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Latest Celiac Disease News & Research:
Everything posted by knitty kitty
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Interesting articles about Thiamine Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/#idm140604396876032title Shoshin Beriberi in Critically-Ill patients: case series https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4443551/ ...
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Celiac & Dry Eyes/Blurry Vision
knitty kitty replied to BNGed8's topic in Related Issues & Disorders
I thought this study was very interesting... It finds that Vitamins B1 (Thiamine) and B12 (Cobalamine) play an important part in alleviating dry eyes. Effects of Oral Vitamin B1 and Mecobalamin on Dry Eye Disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7508221/ And Omega Three fats can help, too... Omega-3 Essential Fatty Acids... -
There's a connection between low B12 and autoimmune Hives... Low B12 levels in chronic idiopathic urticaria https://pubmed.ncbi.nlm.nih.gov/15736714/ You might want to consider taking a B Complex supplement
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Bloating and abdominal pain even when not eating gluten
knitty kitty replied to Stevo's topic in Related Issues & Disorders
@Stevo, You might try the Autoimmune Protocol diet, a Paleo diet scientifically shown to help healing in the digestive tract. Cruciferous vegetables are notorious for producing lots of gas because they contain high levels of sulfur which is turned into sulfur gas by intestinal bacteria. (Hence that rotten egg smell.) Try eliminating cruciferous... -
Hi, Maureen! There are eight B vitamins, of which B12 is just one. The eight essential B vitamins all work together interdependently. You may find taking a B Complex that includes all eight B vitamins would be more beneficial than just the B12 shots. "Effect of thiamin deficiency on pancreatic acinar cell function" https://pubmed.ncbi.nlm...
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Are you aware that "Align" probiotics contain sodium caseinate, a form of casein, a protein in dairy products, to which your wife may be reacting? Casein has been shown to promote continuing inflammation in the digestive tract. Here's an informative article.... https://www.healthline.com/nutrition/sodium-caseinate Perhaps stopping the...
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glutening Celiac and Mental Illness
knitty kitty replied to Squiishtopher's topic in Coping with Celiac Disease
@Squiishtopher, @heidirae, and @Starrmomma, Supplementing with the eight essential B vitamins can help stop gluten cravings. Wheat products are required by law to be enriched with vitamins and minerals lost in processing. In other words, wheat products have vitamins added to them. Celiac Disease damages the small intestine where the B vitamins...- 17 replies
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Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
Jackie, That quote IS from research being done in this area. It's from this scientific study. Click on the link to read the full article. https://pubmed.ncbi.nlm.nih.gov/22081694/ Histamine is made as a result of fermentation so consuming fermented foods can raise histamine levels and bacteria in our gut can produce histamine as lactose... -
GPA IgG results
knitty kitty replied to Lotte18's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The AutoImmune Protocol Diet was developed by a doctor with Celiac Disease for herself and her Celiac children and others who have autoimmune diseases. The AIP diet has been scientifically proven to promote healing in the body. https://www.thepaleomom.com/start-here/the-autoimmune-protocol/ This diet has really helped me recover. I was astounded... -
Low libido without gluten
knitty kitty replied to Spherical Bird's topic in Related Issues & Disorders
Onions belong to the Allum family of plants. Allum plants like onion, garlic, shallots, etc. contain lots of Thiamine in the form allithiamine. Allithiamine is a fat based form of thiamine that gets into cells easily. https://www.science.org/doi/10.1126/science.118.3064.325?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub... -
COVID-19 a Possible Trigger for Celiac Disease in Those with Genetic Risk
knitty kitty commented on Scott Adams's article in Latest Research
I've found these articles to be most helpful. If we give our bodies what they need, they can effectively fight off infection. Be well: A potential role for vitamin B in COVID-19 Open Original Shared Link "As antibodies, and importantly T-cells, are required to eliminate the SARS-CoV-2 virus, thiamine deficiency can potentially result...- 70 comments
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GPA IgG results
knitty kitty replied to Lotte18's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello! What are you including in your diet? Are you taking any medications that might contain gluten as a filler? Do you eat processed gluten free facsimile foods? Have you been checked for vitamin and mineral deficiencies? Have you tried the Autoimmune Protocol diet? -
See if the new doctor will do a genetic test. Explain how severe your reaction to gluten is. I was the same way, could not eat gluten long enough, and vitamin deficiencies and diabetes caused wonky blood test results. One doctor ordered the genetic test to get rid of me. But it proved I have two genes for Celiac. So hang in there! Have you...
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Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
Jackie, Lactose breaks down into galactose and glucose, two sugars. https://www.livestrong.com/article/408258-a-description-of-lactose-and-lactase-reaction/ Lactic acid can be produced by lactic acid producing bacteria when they ferment the undigested lactose in dairy. These are the same bacteria that cause Small Intestinal Bacterial Overgrowth... -
glutening Celiac and Mental Illness
knitty kitty replied to Squiishtopher's topic in Coping with Celiac Disease
Here's some helpful reading... Nutritional therapies for mental disorders https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2248201/ And... Bread and Other Edible Agents of Mental Disease https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4809873/#!po=18.0556 And... The Role of Vitamins and Minerals in Psychiatry https://www.ncbi...- 17 replies
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Can you ask your doctor for a genetic test which looks for the most common Celiac genes? Doctors can be ignorant about testing for Celiac. If gluten makes you too ill to do the gluten challenge (6-8 weeks of gluten consumption for blood test, 2 weeks of gluten consumption for endoscopy), request genetic testing from your doctor. Some companies offer...
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Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
Jackie, Dairy does not make our bodies acidic. Dairy can cause continuing inflammation because dairy can trigger the same reaction in our intestines as gluten. Mast cells are part of the immune system. Mast Cell Activation Syndrome is when mast cells easily release histamine. High histamine levels make us feel ill. Avoiding high histamine foods... -
Low libido without gluten
knitty kitty replied to Spherical Bird's topic in Related Issues & Disorders
@Spherical Bird, You should continue taking your B Complex vitamins. It was probably the Candida infection making your urine cloudy, not the vitamins. A good rule of thumb is to drink eight ounces of water after urinating. Water in, water out. Drinking Cranberry juice is an excellent way to clear out Urinary Tract Infections. 7 Foods and... -
Terrible Neurological Symptoms
knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
Hector, Thanks for the update. Are you getting plenty of magnesium? Thiamine needs magnesium to help it work properly. You could try adding a magnesium citrate supplement. Other vitamin deficiencies involved with neuropathy include B12, B6 (pyridoxine), B3 (Niacin) and Vitamin C and the mineral Copper. Peripheral Neuropathy Due to... -
Thiamine Deficiency Causes Intracellular Potassium Wasting https://www.hormonesmatter.com/thiamine-deficiency-causes-intracellular-potassium-wasting/ And.... Safety of intravenous push thiamine administration at a tertiary academic medical center https://pubmed.ncbi.nlm.nih.gov/31932197/ Thiamine can be administered by iv in...
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Supplementing just choline could cause a substantial drop in Thiamine. Thiamine deficiency manifesting as gastrointestinal beriberi should be corrected first with high dose thiamine. And because the eight essential B Complex vitamins work together, a good B Complex supplement would be beneficial. There are sublingual thiamine supplements and liquid...
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@Wheatwacked, It's more important to fix the thiamine deficiency first because choline cannot be utilized properly without a thiamine derived component. This explains it..... Acetyl-CoA and acetylcholine metabolism in nerve terminal compartment of thiamine deficient rat brain https://onlinelibrary.wiley.com/doi/10.1111/j.1471-4159.201...
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Welcome to the forum! Sorry to hear your wife is having such a rough time. Her symptoms sound a lot like mine did when I had Gastrointestinal Beriberi, a manifestation of Thiamine deficiency. Here's some articles you can read and discuss with your doctor.... Elevated Lactate Secondary to Gastrointestinal Beriberi https...
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what is all about ?
knitty kitty replied to grumbleguts's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I found this article.... Celiac Disease Associated with a Benign Granulomatous Mass Demonstrating Self-Regression after Initiation of a Gluten-Free Diet https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5624261/ "...celiac disease can also be associated with benign small bowel thickening and reactive lymphadenopathy. These reactive changes do not...