruth, I think you are so early in your diagnosis that most test don't account for so early a diagnosis. see this thread started by you and GFinDC conclusion at the end of the thread not sure how to quote from multiple threads. Here is what GFinDC thought the study meant and I agree. Posted March 7 "It seems like... -
ARCHIVED Didn't get better...finally an answer
Posterboy replied to thleensd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
thleensd, If you have POTS you should look into Magnesium. Here is a thread started by Ennis_Tx that talks about some of it's many benefits. Also see this link from the affibers.org website that mentions specifically Magnesium Taurate's role in arrhythymia's. Open Original Shared Link I also recommend trying some some Niacinamide...- 11 replies
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