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CMCM

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by CMCM

  1. CMCM
    How many mg per day is effective for you?
  2. CMCM
    What amounts do you find works for you? And do you take potassium at all?
  3. CMCM
    I went through a period of time a few months back where I was getting excruciating leg cramps at night. For a long time I would take a potassium pill when that happened and in general, it helped calm the cramps after about 30 minutes. Later when I started more regularly taking my slow release magnesium, I didn't get the cramps again except very occasionally...
  4. CMCM
    Magnesium CITRATE? How about Magnesium Chloride? Reason I ask, I've had difficulty taking magnesium, but on a doctor's recommendation I found a magnesium called Slow Mag, which is a slow release type and interestingly, it hasn't given me any problems like the others.
  5. CMCM
    I've had terrible dairy issues my whole life. My mother told me as a baby when she stopped breastfeeding (I don't think she breastsfed me long) and gave me cow's milk, I couldn't tolerate it. My dad had to walk around with me all night because I wouldn't stop crying. Eventually I was able to tolerate goat's milk, but I don't know more than that or for...
  6. CMCM
    Interesting info Posterboy. However, that cholesterol test with the suddenly lower HDL was done back in September, BEFORE I went gluten free again. There was another oddity in my tests....I'm thinking it was a higher red blood cell count which my doctor remarked on, but she hasn't really followed up on it. I'm going to request another bunch of tests in...
  7. CMCM
    When my mother was fairly close to death at age 46 (1967) due to malabsorption (her endoscopy revealed an almost complete lack of villi, her intestines looked like a billiard ball she said), virtually no doctors knew a thing, although one of them asked if she had been in the tropics or Africa...thinking tropical sprue. In fact, a whole series of doctors...
  8. CMCM
    What you said about too much focusing on gluten is what I've thought about a LOT. I grew up with a celiac mother and keeping her gluten free was a big issue in my family. My mother hated it, I did too. Certainly it affected how I ate for some of my teen years. Since I didn't have her severe digestive manifestation, I thought lucky me, I'd escaped it...
  9. CMCM
    I'm beginning to think if you find one family member with celiac, you'll find many more if you go looking for it. My mother was first, terribly sick before her diagnosis in 1967, which given the lack of knowledge at that time, was a miracle that she was diagnosed before she died of malnutrition. Many years later in 2006, I got a gene test done and found...
  10. CMCM
    As always, I am still stranded in diagnosis limbo, but what propelled me back into seriously taking another look into a possibility of being positive for celiac was a sudden and severe attack of vertigo that woke me up one night in late December, followed by a couple of weeks of sporadic dizziness, vomiting and nausea. This happened to me once before in...
  11. CMCM
    I've been reading the above comments with interest. I've pretty much always had high cholesterol readings and it's clearly familial. My HDL has almost always been nicely high (70's and 80's) until my last test, which showed up as the lowest I've ever had, something like 47 I think it was. My LDLs have always been bad to terrible, although my doctor started...
  12. CMCM
    More than the Bob's oats not being gluten free, I would guess you are one of the people who are also sensitive to the oat protein as well. Most people with celiac disease can tolerate the similar avenin protein in oats, but some cannot. My mother was highly sensitive to gluten, and she didn't dare eat any kind of oats. I can't decide about myself, but...
  13. CMCM
    It makes me so angry when I hear about doctors like this. I remember so well how the clueless doctors who couldn't seem to diagnose my mother (in 1967!!) would keep telling her it was all in her head, like she was crazy. One of them told her very arrogantly, "Well, we'll just have to call this Dorothy's disease, won't we." Meaning basically, go away and...
  14. CMCM
    Just thinking about allergy and food reactions....my son (now 35) has a very severe reaction to peanuts, in addition to being celiac (which we didn't know until about 8 years ago). He had his first reaction to peanuts when he was about 3, so we did a lot of allergy testing at that time (skin prick type tests). I remember the allergist telling us that with...
  15. CMCM
    The ALCAT test sounds interesting. Are you doing a home kit that you send in? If so, which one are you doing? I was just looking on a site called cerascreen, but they had 3 different tests. One for food allergy, another for food sensitivity + allergy tests, and a third (most expensive) one called Extensive food sensitivity & allergy (238 foods).
  16. CMCM
    Several years ago my doctor suggested I try a prescription vitamin combo called Metanx, described as this: Metanx is a prescription medical food made by Alfasigma that contains L-methylfolate, methylcobalamin and pyridoxal 5'-phosphate. It is a vitamin B supplement. Metanx is indicated for the dietary management of peripheral neuropathy. They claim...
  17. CMCM
    The usual digestive woes. Also neuropathy in both feet, which is already feeling a bit better. When all this started again Dec. 28, I had vertigo, then dizziness for a week after that, nausea and vomiting at that time, terrible upper abdominal pain with anything I ate, the worst I've ever had, nausea, and even now I feel a bit queasy when I first wake up...
  18. CMCM
    This is all so frustrating to figure out, as you well know. For the time being, in addition to being gluten-free and dairy free, I'm not eating oatmeal either, even though it's a gluten-free product. Some people appear to also react to the oat gluten, so I'm not taking chances. I have been eating cream of rice with banana and blueberries (not every day...
  19. CMCM
    I'm a bit past 5 weeks gluten and dairy free, and feeling enormously better now (day 37) but I'm definitely not there 100% yet. I'll be interested to see when I feel consistently great, but I think it will be awhile, perhaps months. There were only small, incremental improvements for the first 3 weeks or so, then about week 4 I began to really notice how...
  20. CMCM
    I was just reading about the idea of molecular mimicry in Tom O'Bryan's book "Autoimmune Fix" and I can't decide what I think about it. Some of what he described makes sense, but overall it seems like it's still more hypothetical rather than settled science. As one example, he said 50% of those with celiac disease also react to corn....and he claims the...
  21. CMCM
    They got the cookie just right. Thin, nice and crispy, chocolatey. I don't know how they did it. I've tried oreo knock-offs from other gluten-free brands, but I never liked them at all. Well, we've gone through a couple of packages just to indulge, but now I have to stay away from them for awhile. Too much sugar and starches too.
  22. CMCM
    Just scored a packet of the gluten-free oreos. Amazing, just like the "real thing". My son hasn't had an oreo in over a decade, and he was in heaven tasting one again.
  23. CMCM
    I know I'm sensitive to rather a lot of foods. Nightshades, cruciferous vegetables, I think I have fructose intolerance because of how more than just a tiny bit of fruit can make me feel sick. At this moment in time, I've gotten to a point (again) where I feel like almost no food agrees with me, but I know from past experience that after a period of time...
  24. CMCM
    I've FINALLY abandoned the idea of getting a "definitive" celiac diagnosis for myself to be convinced. I never seem to test positive on a blood test, but I now understand the limits of that test anyway. I've had symptoms my whole life that I didn't connect with celiac because they weren't like my mother's symptoms (which I thought was the norm and the only...
  25. CMCM
    My adult son's first manifestation of celiac was actually in the form of DH, which not a single dermatologist ever suggested as a cause, they were all clueless. I didn't really know much about DH either. My mother was diagnosed with celiac disease in 1967, and she had the classic symptoms so that is what I was familiar with and figured you had to have....
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