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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by knitty kitty
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Combination of results and issues
knitty kitty replied to Tara90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I vote for finding new doctors then. -
Combination of results and issues
knitty kitty replied to Tara90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Would DNA testing for the most common Celiac genes be possible for you? If you've got the genes and positive serology, the doctors might be willing to take another look with an endoscopy, although some doctors will make a diagnosis of Celiac Disease with just the genes and positive blood tests. The damage to the small intestine is often microscopic... -
Cutting down on foods that are high in iodine will help keep your DH from flaring so badly. Instead of iodized salt, try pink Himalayan salt Avoid crustaceans, shellfish, seafood and kelp (nori). They are all high in iodine. Avoid dairy and eggs, too. These are high in iodine as well. Niacin, Vitamin B3, will help calm down your flares...
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So tired of being scared.Please help:((
knitty kitty replied to Sabaarya's topic in Coping with Celiac Disease
Try adding some Magnesium to help with the function of Vitamin D! Magnesium Supplementation in Vitamin D Deficiency https://pubmed.ncbi.nlm.nih.gov/28471760/ -
@CharlesBronson, You need to check the amount of carbohydrates you ate at each of those meals where your glucose levels stayed elevated beyond two hours. Adjusting the amount of carbohydrates at meals may help you keep your glucose levels down. And watch out for sugary drinks between meals. I kept a food/mood/poo'd journal to track my carbohydrates...
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I had to do some calculations because my meter is in mg/dl. I found these articles.... Diabetes.... https://www.mayoclinic.org/diseases-conditions/type-2-diabetes/diagnosis-treatment/drc-20351199 And... Prediabetes.... https://www.mayoclinic.org/diseases-conditions/prediabetes/diagnosis-treatment/drc-20355284 Perhaps...
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@CharlesBronson, Have you been tested for Diabetes? Diabetes is another of those autoimmune diseases that can occur with Celiac Disease. Frequent urination is one symptom of diabetes, so is excessive thirst. The body tries to flush out excess glucose through the kidneys when there's not enough insulin for glucose to get into the cells. Unfortunately...
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IBS & Possibly Undiagnosed Celiac Disease
knitty kitty replied to cricketboots's topic in Related Issues & Disorders
Yes, @cricketboots, there's definitely a link between Celiac, mental health issues and also nutritional deficiencies. "The Role of Vitamins and Minerals in Psychiatry" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3046018/#!po=10.0000 The vitamins and minerals discussed in this article are the very ones found to be deficient or insufficient... -
@Yvonne (Vonnie) Mostat, RN, Have you had your B12 level checked since you started having these symptoms? I ask because I've had the staggering and neuropathy after surgery, and medical and dental procedures where anesthesia was used. Nitrous oxide used in surgery with anesthesia can deplete Vitamin B12! The nitrogen binds irreversibly...
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Does more gluten = higher ttg?
knitty kitty replied to deanna1ynne's topic in Coping with Celiac Disease
"Predicting vital wheat gluten quality using the gluten aggregation test and the microscale extension test" https://pubmed.ncbi.nlm.nih.gov/33367286/ Looks like there's some variety in vital wheat gluten. Perhaps regular wheat flour would be more provocative of a reaction and higher ttg readings. -
Covid virus/vaccine triggering celiac
knitty kitty replied to Tintern21's topic in Related Issues & Disorders
There is some evidence that certain stressors such as vaccination, infection, emotional stress, and injury can precipitate a deficiency in thiamine. Diets high in empty calorie carbohydrates and fats contribute to Thiamine insufficiency. When a stressor comes, more Thiamine is needed, but if there's a shortage, Thiamine deficiency symptoms become apparent...- 30 replies
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So tired of being scared.Please help:((
knitty kitty replied to Sabaarya's topic in Coping with Celiac Disease
@Sabaarya, Continue taking your B Complex supplement. Ask your health provider to discuss the benefits of supplementing B vitamins, especially as regards these following studies. Taking Vitamin B6 (pyridoxine), folate, tryptophan and magnesium are the supplements I take (in addition to a B Complex) when I'm anxious. High homocysteine levels... -
So tired of being scared.Please help:((
knitty kitty replied to Sabaarya's topic in Coping with Celiac Disease
It is a peer reviewed study. But everyone has to decide for themselves what they want to believe. https://onlinelibrary.wiley.com/doi/full/10.1111/apt.13988 "Medication use and persistent villus atrophy Non-steroidal anti-inflammatory drug and PPI use was highly prevalent, with over a quarter of the sample listing medications within each of... -
Joanna, I took over the counter thiamine in the form Thiamine HCl (hydrochloride). Each tablet is 100 mg. https://www.nowfoods.com/products/supplements/vitamin-b-1-100-mg-tablets I took one 100mg tablet with each meal and snacks. I also took a daily B Complex vitamin that already had thiamine in it. Thiamine is safe to take even in large...
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Try getting more Thiamine (Vitamin B1) in your diet or supplement with Thiamine. Thiamine is needed to process carbohydrates, protein and fat into energy the body can use. In Thiamine Insufficiency, unprocessed carbohydrates feed intestinal bacteria causing bloating. Thiamine helps keep the bacteria in check and calms inflammation. Thiamine...
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@Joanna24, Welcome to the forum! Celiac Disease is a disease of malabsorption. Vitamins and minerals normally absorbed in the small intestine cannot be absorbed because of damage to the lining of the intestinal tract. Checking for vitamin and mineral deficiencies are part of proper follow up care. Your symptoms "slurred speech, difficulty...
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So tired of being scared.Please help:((
knitty kitty replied to Sabaarya's topic in Coping with Celiac Disease
@Sabaarya, Most antidepressants take between two to six weeks to start working. Have you tried eating a prune or two before meals to help with your bowel movements? Prunes are full of water soluble fiber that helps with digestion. Prunes can slow down diarrhea and bulk out so a better stool is formed. Have you been checked for Diabetes... -
So tired of being scared.Please help:((
knitty kitty replied to Sabaarya's topic in Coping with Celiac Disease
I was prescribed Lexapro and had increasing digestive problems. I did some research and found a study that shows NSaids, PPI's, and SSRI's cause continuing damage to the villi in our small intestine. "Factors associated with villus atrophy in symptomatic coeliac disease patients on a gluten-free diet" https://pubmed.ncbi.nlm.nih.gov/28220520/ ... -
Celiac and Mental Health Issues?
knitty kitty replied to AlwaysLearning's topic in Related Issues & Disorders
@Kate333, First let me say I agree with you wholeheartedly that "Depression/anxiety are VERY SERIOUS, REAL--often possibly life-threatening--medical conditions that deserve to be taken seriously." I think you misinterpreted what Mr. Adams was saying. The attitude of the physician can influence "patient fear/cynicism/reluctance to seek much-needed... -
@LovintheGFlife, Damaged villi in the small intestine can't make lactase, an enzyme that digests lactose (the sugar in dairy), so the bacteria further along in our digestive tract have a field day feeding on the lactose and making lots of gas. Nasty little partiers. Once healed, the villi may continue making the enzyme lactase. Some people are...
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@Smiller, I don't agree either. Supplementing while you're healing will ensure that your body gets all the vitamins and minerals it needs to repair your intestine so your intestines can absorb what you need much much sooner than dragging along with a deficiency for months or years. Doctors are not given much training in vitamins and minerals, so they...
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Restless leg syndrome has been linked to mineral deficiencies like iron (ferretin), magnesium and calcium, and also to certain B vitamin deficiencies like B12, folate, Thiamine, and Vitamin D. The B vitamins all work together and should be supplemented all together. Taking just one of the eight B vitamins can cause the others to get out of balance and...