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massagemamaof3

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by massagemamaof3

  1. Thanks everyone. I feel reassured that things are going in the right direction. Since neither of the drs offices can seem to find her starting TTG number I'm just going to assume it's getting lower
  2. She's 12 and is really cautious about what she eats she ate a "gluten free" brownie a few months back and had such bad stomach cramps for 18 hours that she's even more careful. I also make sure that she uses gluten-free shampoo, conditioner, body wash, and toothpaste. Her lunch at school is a pre-packaged gluten-free lunch. She will be taking her own lunch...
  3. My daughter had her first 6 months blood work done the other day and I got the results back yesterday. Her TTG levels are 119. We have a gluten free house and she has gluten free lunch at school. I'm feeling so defeated right now and I have no idea where to start looking for the areas she's getting glutened at. Anyone out there have this same thing happen...
  4. I went to a tastefully simple party a few weeks ago and was really excited that they had a new "gluten free" line. I was a little apprehensive to try them because they are made in a factory that processes what also. Well I made their brownies yesterday and while they taste good my daughter had a reaction to them within an hour of eating them. Stomach cramps...
  5. We've only been gluten free for about 2 months and my 11 year old daughter, who was wearing a size 6 and 7's that were really big on her. Has graduated to an 8!! I think she has grown about 3/4 of an inch but has only gained about a pound or 2. We are really excited about any little bit that she gains or grows!
  6. I spent $70 today just replacing my cooking utensils, I had been putting it off and finally decided our whole household will be gluten free after only a month. I'm keeping my crockpot but I will be buying a new griddle, waffle iron, and electric hand mixer.
  7. I tried to have a mixed kitchen but even only a month in my daughter (celiac) feels worse now then before she was dx. I've been making gluten-free dinners for everyone but didn't think that my utensils would really be that big of a deal. I went out today and bought all new utensils and threw away the toaster and bagged up all the gluten food in the house...
  8. I have, she has her own butter in her own brand new rubbermaid. I'm probably not as strict as I should be. We are meeting with her nutritionist next week, maybe she will be able to help me with if she should be taking vitamins or probiotics or anything. A month after her dx I kind of feel like her GI Dr, just kind of gave us a result and set me a drift.
  9. I felt the same way at my in-laws this Christmas. My family including my grandparents went out of their way to make sure that my daughter had plenty of gluten-free food to eat. However my sil did nothing, even though she is my best friend and my daughters godmother. She didn't even ask me to bring anything for her to eat. It really hurt my daughters feelings...
  10. Thanks everyone, I guess its time for me to really crack down on the small amount of gluten filled foods I still allow in the house.
  11. I've looked through a bunch of threads and can't really find one current or concerning kids. My daughter has been gluten free for 4 weeks now since her endoscopy and DX. For the last week or so she has been complaining about feeling tired and sluggish and not herself. Could this be withdrawal or could it be a sign of being glutened? She was asymptomatic...
  12. I know that my dads grandparents came from Germany and settled in central Illinois and my moms grandparents came from Scotland. I see a theme in most of the posts. Almost everyone has German or Scottish heritage.We have lived in Illinois so long that we really don't have any customs left from either country. it kind of makes me sad.
  13. Tonight was the kids Christmas program and afterwards we had our first gluten-free restaurant experience. Nothing fancy just TGI Fridays, my daughter was happy they had a gluten free menu! She happily ate a 1/2 rack of ribs and some mashed potatoes. I also found out that we have a gluten-free bakery a block away! I ordered 3 dozen cookies for her to take...
  14. It's so funny that at 11 my dd is already worrying about if she will meet someone with celiac or if someone without it will understand.
  15. My daughter was just dxd also and she wants to be part of everything, including taking everything out of the cupboards and marking it gluten-free or knowing that it wasn't. She also has been making her own lunches, simple things like a sandwich with Udi bread, yogurt, and fritos, or a salad. She is also meeting with a dietitian. I can only guess from how...
  16. We live in Illinois but my daughter would also love to talk to someone about being gluten free and the issues she may run into.Maybe they can connect through email or instagram, I dont really know what that is but she has one. Our next appt with the gi dr is in april and i will definitely ask about the bone density scan. She has never had any issues with...
  17. Ohh.. yes there's a hy-vee everywhere you go here. I think there are like 20 within 20 mins. I did a lot of research with the different hy-vees and the 2 that are the closest have the most celiac savvy dietitians. The deli even knew what meats were gluten-free and sliced them the next morning while the machine was still clean. For the first experience it...
  18. I will, I went to Hy-vee first because they have the on site dietitian. My sisters have been scoping out the other stores for me. I wish we had a whole foods or trader joes closer then Des Moines (3 hrs).
  19. I had my first gluten free grocery shopping trip yesterday. My local grocery store is Hy-vee, they had an onsite dietitian that was extremely helpful. She walked around the store with me and showed me her favorite gluten-free products and the binder the store keeps with a list of all the store brand products that are gluten-free. When I had a question about...
  20. I'm sorry to hear that. My daughter didn't really have any symptoms either. That is until I started researching it and realized that her headaches and occasional heartburn were symptoms. She wasn't ever really sick though. It came as quite a shock.
  21. You should try grapeseed oil or safflower oil. I am a massage therapist and i have used both of those oils on my clients and on my own hands, or on my lips if I have forgotten my chapstick. I have even had a couple of clients that have started using grapeseed oil instead of lotion.
  22. Welcome! I am also new here. My dd is 11 and we just got her biopsy results back yesterday so we are new to the whole thing also. I have been keeping in touch with the school nurse and luckily for me she has some experience with celiac and has been super helpful. There's such a huge difference between 5 and 11 that the one thing I can offer is to keep in...
  23. I went on my first gluten free shopping trip today. The local chain of grocery stores has dietitians at every store. She walked through the store with me and showed me where all the gluten free things were and what ones she liked best. The deli will shave the meat first thing in the morning while the machine is still clean, they had a binder with all of the...
  24. Thank you for these ideas! I just got off the phone with the school nurse, she is very informed on Celiac since there are a few other students that have it. She was the one the suggested the 504 to me and said that it will be very helpful when my dd goes to jr high next year. The flour cooking issues and bathroom issues will be the big ones for us since they...
  25. Those cupcakes sound amazing!
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