Jump to content

Jmg

Advanced Members
 View Profile  See their activity

  • Posts

    1,182

  • Joined

  • Last visited

  • Days Won

    33

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jmg

  1. Jmg
    Yeah I'm with you. A big proportion of the gluten bad stuff for me is happening in my brain. Horrible depression, brain fog etc. Other stuff is also internal, my eyesight, chest, back or joint pain, stomach cramps etc. I remember actually being happy when I got a rash after gluten, because there was a physical effect I could show people. to 'prove' it wasn...
  2. Jmg
    This is normal believe it or not, if anything in this condition qualifies as such... It's because its your immune system reacting, once it's not under constant attack it gets more vigilant for any trace of teh big G. Walkers crisps are definitely a no-no. I've seen multiple accounts of people being glutened by them, even the ready salted...
  3. Jmg
    Good luck! Remember not to cut gluten just yet, there may be more tests ahead. You could start a food diary though, just note what you eat and how you feel.
  4. Jmg
    I had lymecycline from this class for skin issues, it was quite effective, perhaps more at reducing than eliminating, but it did help. Perhaps you could ask your Dr if that or similar would be an option for you? I took probiotics during the course to try and minimise any effects on my gut bacteria also. I got what I believe to be DH (I'm not a...
  5. Jmg
    Yes! Yes! This one isn't quite as clear cut. You can't say that you've been diagnosed celiac because you've not given the medical community it's chance to diagnose. That said, it's only a white lie if you're saying it to ensure someone takes proper precautions when preparing your meal. My endoscopy for example, was negative for celiac...
  6. Jmg
    Well done for going. In your position I have in the past simply declined to go. So kudos to you for that. Congratulations also on asserting control over what you eat. You made your own judgment and backed it. That's really positive. If you were in doubt over their precautions you wouldn't have enjoyed the meal in any case as in the back of your mind...
  7. Jmg
    Don't worry! I understand exactly how you feel, been there also. The challenge period was really unpleasant for me and although I continued to eat gluten up to my endoscopy, I did wonder if I'd eaten enough - as it was making me so ill. I've no idea whether the gut is as quick to change from going gluten free as blood results can. What may be helpful to...
  8. Jmg
    Here's a few ideas (thanks for asking). 1. Ignorance amongst the wider population about the seriousness of Coeliac. It can get dismissed as fad diet, first world problems etc. In reality it's an auto immune disease with very serious potential symptoms up to lymphoma and early death. 2. Dangers of cross contamination. 'Don't be silly. It's only one...
  9. Jmg

    ARCHIVED Just to say...

    Jmg posted a topic in Board/Forum Technical Help

    A warm thank you, to the admin and moderators here at Celiac.com I know it's sometimes a thankless task, but it shouldn't be. This board is the single best resource I've found online for accessing support and information about Celiac. A lot of thought has clearly gone into the division of topics and the posting rules. It's a warm and welcoming...
  10. Jmg
    Lot's of good advice above. I can't say the science is definitive but google leaky gut and have a look at some of the recommendations around healing the gut: Open Original Shared Link Open Original Shared Link I think there's some good advice there for coealiacs. I don't know if you enjoy cooking, but I made a lot of bone broths when...
  11. Jmg
    It's funny, I'd just read your post, recognised so many similar experiences and replied and I almost included a link to this one, but thought, nah! the poor girl's got enough on her plate without reading all that I was and remain a little embarrassed about penning such a rant, particularly as many on these boards have it far worse. However it was helpful...
  12. Jmg
    You've found a great forum, the advice and help I got here was, and is, so important. Especially when you know people around you don't understand both the practicalities and also the emotional toll. I've had many similar experiences, for instance: Yup been there! Your shock, grief etc. is natural. Focus on getting yourself well, the good...
  13. Jmg
    Awol, why not post your comment in a new thread? You can get a lot of support and good advice on this board but I'm worried your post will get lost in Dylan's thread Best of luck to you also btw!
  14. Jmg
    Neither did I for many, many years. It was only after going off it that I realised just how sick I was. A lot of what I'd accepted as normal (for me) turned out to be anything but. Some similar to you, abdominal pains, chest pains, bloating, low energy etc. Lot's more too. Things which I'd lived with for so long that I no longer thought of them as remarkable...
  15. Jmg
    I feel for you. I get down about my own issues but I'm actually very lucky in what I can eat. One of the advanatages of low GI meals is you should't need snacks as much so manasota's post above looks interesting. I found this list: Open Original Shared Link How are you with eggs? They're super nutritious and filling. Without omelettes I'd be lost, they...
  16. Jmg
    Come back here when you try the diet because there's a lot of good advice and support to be had, you have found a good place Noting down what you eat and how you feel is very useful because you can soon forget how you were on a particular day. If you start very simple with only whole foods with no grains or dairy, a week of salads, veg meat fish etc.. you...
  17. Jmg
    It sounds like your blood sugar is spiking and plunging rapidly. In which case the bread and pasta is the least thing you need. Have you come across the glycaemic index diet? The idea is that you avoid spiking your blood sugar by eating carbs that take longer to convert to sugar. You also need to make sure you get a good proportion of protein in each meal...
  18. Jmg
    If you reach the end of the line with the doctor's and they conclusively rule out celiac, still give serious consideration to trying the gluten free diet. I had a negative blood test and endoscopy, but gluten has a profound effect on my health. I don't know if I'm atypical celiac (some test negative / require camera endoscopy, non celiac gluten intolerant...
  19. Jmg
    I have an omelette every morning and mix up the filling, different stir fried veggies, spinach, avocado etc. Super nutritious and can keep me going all day if need be. I went awhile after gluten-free before eating cereal and now I eat it with coconut milk, Tesco's own brand is nice enough. Maybe an option if you want to experiment with avoiding dairy...
  20. Jmg
    I'm British so I can't take part, but good on you for pushing the case for screening. Aside from the arguments you quote I'd bet there would be significant financial forces opposed to widespread screening. Large food companies, farmers etc. So there may be an element of politics involved?
  21. Jmg
    I think your Doctor is at fault for not making clear to you what you needed to do in the lead up to the biopsy. If dairy is the suspected cause and you've since cut it from your diet is it possible the biopsy could become invalid? You could end up having a pointless invasive procedure with the danger of a false positive/negative at the end. I think you should...
  22. Jmg
    Great advice above. It's not certain you were glutened and even if you were don't be hard on yourself. I do that way too much myself and it's not productive. Sometimes it will happen however careful you are. Whilst your healing, why not look into making bone broths? I make both soup and stock from them and they're supposedly very good for healing your...
  23. Jmg
    The puffiness in my face went down a lot after I went gluten free. Old photos shock me sometimes now! Your doctor should be able to test you for food intolerance? Here in UK I did tests for wheat, nut, mustard etc. You can do a blood test and there's also skin prick tests I think, am sure others here would know more. Good luck
  24. Jmg
    Here in the UK I can't eat Lay's owned Walkers crisps as even the ones without gluten ingredients can cause a reaction. I read it was something to do with their production processes. Looks like others have same problems too:
  25. Jmg
    Don't apologise! Not needed here at least where people know exactly what you're going through. As Cyclinglady says, you're now in a grieving process for the former, carefree attitude to food you've now lost. You may find this helpful in understanding the psychological journey you're on: Open Original Shared Link It WILL get better. Eating cleanly...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.