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CMCM

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by CMCM

  1. CMCM
    Well, I'm on day 20 without gluten and have felt much better the last couple of days. I've scrupulously avoided gluten for 20 days and I see a definite difference in how I feel. The last time I had the upper abdominal pain was 4 days ago on Thursday the 28th. I just got a new (to me) book called "Dear Gluten, it's not me, it's you" by Jenny Levine Finke...
  2. CMCM
    No, I've never tested positive on a blood test. Actually, I've only had one blood test, in 2015, also negative but not surprising since I'd been eating almost no gluten when I got the test and I knew that even then it was likely to be negative. My "positive" test was via the Enterolab stool test, for what that may be worth. They claimed they could detect...
  3. CMCM
    So my imaware.com test came in today and was basically negative. Out of 4 levels of likelihood for celiac, they gave me a "less Likely 5-25%" chance of having celiac disease, although they stated 5%. So yet again, I have nothing definitive to go on to figure out what is going on. I'm feeling somewhat better now that I'm 15 days without gluten, definitely...
  4. CMCM
    What is the PPI elimination withdrawal? Were you taking something on a regular daily basis?
  5. CMCM
    Always so many different possibilities, you never know for sure what to do I guess. What I'm thinking I have at the moment is some sort of gastritis. For awhile it was at the point where I thought there was virtually nothing I can eat. It's somewhat better now, but I have to be really careful. I'm eating a very limited group of foods right now. I already...
  6. CMCM
    I am currently having a big problem with upper abdominal pain after eating various things. This used to be sporadic, now it happens too frequently. I heard a discussion on the radio just last night suggesting that 6-9 mg. of melatonin taken once in the evening over 4 to 6 weeks can often get rid of the GERD type symptoms. Interesting.....I read a few articles...
  7. CMCM
    Convection definitely wasn't optimum. I only used it a few times, but as I recall things just didn't bake evenly or completely and it was harder to get the insides cooked right. I remember doing some things where the inside was still batter while the outside was overdone. The circulating air dried out the crust, I think. Later I read that convection was...
  8. CMCM
    I got a GE oven with a convection setting, but I quickly learned NOT to use the convection setting for baked goods. They didn't burn like yours did, but they didn't turn out right.
  9. CMCM
    My oven temperature was wildly fluctuating, mostly on the hot side. I couldn't safely bake anything anymore, most everything got overdone on the outside, raw or gooey on the inside. That forced me to get a new oven...finally! The old was was about 34 years old. It was cheaper to replace it than try to fix it.
  10. CMCM
    I've been thinking about my grandmother, who lived to 99. She obviously had a celiac gene to give to my mother. I'm not aware that she had any issues similar to my mother, but she did have severe arthritis from at least 80 onwards, perhaps longer. She did eat gluten, but perhaps not a lot of it. She grew up on a farm and mostly ate meat, potatoes and...
  11. CMCM
    To many people, "gluten free" is somewhat of a dietary fad. To a great many people it's a choice to avoid gluten, not a necessity. Many if not most restaurants who offer gluten free items have little to no idea about cross contamination. Most people unfamiliar with celiac disease and gluten really know less than zero about it. I remember being somewhere...
  12. CMCM
    I just posted about a restaurant I know about and love....they have been operating for a LONG time....two locations, and they seem very successful. They seem to have plenty of loyal customers. And they have survived 10 months of Covid shutdowns, too. It's not a tiny café....they bake all their own goods such as bread, cupcakes, cookies, pies....and then ...
  13. CMCM
    Great, 100% gluten free bakery & café in Roseville, California. They have wonderful sandwiches made with their own fabulous fresh baked baguette. Sample: warm turkey-bacon with tomato, avocado, mayo, mustard, peppercinis and lettuce. Their own potato chips. Lots of soups. Salads. Tons of exceptional baked desserts. Coffees and teas. Around ...
  14. CMCM
    I think this part in particular was interesting: Just nine of those diagnosed first-degree relatives had classic symptoms, 97 showed non-classic symptoms, and 42 showed no symptoms. So my lifelong expectation that I should react like my mother did in order to suspect celiac disease....was completely wrong!
  15. CMCM
    One thing I've observed with gluten-free bread type things is that a larger pan works better and it's hard if not impossible to produce a thick, high bread or cake type thing like you would get with wheat flour. When the loaf is very thick due to a smaller pan, gluten free batter doesn't cook as well in the middle, and to get the center part done enough...
  16. CMCM
    So all during this 3 months were you still eating gluten?
  17. CMCM
    Yes....what an embarrassing world record to hold, I'm ashamed of that, but part of my denial was in not wanting to claim I had something I might possibly not have. Denial is a funny thing, I guess. Actually, I haven't been totally in denial, it has been in my mind since 2006 or so, and I have hugely avoided gluten for a great deal of the time since then...
  18. CMCM
    Rebecca.....I do have the HLA-DQ2 gene, clearly from my mother, who had two copies of this gene. I've had issues my entire life, but nowhere near as severe as she did. I believe her celiac disease became debilitatingly active in the early 1960's after she had a hysterectomy, the surgery must have triggered it as it literally all began then. She got progressively...
  19. CMCM
    Cristiana....you got gastritis pain 2-3 WEEKS after your glutening, or did you mean 2-3 days???
  20. CMCM
    It doesn't seem that anyone can say with certainty what the risk is. I know in my family, it's all HLA-DQ2 (0201). My mom had two copies of it. She gave one to each of her 4 children. So I got one of the DQ2 genes and a different one from my dad that was supposedly linked to gluten sensitivity but not celiac. Both my son and my daughter got my DQ2 gene...
  21. CMCM
    Will do! I was re-reading my long ago purchased book "Dangerous Grains", which was published in 2002, and he mentioned that a new type of celiac test was coming that used a skin prick blood sample and which could be done at home. I wonder if this test I just ordered is exactly that! My test is supposed to arrive Wednesday, and I'll send it off right...
  22. CMCM
    GM doesn't give the "shared equipment" or "made in a facility that processes wheat etc." statements, oddly. However, I'm assuming that if they actually put the official gluten-free statement out there, they are held to a certain standard of making sure that is the case. It's odd that they make some of their cereals gluten-free, but not other, very popular...
  23. CMCM
    Interesting pillow, I've never heard of this before. Must you sleep on your back with it? Finding a good pillow has been an impossible task for me. Right now I'm using one of those "My Pillows". Not bad, better than most I've tried, but not perfect.
  24. CMCM
    I joined this site in November 2005. In early 2007 I wrote a long history about my celiac experience. Here's a link to what I originally wrote. SO......here is what has happened since then. I was very very good for a long while. Despite improvements in health and also learning through my gene test that I definitely have a genetic predisposition...
  25. CMCM
    I ordered the test, it should reach me by Wednesday the 20th.
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