motheroftwins2010

My first doctor started throwing around the refractory diagnosis possibility very early too because I actually got much worse on the gluten-free diet (I have been dairy free for many years before I even knew what celiac was), but I switched hospitals to U of Chicago and we finally figured out that I have fructose intolerance (malabsorbtion in the proper term...

Yes, for unknown reasons pre-diagnosis my Vit D levels were a bit high at 79 (I did not take any supplements and was not eating dairy so we chalked it up to being outside a lot and being very fair) now I'm nearly 90 and they've asked me to cut back on my new multivitamin, even though I'm low on other things, to prevent it from getting dangerous.

This is old but I know when people google these or search the forums there aren't always follow ups when the problem was solved. We solved my problem, it was not crohn's or hidden gluten, I have fructose malabsorbsion as well as bit of a sorbitol intolerance. Ironically I figured it out at the gluten free expo because most of the samples were sweetend with...

Sorry I didn't reply earlier I've been busy. My fiance, the twins's dad, went to talk to them when he dropped them off and they really felt bad about it and apologized he told them it's not the end of the world but it's just an uncomfortable situation and so they gave my kids beads to put on the necklaces. They are hanging but the kitchen door to the garage...

My twins are in preschool and I volunteered the other day and noticed they made colored pasta but forgot to inquire about it. My son has NCGS but thus far I haven't restricted play doh, pasta crafts, etc but he reacted so this morning at breakfast I asked what it was and if they washed their hands well afterwards. My daughter wouldn't tell me and was extremely...

I am not sure how I didn't start cracking up right there but yeah scary how little people know about the things they are putting into their bodies. I am really getting good at not laughing in people's faces now a days!

I had costrochondritis during my pregnancy on the right side near the xyphoid process I think that's what it's called. It never itched but it hurt like hell. There was no external marking either just internal pain. It did go away.

To answer your question no I don't know any people with celiac disease who have not had a reaction after being gluten free and then again ingesting gluten. Everyone I've spoken too about this has had some reaction definitely not the same for everyone like me I do not get GI symptoms right away if at all but I get debilitating pain which can leave me unable...

I had a waitress insist that the sauce in the lettuce cups had dairy in it. I knew it was dairy free and gluten free because one of the 4 times I've eaten out since being diagnosed was at this restaurant and discussed this with the manager and chef that it was gluten-free not contaminated and dairy free so I was confused as to why she insisted if had dairy...

I'm so tempted to ask her what she thinks it is but I'm pretty sure it's just a b*tchy thing to do at this point.

I think it's really a judgement call some well meaning relatives may not understand even if you give them a very informed run down. Some would be totally trustworthy. Restaurants a least reputable ones have to go by the health department standards and generally ones offering gluten free items have a special class or even sometimes a certification program...

My future step-niece in-law is gluten free due to an intolerance allegedly. She's not someone I would want to be friends with if it weren't for me marrying her step-fathers brother but she's family. Anyhow since I have celiac and my son is ncgs we brought our own food to Easter lunch. My fiancee went over to her to offer her some gluten free brownies since...

My celiac specialist dietician told me that most (not every single one just most) wines were naturally gluten free and really shouldn't be coming into contact with gluten UNLESS it's flavored. Any flavored wine or liquor should be avoided unless certified gluten free as it very well could contain gluten cross contamination. I think I am super sensitive I...

Just an update for anyone who was wondering. My colonoscopy was completely normal so I was sent for a CT Scan to rule out lymphoma. I do not have lymphoma, however, during the CT scan they found inflammation near the end of my small intestine (not anywhere outside of the small intestine though) indicating Crohn's disease and recommended a colonoscpy to confirm...

Thank you I know it takes a long time to heal but I'm actually getting worse when I was diagnosed I did not have daily diarrhea nor did I have stomach aches and pains now I'm up to 5-6 times a day and regular stomach pains. In addition to losing 7lbs in the first 10 days of going gluten free and not gaining it back. So rather than just feeling bad I'm worsening...