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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. @HectorConvector, What is included in your diet? Any medications you are currently using? Have you been checked for vitamin and mineral deficiencies?
  2. You may be interested in this article about Autoimmune Hives. https://www.healthline.com/health/skin/autoimmune-hives
  3. They are not as small as my B12 capsules, nor are they as large as my magnesium supplements. Here's the Lipothiamine that is a very small slippery tablet.... https://www.pureformulas.com/lipothiamine-60-tablets-by-ecological-formulas.html
  4. You should have your doctor check you for B12 deficiency again and its intrinsic factor. Your MCV is high, that means your red blood cells are getting bigger like they do with megaloblastic anemia. And your B12 level is on the low end. Some people can experience B12 deficiency symptoms while their B12 level is still within "normal" limits. All those...
  5. "tetrahydrofurfuryl disulfide" is the special form of Thiamine that I take. This form of thiamine is called Allithiamine. Thiamine in this form can get into cells more easily. This is what I use.... https://www.pureformulas.com/allithiamine-fat-soluble-b1ttfd-50-mg-capsule-250-capsules-by-ecological-formulas.html?accountid=53000524&CAWELAID...
  6. There's a chemical in tomatoes called scopolamine. It affects your brain function, especially if you are deficient in thiamine. "Rats exposed to acute pyrithiamine-induced thiamine deficiency are more sensitive to the amnestic effects of scopolamine and MK-801: examination of working memory, response selection, and reinforcement contingencies" https...
  7. I found this study that describes common vitamin deficiencies found in autoimmune thyroiditis. The fat soluble vitamins, Vitamin D, Vitamin E, and Vitamin A, were found to be low, as well as deficiencies in the water soluble B vitamins Thiamine (Vitamin B1), Pyridoxine (Vitamin B6), and B12 (Cobalamine). Remember that the damage to the small...
  8. Ginger, Your diagnostic journey sounds like mine. Dismissed with Diabetes and mental health issues for so long, I gave up on doctors. Thiamine deficiency can affect antibody production, so I didn't produce enough antibodies by the time I was tested. But my DNA test shows I have two genes for Celiac Disease. I hope you can get the thiamine...
  9. All eight B vitamins and Vitamin C are water soluble. Any excess is excreted in urine. The Recommended Daily Allowance (RDA) was set up eighty years ago at the beginning of World War Two. Many of the men joining the army were so malnourished (during the Great Depression and the Dust Bowl years many people didn't have enough to eat), scientists set...
  10. Yes, thiamine levels in the body can vary every day. It depends how much thiamine you ate that day. Maybe one day you eat liver, full of B vitamins and minerals. Your body has a bigger supply of vitamins to work with and you feel better. The foggy brain lifts. The palpitations stop. The neuropathy improves. Blood glucose levels are good. But...
  11. @Ginger38, I was diagnosed with insulin resistance, prediabetes, and eventually Type Two Diabetes. I was prescribed Metformin. Metformin is supposed to make our body more sensitive to insulin and by doing so, our body's blood sugar level is lowered. Metformin is a bad drug, in my experience. Metformin uses the same transporters to get...
  12. I was diagnosed with insulin resistance, prediabetes, and eventually Type Two Diabetes. I was prescribed Metformin. Metformin is supposed to make our body more sensitive to insulin and by doing so, our body's blood sugar level is lowered. Metformin is a bad drug, in my experience. Metformin uses the same transporters to get into cells as thiamine...
  13. @MsssSqueaks, I know of one moderator who used to post that only tested positive on the DPG test. The DPG is frequently positive in children and is acceptable as a confirmation of celiac disease. I may be mistaken, but she had anemia, too. I'm familiar with B12 deficiency occurring after anesthesia. The nitrogen in the anesthesia (nitrous oxide...
  14. I'm surprised you didn't know, Scott. "Aspirin-induced gastritis and gastrointestinal bleeding" https://pubmed.ncbi.nlm.nih.gov/6499/ "Acute hemorrhagic gastritis occurs in from 50% to 70% of all patients taking aspirin, is not directly related to dose size, and can be severe enough to cause death in a few cases. No tolerance appears to ever...
  15. @MsssSqueaks, Pepto-Bismol contains aspirin, aka salicylates, which causes inflammation and damages gastric mucosal cells. You should reconsider its use. Is your doctor aware you are using it?
  16. High dose Thiamine improved my NAFLD and sluggish thyroid... "High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition" https://pubmed.ncbi.nlm.nih.gov/33608323/ And... "Thiamine and Hashimoto's thyroiditis: a report of three cases" https://pubmed.ncbi.nlm.nih.gov/24351023/
  17. Have you Googled the side effects of Carafate? constipation, diarrhea, nausea, vomiting, upset stomach, stomach pain, indigestion, gas, dry mouth, sleep problems (insomnia), dizziness, drowsiness, spinning sensation, headache, back pain Aren't these symptoms similar to what you have been experiencing...
  18. @Ginger38, I was obese and was always hungry. I had Thiamine deficiency and Small Intestinal Bacterial Overgrowth. The bacteria of SIBO can send chemical messages to the brain requesting more carbohydrates that they feed on. (Creepy, right?) Thiamine is needed to turn carbohydrates into energy. It's easy to eat more carbohydrates than...
  19. @Lyns5201 You may try removing potatoes from your diet for a while. Potatoes contain chemicals called solanines that cause leaky gut syndrome. Have you been checked for Small Intestinal Bacterial Overgrowth?
  20. @Lyns5201 Lysine is used to treat stomach ulcers. It promotes healing of the stomach lining. Have you been tested for a B12 deficiency? The intrinsic factor needed for B12 absorption is made in the stomach. B12 helps reduce that stomach lining inflammation. You may want to try a sublingual B12 supplement that dissolves in the mouth and...
  21. Since your husband's symptoms are reflective of Celiac Disease, and some people have low antibodies, an endoscopy would be warranted.
  22. Yes, I was given a PPI (proton pump inhibitor) but that only made my symptoms worse. PPI's can cause continuing inflammation and damage. Have your doctors prescribed you any medications? Yes, I think Celiac (no "s" on the end) and gastritis are linked. Yes, I have two genes for Celiac. In addition to the tryptophan, I take Allithiamine, a form...
  23. @Lyns5201, Yes, I've had gastritis. Endoscopy revealed small irritated spots in my stomach. My spots healed. I found that taking 1000 mg of Tryptophan helps me. Tryptophan heals the stomach lining and intestines. Our bodies can turn Tryptophan into other chemicals, serotonin and melatonin that also heal the digestive tract. Tryptophan...
  24. @deanna1ynne, What great questions to ask! 1. Going gluten free without having the genes for Celiac will not harm a person's health, as long as adequate nutritional needs are met. A person who adopts a gluten free diet before their Celiac genes are activated will not be harmed by a nutritionally adequate gluten free diet. Celiac Disease...
  25. @MitziTremblay, Welcome to the forum! While the dip may be gluten free, dairy and yeast can cause a reaction because they contain protein structures similar to gluten that the Celiac anti-gluten antibodies attack... Similar to the story of the three blind men and the elephant in which one blind man who was led to the elephant's trunk and said...
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