Valerie2622
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Valerie2622
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I'm waiting for a call back from my primary care doctor about going to the lab to check out my thyroid. I'm so happy to not be in pain and on the toilet all day lol Now if I could just get out of this brain fog and get a diagnosis. Well, let's put it this way: progress is being made after a year of winging it. At long last! -
I went to another farmers market today, this one is in my town. They sell the most amazing hummus ever! Aaand the orange cherry tomatoes are around this time of year so I got those too. Here I was thinking I would feel deprived because there wouldn't be much to eat. WRONG. My lunch today was stir fried chicken with rice and beets. A feast!
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They did the TTG Ab, IgA both times. Once a year ago, tested negative that time (9.35 reference 0-15 being normal). When they repeated it this year because I wasn't feeling any better, I tested positive this time (43.53 reference 0-15 being normal) I'm lactose intolerance but I didn't used to be. My vitamin D last year was so low that they put me...
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My GI actually specializes in motility disorders because that's what people thought I had (at first). Today will be my third day gluten free dairy free and since beginning the diet I have had absolutely no diarrhea or stomach pain. Those problems used to happen more than once a day. Wondering what else will change as I continue this diet. I like this change...
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UPDATE: Spoke to my g.i. docor's nurse today. They aren't too into the idea of genetic testing because they don't believe I have celiac disease since the endoscopy didn't show anything interesting. At the same time, they want to have a second opinion from another doctor. I don't know what that's about or when that will happen. The nurse really wants me to...
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ARCHIVED Hi- My Name Is Valerie :)
Valerie2622 replied to Valerie2622's topic in Introduce Yourself / Share Stuff
Thanks for the resources, LauraTX. That also makes sense about the pm's. Boston isn't too far from where I live and healthyvilli.org looks just as helpful Georgia_guy: I hope the support group you heard about turns out to be a great experience. I never thought of the newspaper- that's a good idea. As far as dating goes, that is going to be a struggle in... -
I see why gene testing is not the be all end all. I also don't want the doctors to have info to use against me when I try and get an official diagnosis, so hopefully I have the "right" genes. Hehe As far as the chocolate chip bars go, I made sure to substitute almond flour because today has been the first day going gluten free dairy free. I wonder if...
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I have a follow up appointment with my doctor on August 13th (it's difficult to get appointments with them, but when I call on Monday about genetic testing, I'll see if anyone has cancelled so perhaps they could fit me in sooner) This morning I spent two hours at Whole Foods, where I found many gluten free dairy free products. Day 1 is going well. I'm so...
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Hi everyone. My name is Valerie. I am a nineteen year old female and I will be beginning the gluten free diet tomorrow as well as going dairy free. After over a year of various tests and g.i. doctors, I tested positive for lactose intolerance and positive on the blood test for celiac disease. Since my colonoscopy/endoscopy was not as helpful as I was hoping...
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I can relate to your story- sounds like you have good reason to be frustrated. Don't let you frustration ruin all the progress you've made. You are feeling better so don't let anyone else tell you otherwise. :) I tested positive for the blood test that screens for celiac disease and I also tested positive in a different test for lactose intolerance. My...
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I was pretty sure that was the case about the genetic tests but I thought it would be a good idea to just make sure. Thanks so much, IrishHeart. Ooh, recipe ideas- sounds awesome!! When explaining to friends and people that aren't as informed, would it be appropriate to say I have celiac disease considering I do not have the "official" diagnosis yet? Either...
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I would adore having an "official" diagnosis because my parents would be much more likely to become "on board" with all of this. Support is important even though I know there will be people in my life who are skeptical. The video of Dr. Fasano fills me with hope that the waiting-for-diagnosis game that I've been playing could be over soon. It reminded...
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To all who have responded, please know that all your wisdom and willingness to help means the world to me. I sent my doctor a message asking them to please send me the pathology of the tests. Even if those tests do end up showing absolutely no damage, I can see how Celiac disease could still be what I'm dealing with. Especially since I've been having various...
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So for those of you who saw my previous post, I made sure to eat gluten before my blood test for celiac disease, which did come back positive. Therefore we moved on to the endoscopy and colonoscopy, which went smoothly. I made sure they would take enough biopsies of different places. Then the results came in, saying I'm "normal". I'm ninteen years old so...
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ARCHIVED Looking Forward To Answers
Valerie2622 replied to Valerie2622's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Update: the endoscopy and colonoscopy went smoothly. Results will be here in 7 days, so this Friday will be the big day! Thanks to all who have commented on this thread so far. I bought Gluten Freedom and it is a very insightful book- definitely worth every penny. -
ARCHIVED Looking Forward To Answers
Valerie2622 replied to Valerie2622's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Laura- I will absolutely look into the books you suggested. It's something to do while waiting for answers (though hopefully the doctors will be able to tell me Friday. Do the doctors sometimes make people wait until they have talked with other doctors or something?) To user001- I totally agree- Jennifer's Way was that type of book that hits so close... -
ARCHIVED Looking Forward To Answers
Valerie2622 replied to Valerie2622's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you so much for the reply- the number of biopsies is not something I had thought about. I'll make sure to check in with them about that. I'll keep people updated. I did go to a book store near me and I discovered a book called Jennifer's Way that talks about celiac disease. So I bought that and have begun reading it. Has anyone else ever read that... -
ARCHIVED Looking Forward To Answers
Valerie2622 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi everyone. I'm a nineteen year old female. A year ago I began to get lots of stomach pain, constipation, and diarrhea. I also experienced an increase in fatigue, anxiety, and depression. I also have autism, diagnosed at age thirteen. A few weeks ago I got blood test results that strongly suggested the possibility of having Celiac disease. My endoscopy...