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CMCM

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by CMCM

  1. CMCM
    Interesting. I was going down that road of testing for h pylori, but for some reason I didn't contact my doctor about getting a test. But as I said above, a very careful and limited gluten-free diet seemed to solve the problem, so I'm assuming it was not h pylori after all but rather, just a gluten inflamed stomach and upper intestine, which a limited...
  2. CMCM
    I had extreme nausea, also rather a lot of vomiting in my first several weeks of gluten free. Through recommendations of taking the Benfotiamine (form of thiamine) that I got HERE on this forum, I've been taking it daily and no more nausea! That makes me think I was probably very deficient in thiamine.
  3. CMCM
    Yes....and I was interested in Enterolab's method because Dr. Fine said they could detect antibodies up to a YEAR after you last ate gluten. However, the existence of such antibodies isn't sufficient to specifically diagnose celiac disease, but it is enough to show gluten sensitivity is a factor in your system and it COULD be celiac disease. All the...
  4. CMCM
    I'm a person who can "sort of" tolerate gluten for varying periods of time. I've been either strictly or "mostly" gluten free for the last 15 years. After a year strictly gluten free about 14 years ago, I was so much better that I deceived myself that the problem wasn't real and I got sloppy and careless and had a tiny bit here and there. I got away with...
  5. CMCM
    Your doctor is misinformed. You need only ONE celiac gene to get celiac disease. Also, having one gene doesn't automatically mean you WILL get celiac disease. What is true is that having two celiac genes can perhaps make it more likely and also the severity of your reaction can be worse. This was true of my mother and my nephew, both of whom had two celiac...
  6. CMCM
    Your suspicions about celiac disease have led you here, so I assume you have been researching this to some extent. You COULD certainly spend a fortune trying to pin down a definitive diagnosis from doctors and expensive tests, but the "prescription" solution would end up exactly the same if you have either celiac disease or merely gluten sensitivity: you...
  7. CMCM
    Very interesting what you say above. I knew about the longer exposure being necessary for blood tests, but didn't know about the biopsy being a shorter time potentially. However, you still have the issue of villi damage being spotty rather than widespread in many cases, and I've read that even with a biopsy sampling 5 different spots it could still be missed...
  8. CMCM
    I most recently (starting end of December) was plagued by a bunch of symptoms at once due to eating gluten when I shouldn't. Severe vertigo, followed by a week to 2 weeks of mild sporadic dizziness, but in particular a severe flare-up of what I assume was some sort of gastritis. Terrible pain, the worst I've ever had from this (which has always been sporadic...
  9. CMCM
    Same here....vertigo and dizziness. Also....I remember I once heard or read that people can be attracted to foods they are allergic to or intolerant to....I don't know if that's actually true, but it sure seemed true to me. I used to love cereals such as Weetabix, Shredded Wheat, Grape Nuts, Wheat Bran and other similar wheat based cereals, and when...
  10. CMCM
    Things really are so much better now! When my mother was diagnosed in 1967, her doctor said "Don't eat any wheat/rye/barley." That was was the extent of his advice. There were zero gluten free foods in the stores, zilch. No internet existed to find recipes. Gluten free baking had not yet evolved at all. About 10 years later she found a cookbook of some...
  11. CMCM
    I ordered a gene test from Enterolab. More recently, I ordered a blood panel from imaware.com (link from this site, I think). They sent it quickly, and when I took the test (finger prick, blood drops into a tube that you send back), I was about 8 days without gluten, although prior to taking the test I'd actually not had much if any for a couple of weeks...
  12. CMCM
    For a long time I was convinced I needed a positive blood test (both tests I've had at different times were negative) and possibly a biopsy to learn positively whether or not it was celiac. My recent reading on this subject has led me to the conclusion that it doesn't matter. I like having had the gene test so I know for sure that I have a celiac and a...
  13. CMCM
    This happens to a lot of us. We figure out that gluten might be the problem, we go gluten free, we get much better, and then the blood test panel can't be done properly. Here's a way you might want to proceed: Get a gene test to find out if you have the celiac gene and/or gluten sensitivity pattern genes. That will at least tell you that you have a predisposition...
  14. CMCM
    Thanks for the flax seed oil suggestion. Any recommendation for which brand, and are amounts the same as with fish oil? I'll check out Tryptophan and L-Theanine.
  15. CMCM
    I got really sick the other night after having a fish oil capsule. I've had trouble with them before, and also after eating fish.....although not always after fish, so it's frustrating figuring out what is causing what. I definitely can't take a fish oil pill on an empty stomach. I hate having to mostly avoid fish and fish oil...don't see any other choice...
  16. CMCM
    Could you post ingredients? Also...any statements on the label about being made on either shared equipment with gluten or in a shared facility?
  17. CMCM
    I read this article in a newspaper, then looked to see if it was available online. Worth reading for those who suffer with GERD. https://brandonlagreca.com/blog/2020/10/01/reflux/
  18. CMCM
    I'm trying to figure out why I sporadically (although not always) seem to have problems with fish oil capsules. I buy a very high quality one (Carlson) and have had enough reactions that I'm really suspicious of the pills as being the problem. I'll add that my reactions don't happen every time. I've learned I have to take them with food....taking one on...
  19. CMCM
    I agree with the above info! I had the worst imaginable GERD in early January (unbelievable pain like being stabbed with a knife or something), and I was at the point where I felt like I couldn't put anything at all into my stomach. I have omeprazole that I've used for emergencies and not on a regular basis, but it wasn't helping. Long story short, on...
  20. CMCM
    I would also ask this: If gluten makes you so sick that you don't even want to eat it daily for 6 weeks for a blood test, isn't your solution already that you can't eat gluten? Once you learn about what gluten can do to you whether you are sensitive to it or celiac, it kind of doesn't matter which one it is.....you can't eat gluten any more and should avoid...
  21. CMCM
    I think the people who have shorter lives never figure it out, sad to say. Casein sensitivity is often linked with gluten sensitivity. I had terrible problems with milk once my mother stopped breastfeeding after a short time, and I couldn't tolerate milk from infancy. I also read recently that a celiac mother (as mine was) can pass on the sensitivity to...
  22. CMCM
    I'm thinking probably not. There is probably more to know and understand than is currently known.
  23. CMCM
    I have read that many researchers think there is a great deal more to be discovered about who gets celiac disease and why, perhaps other unidentified genes or factors, but for now, it is believed that to get celiac disease you need one of the two celiac identified genes of HLA-DQ2 or DQ8. As for 23andMe, I don't know what that test uses to claim to identify...
  24. CMCM
    Sadly, getting diagnosed with celiac disease and going gluten free doesn't always solve all the problems. I would make a guess that you likely regularly eat one or more other foods (or perhaps many foods) that are keeping inflammation active even in the absence of gluten. Dairy is often a co-offender that goes along with gluten sensitivity, so you might...
  25. CMCM
    It's a mystery to me as well. You'd think this would be strongly within their area of concern. I had always read that celiac was more easily diagnosed by a dermatologist if your symptoms manifested as DH (dermatitis herpetiformis). This happened with my son, and he went to so many dermatologists who NEVER came up with the idea of testing for DH, they apparently...
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