irish11

Please help. Been suffering for 10 years prob DH...all the signs.. Been everywhere they say I don't Cant tolerate clothes can't work..blistering constantly both sides...lower back bottom thighs upper arms..endless scratching endless blisters. Who wil help. I give up ever leaving my house. No famIly. Every doc thinks I cause it. No...

forgot to add, they refill up the minute I get rid of them, in the same spot. is that typical?

I never see this as a symptom from others and wonder about it. Does anyone have balls of fluid under their skin that they can roll around? And are pushing their way out, thus forming the blister? I have burn and itch and balls that then squish right out, but they won't go back the other way. Blood comes out too lotsa times. And both...

what is the butterfly effect

Is it typical to have it run down both sides of neck and both sides of spine , down middle crack of scalp and on both eyebrows? Does oatmeal stuff come out? my doc thinks its pemphigoid...i still dont. I get full of liquid and i can move the liquid balls under my skin in the forehead or back for example....and the whole thing planes off when i push...

wow, thats interesting. I have a lot of cheese and chocolate, crud. What else is high histamine? besides milk products.......

Does anyone know if cellcept (immunosuppressants) aggravate DH or help it? I think I should stop them right now if they don't do anything. Maybe go back on pred for awhile (which I had weaned down to 5mg but im in too much pain and itch right now) cant get in to see my unfavorite doc till next week. where he will look at me puzzled and...

Thank you for your response:) Its been pure H for me these past few years, and I get angry at all the sideways avenues they have had me down. If they would just LISTEN to what you are saying as far as your symptoms throughout the day (not your 5 minute apt), then maybe with an open mind they can help you. But most of the docs appear not that way. ...

Hi there all. I was a poster here about year and a half ago I think. And you will not believe my odyssey. I am sick to my stomach with what I've been through, but I KNOW its DH now. I know for sure, with no positive test and nothing I can do about that. I remember squirmingitch was helping me a lot along with a few others and I could kick...

any good dh docs in california? a recommend please

Omigosh Laura Z. What you described , describes ME perfectly this past year. Perfect description of the scalp. That has been my biggest problem. And it increases late afternoon and night. I couldnt get docs to understand that a 9 am appt would not produce that for them. I have been through h and back. And I am right back to where i started. Its...

Hi Ravenwood. On april 23 it will be 3 months gluten-free. Today I was horribly blistered on my back again. I know its not gluten because I am so tired of it, I'm pretty much doing paleo diet right now. In other words NOTHING. no soy, no grains at all, no dairy...nothing....im existing barely on plain unflavored protein and fruit and veggies, and...

Hi there. Irish here. I finally got a real dapsone prescription and have been on it for about a week. My question is, is it normal for them to be squishing out as much as ever? Seems like they are softer now, not as hard, but continuing....I have been on 100 mg. for about a week. Maybe too soon? seems the face ones are better, and the back ones...

Well I'm here (having a very bad day)....but trying to keep my chin up (well the bottom part of my chin always has bumps ALL over, but the rest of my chin). My outings are over. And nothing much changed, ha. Thanks for all the help. Hi Scott. (good name, it was my brothers). I don't know quite what to make of this thing. Is it normal to...

Thanks so much guys...I will update in a few days...THANKS AGAIN....