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CMCM

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by CMCM

  1. CMCM
    Good news for you! But first the story: My mother nearly died from undiagnosed celiac disease in 1967. Most doctors knew virtually NOTHING about celiac back then. One doctor thought she might have tropical sprue, but when she said she had not gone anywhere in the tropics that doctor lost interest. She got worse and worse, and they insinuated it was all...
  2. CMCM

    Rice? !!!

    CMCM commented on Geoff01's blog entry in Geoff

    Rice is starchy. I've found that I have a LOT of problems with starch in general....potatoes, rice, and I have issues with the gluten-free baked goods due to their use of various starchy ingredients (potato starch, tapioca starch). I can get by if I eat only small amounts of starchy things, but if I eat more than just a little bit or if I eat such things...
  3. CMCM
    Canyon also makes a line of breads made with wheat. I see them in Whole Foods, sitting very close to the gluten-free line, and the wrappers look quite similar. I've almost bought them by mistake.
  4. CMCM
    People have mentioned self administered test kits....are they accurate or reliable? If so, can anyone recommend what is good and where you might get them?
  5. CMCM
    You get one gene from each parent. You could get a celiac gene from your mother, but a non-celiac gene from your father. However, if you get a celiac gene from each parent, you are a double celiac. In my family, my mother and my nephew are both double celiac, and both get extremely sick immediately from any gluten exposure including an imperceptible...
  6. CMCM
    Well, I had numerous blood tests for celiac yet I never got a positive reading. Same with my son. I eventually got a stool test from Enterolab which they claimed showed evidence of celiac reactions....I've never known how reliable Enterolab's test is as it has been disputed, BUT....I then did the gene test and learned I had my mother's celiac gene plus a...
  7. CMCM
    I think it varies from person to person. My mother was a double celiac and if she got even a smidgen of cross contamination in something, her reaction would be within the hour of eating it and she'd be horribly sick for a couple of days. For me, I can feel sick fairly quickly, but sometimes my reaction can be 4 or 5 hours later. My son gets a reaction...
  8. CMCM
    My mom!!!! She nearly died from celiac because it hit her in her mid 40's, back in the 1960's. She got to the point where she weighed 89 lbs (her normal weight would be 115 or so). Her intestines were smooth as a billiard ball, they said. Anyhow, luckily she met a doctor who had encountered celiac and suggested she get tested for it, and that was it...
  9. CMCM
    Oh yes, me too....always the middle of the night. This went on sporadically for years and years! Of course, when I stopped eating gluten, this stopped as well!
  10. CMCM
    I've had trouble for YEARS with this hacking, allergic type cough. When I was totally gluten free for a solid 9 months or so, the cough finally disappeared. Although I'm again totally and seriously gluten free (for the last 10 days only), my previous months of gluten cheating has left me with a bad cough again. I can never be totally sure this cough can...
  11. CMCM

    Bad Experience With Dr.s?

    CMCM replied to a topic in Doctors

    I have questioned doctors over the years, but it was obvious they knew NOTHING....hardly even what test to order!!! A few years ago I had blood tests (not even the correct ones) and a couple of doctor visits and I found out NOTHING...but ended up paying more for this than the Enterolab test cost. The fact is, doctors don't know everything about every...
  12. CMCM

    Bad Experience With Dr.s?

    CMCM replied to a topic in Doctors

    GO NINI! I agree 100%!! It really puzzles me why so many people just think a doctor must know EVERYTHING, when it is obvious they do NOT. In their defense, how could they? But what I take issue with is a lack of desire to FIND OUT when they are faced with a puzzling patient with symptoms they can't figure out. And if ALL OF US can figure out so much...
  13. CMCM
    Every so often, maybe once a week or once every couple of weeks, I simply will NOT be able to get to sleep at all. I will be awake all night long. My body might feel tired, but I just can't seem to fall asleep. Sometimes I just lay there, sometimes I get up and do things, read, watch TV, do whatever, but then maybe at about 5:00 or 6:00 in the morning...
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