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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Yes, I believe it's two weeks of gluten before an endoscopy and six to eight weeks before blood antibody tests. Doctors do blood tests first and if positive, they do an endoscopy for confirmation. Blood tests can have false negatives, so an endoscopy might be done to see what else is going on. An endoscopy looks for damage to the small intestine...
  2. knitty kitty
    Beans would be counted as irritating, yes, because they contain Lectins which are hard to digest. The AutoImmune Protocol Diet is helpful in healing the intestines. It eliminates grains, legumes (beans), and dairy. Fresh veggies and grass fed beef mostly. Most doctors use endoscopy as the gold standard for Celiac diagnosis. Some can not do...
  3. knitty kitty
    Yes. Gluten damages the villi in the small intestine starting the immune response. The immune response can carry on for days or weeks. I've heard in simplest terms an exposure to gluten is like getting a carpet burn in your intestines and you wouldn't want to pour more irritating things on top of a carpet burn. So no spicy things, no alcohol...
  4. knitty kitty
    @Sam101, I experienced dramatic weight loss before my Celiac diagnosis. I lost sixty pounds in six weeks. I was finally diagnosed by a genetic test. I have two Celiac genes. I couldn't do the gluten challenge for a blood test because I would get so ill and had malnutrition which affected blood tests for Celiac. Celiac Disease damages the...
  5. knitty kitty
    Here are some interesting studies that you may find helpful.... "The role of thiamine in cancer: possible genetic and cellular signaling mechanisms" https://pubmed.ncbi.nlm.nih.gov/23893925/ "A very high dose of thiamine produces a growth-inhibitory effect in cancer." And... "High Dose Vitamin B1 Reduces Proliferation in Cancer Cell...
  6. knitty kitty
    @Ava B, Acid reflux (GERD) is another symptom of Thiamine insufficiency. Vitamin D deficiency is prevalent in children who lag behind on growth charts. https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-019-1840-4
  7. knitty kitty
    @Ava B, I recommend the book by Dr. Sarah Ballantyne, the Autoimmune Protocol Diet. She is Celiac with Celiac kids and designed the diet which has been scientifically proven to promote healing. The AutoImmune Protocol diet is what I followed and experienced rapid healing. The AIP diet removes dairy, grains, and legumes. Nightshades are also...
  8. knitty kitty
    @Ribbygirl6, I had menstrual irregularities before my Celiac diagnosis. I believe that being deficient in Vitamin D played a BIG part. Vitamin D deficiency affects your hormone levels. You must get your Vitamin D levels up by supplementing. Optimal level is above 75 nmol/l. Here's more information.... "Association between serum...
  9. knitty kitty
    The article I posted does mention Intrinsic Factor deficiency. Pernicious anemia occurs because the parietal cells don't produce Intrinsic Factor, hence Intrinsic Factor deficiency. Glad you found an article specifically stating oral B12 replacement works for pernicious anemia. Keep up the good research!
  10. knitty kitty
    Joanna, I'm so glad to hear you are taking thiamine and B Complex. My symptoms would fluctuate based on how active I was and if I was stressed. You use more Thiamine during activity and stress. If I felt not up to par, I would take more thiamine. I had to find the right amount for me. I took 1000 mg a day of Thiamine HCl at times. As my body...
  11. knitty kitty
    There's that big online store that starts with an A where I get mine. Thiamine HCl (thiamine hydrochloride) is very basic thiamine. NOW brand is what I started with... https://www.nowfoods.com/products/supplements/vitamin-b-1-100-mg-tablets I also take Benfotiamine, a fat soluble form of thiamine that promotes intestinal healing... https...
  12. knitty kitty
    You may want to discuss with your doctor the benefits of supplementing with a B Complex vitamin and high dose Thiamine. Thiamine is needed for digestion, to turn proteins, fats and carbohydrates into energy for the body to function. Symptoms of Thiamine insufficiency include fatigue and migraines. POTS (postural orthostatic tachycardia syndrome...
  13. knitty kitty
    @trents, I'm sorry to step in, but oral high doses of B12 can be used to correct V B12 deficiency. By taking high doses, the B12 can get into the cells by passive diffusion. (Passive diffusion is where something moves from an area of high concentration like outside a cell to an area of lower concentration like inside a cell.) ...
  14. knitty kitty
    B12 is just one of the group of eight B vitamins. You need to get Sue a B Complex supplement that includes all eight B vitamins. Just taking one B vitamin can throw the others out of whack. Get a B Complex with all eight B vitamins. Vitamin C and Vitamin D will help, too! Hope Sue feels better!
  15. knitty kitty
    Hi, @lehum, Keep in mind that Celiac Disease damages the areas in our intestines where vitamins and minerals are usually absorbed resulting in malnutrition. Taking additional B vitamins may be warranted. (Talk to your doctor.) That pins and needles feeling , neuropathy, can be a symptom of several of the B vitamins' deficiencies. Nerves need...
  16. knitty kitty
    In addition to a multivitamin, consider a B Complex vitamin and additional thiamine. Including nutrient dense foods like liver will help you get all those B vitamins and minerals.
  17. knitty kitty
    Yes, with thiamine deficiency the body burns fat stores and will also break down muscle to provide energy as well. The World Health Organization (WHO) states that a thiamine deficiency diagnosis can be made if a patient is given 300 mg of thiamine hydrochloride (thiamine HCl) a day for a week and notices improvement. Blood tests for vitamin deficiencies...
  18. knitty kitty
    @Ginger38, DH is pressure sensitive. I could go to the store and get DH blisters on the palms of my hands from pushing a buggy around. I've had DH under elastic every where you mentioned plus some. Try wearing natural fibers (cotton, linen, etc) that wick moisture away from the body. The heat and friction will be lessened. I doubt...
  19. knitty kitty
    Celiac Disease results in malnutrition because those flattened villi can't absorb nutrients, hence the weight loss. Dairy products can cause inflammation and damage to the villi just as wheat, barley and rye. Testing for vitamin and mineral deficiencies are part of proper follow up care for Celiac patients. Talk with the doctor about supplementing...
  20. knitty kitty
    @CoachJohnOK, Please stay and keep posting your questions. You don't need a diagnosis to learn about Celiac Disease. There's a lot to learn. Ask the VA hospital for a copy of their endoscopy report be sent to your doctor. The issues they found but couldn't explain need to be reviewed by a pathologist familiar with Celiac Disease. Perhaps your...
  21. knitty kitty
    I found an article that explains well how gluten causes inflammation.... Attack of the Gluten https://www.acs.org/content/acs/en/education/resources/highschool/chemmatters/past-issues/archive-2011-2012/gluten.html And an article on the difference in wheat flour and gluten content... https://healthyeating.sfgate.com/gluten-content...
  22. knitty kitty
    @PammaDawn, It's a big adjustment in how one thinks about food, absolutely! It can be scary, but you'll catch on quickly. I liked one pot meals when I was learning. Meat and veggies baked in the oven or stewed in a crock pot were my basics. Pretty boring, but easy, nutritious and gut friendly. Do check out the recipe section on our forum...
  23. knitty kitty
    Welcome to the forum! I found the AutoImmune Protocol diet by Dr. Sarah Ballantyne (a Celiac mom herself) very helpful. It's very conducive to healing. I found having a pot of stew of grass fed meat and fresh veggies very easy and handy to have on a back burner. Eating small frequent meals will help with digestion and keeping your energy up. ...
  24. knitty kitty
    Welcome to the forum! When do these sensations happen? I ask because I have similar weirdness when my blood glucose level drops suddenly. This happens sometimes when I might be sitting watching a movie for a while and abruptly get up and start moving around. It takes a few moments while my body adjusts to the higher energy demands, during which time...
  25. knitty kitty
    I vote for finding new doctors then.
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