Jump to content

SurreyGirl

Advanced Members
 View Profile  See their activity

  • Posts

    56

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by SurreyGirl

  1. SurreyGirl
    With you all the way AliB! The various conditions are probably a result of genetic variability. I am trying currently to understand what turns malabsorption into autoimmune diseases and so far leaky gut is one of the possibilities. And leaky gut can be caused by serious immune assault (the trigger, like serious illnes, vaccines or similar). But...
  2. SurreyGirl
    Here is my take on it, we are currently awg results of elastase and I am hoping that we have intercepted too much damage by going on the diet. It can be asymptomatic..(last paragraph). Open Original Shared Link
  3. SurreyGirl
    Hi from the UK!! When I put my son (age 15) on gluten free 2.5 years ago I knew no one in person either, we did it solely to see if his neuro symptom would respond (they did) and with no celiac disease diagnosis. Still the same now, but we know that he is is DQ1 (gluten sensitive) and I am now also gluten free to make it easier. The more I read, the...
  4. SurreyGirl
    I believe it all starts with gluten damage - and it doesn't have to be diagnosed celiac. My son is gluten sensitive (with neuro symptoms that have almost all disappeared now, 2 years + on the diet). We have recently discovered that he has low functioning pancreas and some of liver enzymes are also low. As far as I can see from observing him and from results...
  5. SurreyGirl
    if I remember correctly, the book Dangerous Grains mentions the link of celiac & lymphoma
  6. SurreyGirl
    no, there was a drug trial in UK that went badly wrong in 2006 Open Original Shared Link
  7. SurreyGirl
    thank you all, it helps to know just that little bit more, I will come back to report
  8. SurreyGirl
    My son (age 15), gluten sensitive is due to have a mole removed on the face and after much debating the docs decided to use gas. We are due to have a pre-op meeting in the next 2 weeks and op at the e/Jan. Does anyone have any experience of this? Will he be affected more (I think he might be) - or less? Of course I will be asking the docs in case...
  9. SurreyGirl
    From experience with my son I know that gluten damage can affect digestive enzymes, let alone cause multiple deficiencies. He is about to have tests for pancreatic enzymes as he has a symptom of deficiency, I also know that he has low stomach acid and quite possibly some low liver enzymes. You could maybe get some tests to check those? Or you could try...
  10. SurreyGirl
    thank you for mentioning this, spunky, I should have thought of it sooner!!
  11. SurreyGirl
    That is MOST interesting.. 2 year gluten-free and my son's test recently are still showing high billirubin and high blood urea... (explains the tan?). I have just been reading a book on nutrition and the author (Jan de Vries) talks about benefits of sweating when it comes to removing toxins, aiding liver and kidneys. Oh yes, and my son also has deficient...
  12. SurreyGirl
    Hi Meg I know this thread is quite old now, but I would like to add my recent discovery on this subject. My son (age 15, gluten sensittive with neurological symptoms that have receded in the last 2 years of being gluten free) had some bloods done recently to check how his deficiencies have improved. Some have, but we discovered that his free copper is...
  13. SurreyGirl
    I personally think that vaccines have a lot to do with triggering this in people who are genetically susceptible. Just like a severe illness, they overload immune system. After the trigger happens, it's impossible to go reverse it. Also, my dad used to work in the grain storage industry in Europe and recalls that when imported wheat was first marketed...
  14. SurreyGirl
    Sophie, great post! I would like to add that a few months ago I went to see Dr Hadjivassiliou with my son (due to ataxia). By then I had read many of his papers and other research, including from these pages. I had tears in my eyes when we met and I will be forever grateful to him for researching this subject and giving us his time. Before I found...
  15. SurreyGirl
    you say? Have you considered probiotics? The reason being that if you suffered some digestive disturbance in your gluten days, then almost certainly you disturbed healthy flora and might have overgrowths of unwelcome bacteria (there are many candidates; in my family members I have had experience of klebsiella (still ongoing) and h pylori and I suspect clostridia...
  16. SurreyGirl

    ARCHIVED Omega 3

    SurreyGirl replied to SandraB's topic in Related Issues & Disorders

    Thanks Nevadan, I agree with you in principle, although a really strange thing was that when my son was tested before any supplements, he was found to be omega 6 deficient and in low ranges of omega 3. As he doesn't eat fish, I can only guess that his omegas must have come from being almost vegeterian and/or some molecular/structural difference in absorption...
  17. SurreyGirl

    ARCHIVED Omega 3

    SurreyGirl replied to SandraB's topic in Related Issues & Disorders

    Hi Sandra Yes, Omegas were the first point , where my research started to take off, it was before gluten-free though. In my son (DQ1) it cleared up extremely dry skin and improved mental abilities, concentration and so on. I read "Fats that kill, fats that kill" by Udo Erasmus and then met him later. Although the book is technical in places, it reads...
  18. SurreyGirl
    Hi iluv.., welcome - and what a scary experience you have had! I have been recently reading a lot about immune complexes and this might help to add some input into what might potentially be going on (just ignore thyroid reference in the link name and look at the link): Open Original Shared Link You might want to search some more about these immune...
  19. SurreyGirl
    Hi JB, please look into a good magnesium supplement: magnesium deficiency can be linked to depression and with celiac affecting absorption of various nutrients, magnesium is also affected. Open Original Shared Link
  20. SurreyGirl
    Hi Heather You are not alone living in this "parallel" world. My son is 14 and whilst he had various symtomps all along, when he started getting neurological problems, I was so glad that I found out about gluten that we went on the diet overnight just to see what will happen - and the change was staggering. With all the blood tests inconclusive, I...
  21. SurreyGirl
    Hi Carla On a very similar subject, I have just read this book, really, really good reference, although not just about schizophrenia. In fact I am thinking to maybe consult this doctor because a lot of what she writes is relevant to my son. Open Original Shared Link The article pdf below the credits is a very short outline of what it's all about....
  22. SurreyGirl
    Hi all I think I am beginning to understand what's going on when we eat those food that cause sensitivities. Could it be that there is a further blood group connection? I am AB and don't suffer obvious symptoms, but my son (DQ1) has group O and gluten sensitive. He also has a natural dislike of the foods that happen to have most checks in the table...
  23. SurreyGirl
    hi Have you considered supplementing zinc? I have just read a brilliant book (sadly out of print) by Ellen Grant (Sexual Chemistry..), who points out at many occasions the detrimental effects of zinc and magnesium deficiencies. PS. My son is also gluten-sensitive (DQ1).
  24. SurreyGirl
    This makes sense! I have worked out about a third of it myself already, even though my son doesn't have an autism diagnosis, but I strongly suspect that he is gluten sensitive after the response to gluten-free diet. I have picked up on malabsorption of fatty acids and fat soluble vitamins, but unfortunately the nutritionist we saw only went as far as...
  25. SurreyGirl
    This is a very comprehensive resource, thank you shayesmom! What got me thinking is that I was reading how serious breaching the mucosal/skin barrier and injecting anything into the blood stream can be. Also the fact that many resources mention not only heavy metals but the reaction to the protein: many vaccines use egg culture or peanut derivatives ...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.