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Jmg

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jmg

  1. I have similar symptoms. The only way you'll get that certainty you seek is to go through the testing procedure which requires you to consume gluten. That's what I'm doing right now. If you get diagnosed you'll have both every incentive and lots of support to get through the adoption of the gluten-free diet, although I have to say that any withdrawal I had...
  2. Few days in, have started slowly, the first sign I had was scalp being itchy, then came the anxiety (although it was difficult at first to pick up as I was anxious about doing this even when gluten-free ) now the horrible hollow depression feeling is beginning, sort of like an ache behind my eyes. Only positive is that I know now what causes it and that...
  3. Thank you. I'm going to just have a small amount for the first few days. Now started off with a small very slice of rye bread. I hope so, am hoping to make it through as would be awful to get near and not make it for the endoscopy. Thanks as always for your replies. I've found this board very helpful and appreciate the efforts that you...
  4. Hello again. After starting to feel much better, putting on some weight and feeling even better than I had when first cutting out gluten I finally met the GE consultant today. The good news was that he was happy to send me for a endoscopy rather than a blood test, the bad news was that he suggested an 8-10 week gluten challenge, I'd been hoping for only...
  5. There are others here far better able to answer your first question. I can tell you that my depression started to lift within 3 days of eliminating gluten from my diet, if your ex is the same as me it would be one of the first, most noticeable changes, with others following in various time frames. Hope that's of some help, although bear in mind it seems...
  6. I don't have a diagnosis yet but many of your symptoms are familiar to me. At 12 I had a healthy appendix removed due to mesenteric adenitis. I've also had severe stomach pains over the years, horrible stomach cramps. I get a rash on the back of my neck and scalp. I've had severe lower back pain including sciatica. I've also had irritability, depression...
  7. I'm travelling to Denmark next week,the first time I've travelled overseas since going gluten free. From what I've been able to find out there should be some gluten free foods available, but I'm still a bit nervous about both potential cross contamination as well as being unable to fully participate in meals out etc. Just wondered if anyone here has travelled...
  8. I had Anxiety, Depression and irritability/mood issues. I've never had a diagnosis of AD/HD but would guess I've had many of those symptoms too. Since changing my diet they've all responded really well, within 3 days my depression and brain fog started to lift. The world is a very different place for me without gluten in my diet. Hopefully your stepdaughter...
  9. Thanks for all the replies. I don't think my rash is DH, am leaning towards folliculitis!
  10. They sound like good friends. I'll bet if they could just read your post above that would get you 90% of the way there.
  11. Very interesting. Useful to me as although I've established a negative reaction to gluten I'm currently in pursuit of a diagnosis, this will help me stay on the gluten free diet if I wind up with a NCGI diagnosis.
  12. Are you keeping a food diary? You've had progress from going gluten free, which you'd be able to look back on and draw confidence from. You could now try maybe just a few days without dairy or corn/soy/etc, and note down how you're feeling It's difficult when your in the moment to assess how you feel, but a diary can help you track change over time....
  13. Questore, I only realised I had an issue with gluten after I'd removed it from my diet. I wish I'd been tested before then as I'm now facing a long and probably deeply unpleasant gluten challenge. If I were you I'd ask for the blood test before removing it from your diet, but wish you luck whatever you choose
  14. This wasn't directed at me but nonetheless I found it great to read, thank you for writing it.
  15. Wow, I've had this for many years but never mentioned it to a Doctor or when I listed my symptoms. I've since found this: https://www.celiac.com/forums/topic/77632-finally-some-answers-to-my-postural-hypotension/ which has given me further cause for thought. Learning a lot here!
  16. This research seems to be at the cutting edge: Open Original Shared Link although it still depends on 3 days of exposure. just wish it was available now!
  17. You can put just about anything in an Omelette and I find thy set me up really well for the day. I had spinach, avocado, mushroom onion and tomato in mine this morning
  18. Thanks for the further responses. I've had some good news, my local dr is referring me so I'll get to see a GI specialist. Depending on what they say I may try to complete a gluten challenge, not keen on the idea after my last experience but at least I may then know for sure and I'll be getting an expert view. MEC, thanks for sharing your story, it...
  19. Thank you once again! This: is really helpful. I still don't know whether the health system here can offer the more sophisticated test, but it seems as if cyrex labs are available privately: Open Original Shared Link - If I do another gluten challenge I may pay for one of these lab tests at the same time for y own peace of mind, because at least...
  20. I'm not sure either, but it did improve when I removed gluten from my diet.
  21. Hi. I'm currently undiagnosed and wondering whether I have DH and if this could help me reach a diagnosis. For about 17 years I've had occasional outbreaks of a rash on my chest. There are occasionally pus filled sores and it gets really itchy. It never seems to go beyond my chest but occasionally I'll get one or two sores on my back or crotch. It's not...
  22. Thanks GFinDC. It's only from reading this forum that I realised that maybe the test hadn't covered all the bases. It may be because the UK labs do things differently, but I can't tell because the report doesn't seem to break it down properly. I have read about DH. I have had a rash on my chest off and on for over 20 yrs which could be that, Dr's have...
  23. Hello again. To recap after removing gluten from diet for 2 months and seeing a profound impact I had a negative test after 6 (painful) days consuming gluten. I've now obtained a copy of my results and I'd appreciate any insight you could share, as I'm none the wiser! I don't seem to have the spread of figures I've seen posted here, although I'm in the UK...
  24. Yes I get a swollen look on my face. I can see the difference between me now and photos from when I was eating gluten, so can friends and family.
  25. I've been given the name of a specialist and have asked my local doctor for a referral. I'll wait till I've spoken to him before I make any further decisions, so still gluten free for now. I am however noticing that I'm now much more sensitive to foods than before I took the gluten out of my diet. I've had a couple of odd reactions to ostensibly gluten...
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