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Latest Celiac Disease News & Research:
Everything posted by CMCM
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I don't have the source for the "tolerance" explanation at this very moment, but I'll try to find it and get back to you. Basically, the essence of it was that the body struggles to handle things it perceives as "invaders", in this case, gluten proteins. If you are eating gluten, perhaps eating it lightly, the body is often able to overcome the body's...
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I really empathize with you in many ways. I have struggled with compliance since Nov. 2005. Briefly, I have a mom with celiac disease (diagnosed 40+ years ago), but since my own various symptoms weren't like hers, I didn't think I had the same problem. I thought for most of my life I had issues with dairy more than anything else. Now I know that my...
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The gluten free mixes that are chocolate or spice mixes etc. have strong flavors and really are very good. However, I've yet to find a good WHITE cake mix. My favorite dessert has always been white cake with buttercream frosting and I miss that so much. Has anyone come across either a mix or recipe that comes anywhere near tasting like the wheat based...
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We made 4 pies for Thanksgiving from a Gluten Free Pantry pie crust mix, and I have to say it was every bit as good as a "real" wheat pie crust. I was amazed, and non-gluten-free people didn't realize the difference! I'm not sure how the crust holds up to the next day because we ate all the pies.
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Thanks for the suggestions...I'll try some of these recipes next. I made the gluten-free Pantry one.....I think it would have made two huge pizzas, but as it was, I spread it out onto a very large pizza pan and it was enormously thick.....tasted good, but just too much crust as I was trying to make a Margarita pizza, which really needs a very thin crust...
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ARCHIVED Sanity Check: Validity Of Enterolab
CMCM replied to climbmtwhitney's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
About Dr. Fine.....about 16 months ago a local celiac group had Dr. Fine in to speak. Since I'd had the Enterolab testing, I was curious about him and went to hear his lecture and see what sort of person he was. I came out of the lecture feeling impressed with him and his knowledge and interest. I do not feel he is a quack, and his testing is mentioned... -
ARCHIVED Sensitivity To Other Foods After gluten-free
CMCM replied to lbd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
At the point where I got diagnosed, I felt like there was NOTHING I could eat without digestive upset, headaches or both. After 6 or so months gluten and dairy free, I realized most of the other things didn't affect me much, if at all, but only if I ate them occasionally and not daily. I am also casein sensitive, but I can tolerate a small amount of dairy... -
Have any of you made a good pizza crust? Gluten Free Pantry has a mix, is that any good? And overall, any suggestions for getting a passable gluten-free pizza crust made up?
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ARCHIVED Sanity Check: Validity Of Enterolab
CMCM replied to climbmtwhitney's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well, what seems to be discussed more and more these days is the idea of a spectrum of gluten sensitivity, the most extreme form being celiac disease on one end of the spectrum (and permitted to occur due to the presence of a specific celiac gene), and zero symptoms on the other end, with everything in between. Many people write that humans really should... -
I've had trouble for YEARS with this hacking, allergic type cough. When I was totally gluten free for a solid 9 months or so, the cough finally disappeared. Although I'm again totally and seriously gluten free (for the last 10 days only), my previous months of gluten cheating has left me with a bad cough again. I can never be totally sure this cough can...
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ARCHIVED Bloodwork Negative, Now What?
CMCM replied to julirama723's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I never tested positive either via a blood test. But my lifelong low-grade symptoms which I'd lived with for my entire life took a major turn for the worse 3 years ago, and I started reading up on gluten and celiac disease. My mom was diagnosed with celiac disease 40+ years ago, but my symptoms didn't match hers so I never took it seriously for myself. ... -
ARCHIVED Healing Now..but Why Do Non-gluten Foods Make Me React?!
CMCM replied to utahlaura's topic in Coping with Celiac Disease
When I did my testing for gluten, I also found out I was casein sensitive as well. I've been very resistant to eliminating dairy and in fact, I actually find it harder to avoid than gluten. When I first went gluten free, I was also dairy free for maybe 9 months. Then I added it back it in small amounts, and it didn't seem to bother me. I've found that... -
I've kind of concluded that I also have trouble with coffee. I buy freshly roasted beans from a place in Seattle, I grind it myself and have a cappuccino machine. I never have more than one small cappuccino daily, but I think I read that coffee can have a laxative effect and I certainly see that with myself when I drink it. I've cut out my coffee for the...
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ARCHIVED Child Of Parent W/ Celiac Disease
CMCM replied to djmom's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My mom has celiac disease (diagnosed 40+ years ago), and she was always told that probably one of her four children might end up with it too. Of all her children, I was the one with ongoing digestive woes. After I got gene tested thru Enterolab and discovered I have a celiac gene, my mom decided to see what her genes were. Turned out she has TWO identical... -
ARCHIVED Trouble With Dairy?
CMCM replied to IChaseFrisbees's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I spent the first 55 years of my life believing I had issues with dairy. For years I took Lactaid tablets, but it didn't seem to help. I learned to minimize dairy, but still thought it was just the lactose thing. Although I had a mother who was diagnosed with celiac disease when I was about 15, I didn't think I had it because I wasn't deathly sick the... -
ARCHIVED Is It Too Late For Me?
CMCM replied to miss vivian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
My mom was finally diagnosed at 45 or so. She nearly died, because this was the mid 1960's and hardly anyone knew a thing about celiac disease. She was truly almost dead of starvation, I think: 85 or so pounds, couldn't keep anything down, and doctors kept telling her it was "in her head." Finally, thankfully, she got a new doctor who asked her if she... -
ARCHIVED Gastritis And Gluten Intolerance
CMCM replied to DinaB's topic in Coping with Celiac Disease
I've found Bromelain (pineapple enzyme) to be very helpful to prevent gastritis type reactions. Certain things such as spaghetti sauce which frequently causes problems (too acidic??) I always precede with a Bromelain tablet and I think it helps a lot. the Now brand makes a good one, 500 mg., not too expensive. However, the most important thing for... -
ARCHIVED Results! Rewards Of Being gluten-free
CMCM replied to one more mile's topic in Coping with Celiac Disease
Let me see, what immediately comes to mind... Migraines gone Digestive woes ended joint pain gone sinus stuffiness gone asthma symptoms gone itchy skin rashes gone (face & ankles) nausea after eating gone heartburn gone cough gone more energy (continual tiredness gone) dizzy spells gone terrible bruising gone (bump into anything... -
ARCHIVED Wow, People Really Don't Get It...
CMCM replied to samcarter's topic in Coping with Celiac Disease
Most people do not care about or read ingredient labels. Most have zero idea what gluten is! Once in a restaurant I asked if a veal dish had any gluten product in it. She went to ask the chef, and came back telling me "No, it doesn't have gluten, it is only breaded with white flour." I'm reminded of my mother-in-law, who when we told her our son... -
ARCHIVED Questions
CMCM replied to wahmmy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Celiac is an elusive thing to diagnose in most cases. My mom got very sick at about 46 back in the 1960's...she eventually got so sick she was down to 85lbs and nearly died from malnutrition. Doctors were really clueless back then, and it was just luck that she finally encountered a doctor who knew about it. They did the biopsy and said her intestinal... -
ARCHIVED To Test Or Not To Test..
CMCM replied to Gina C.'s topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My mom was diagnosed with celiac disease 40 years ago. She was deathly sick at the time of diagnosis (it was very difficult to diagnose in the 1960's, most doctors were ignorant about celiac disease). She was at the time told that about 1 in 10,000 people might have celiac disease, and her 4 children were at risk but not that great a risk of having it too... -
Through a couple of years of experimenting, aside from the necessary elimination of all gluten, I also discovered I had to severely limit these things: 1) sugar, sugar, sugar.....I'm best off if I never eat it, period. 2) I'm very carb sensitive, and that includes fruit....I have to eat only small amounts, no more than 1x a day. 3) I don't do well...
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I was just browsing thru some magazine (can't remember which one) at the grocery checkout, and I saw a photo of Emmy Rossum, who was the lead in the Phantom of the Opera film from a couple of years ago. She was looking at box of something and reading ingredients, and they quoted her as saying she has celiac disease and can't eat wheat or gluten or certain...
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The new September Shape, in their "Live Healthy" section on page 104 highlights celiac disease..."What's really causing your upset stomach." It's just a couple of paragraphs and a photo, but it's prominent. Nothing new we all don't already know, but good for those who have no idea about it!
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ARCHIVED Packaged Breads Vs. Packed Mixes
CMCM replied to elmuyloco5's topic in Gluten-Free Recipes & Cooking Tips
I really don't like the pre-made breads, usually sold frozen. Horrible texture, not a good taste. I make breads in my bread machine (takes about 2.5 hours start to finish)....so far my favorite is the Pamela's bread mix. It comes out lovely, soft, pretty much a "normal" bread texture. My family absolutely loves it and gobbles it down. They'll eat the...