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DonnaD

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by DonnaD

  1. DonnaD
    Hello, I just got my Enterolab results. I would really appreciate any feedback regarding the actual numbers and the genes, i.e do you have the same and if so what symptoms do you have? I must say that I projectile-vomited as a baby and my health has been downhill pretty much since, IBS-C, Fibro, Chronic pain syndrome, RSI, irritable bladder, sleep...
  2. DonnaD
    Hi Rachel Wow, I discover a new symptom every day on this board! This is really odd, I also have a problem looking people in the eye, I always look down or over their shoulder into space behind them, I'm famous for it! Does anyone know what causes this??? ?? I seem to remember that It wasn't so bad when I was doing 'Atkins' for a year or so...
  3. DonnaD
    Hi Wendy I'v googled it, and it could be a possibility. My feet are not cold all the time just not in proportion to the temperature i.e. I always have the heating turned up to 20c. - I'm in winter woolies and my daughter is walking around in a t-shirt... I guess it is one more test to add to my ever increasing list when I visit my GP!
  4. DonnaD
    I'm happy to help, if I find any other links/info I'll post them. Merry Christmas! Donna
  5. DonnaD
    Yes, 5-6 times a week, I usually do 15 mins on my treadmill and 15-30 mins on the crosstrainer (this really helps my knees and I am much better at getting upstairs now) I also do 'Alexander physio' for 15 mins, this is mainly lying on the floor with my back in the correct position and a book under my head to lenghten my neck (although my dowagers hump isn...
  6. DonnaD
    I'm a bit new to this myself and don't live in London but I do visit from time to time. The last resturant we visited was Open Original Shared Link and most of the menu was fine for me. My husband had phoned ahead explained I could not have gluten and it was not a problem at all. London is full of people who don't eat carbs! I had a quick look for you...
  7. DonnaD
    " Help! I am interested in knowing if it is possible to have negative blood test results but still have the disease. " Yes my daughter's blood was negative although they only ran IgA Tissue transglutaminase and serum Iga and did some RAST tests for wheat, milk, eggs which were also negative. We were a wheat free household because of my IBS. She could...
  8. DonnaD
    Please can someone tell me the exact tests I need to ask for. Mr GP normally orders the absolute minium but I have a 'real reason' to ask to be tested for various things now that my D has just had her celiac disease diagnosis . So which actual tests for Thyroid, anemia, diabeties should I ask for? I do actually take a LOT of high strength vits, and feel...
  9. DonnaD
    Thanks Pauliina, I'll 'bablefish' it tomorrow.
  10. DonnaD
    I have looked up reynaud's but I'm not sure if that fits my cold feelings what exact symptoms do you get Jenvan? Barbara, I have been checked for thiroid 2 years ago and was told it was 'normal'I think they only did one test and understand that false negatives are common. I have made an appointment with my GP and will ask to be retested for thiroid...
  11. DonnaD
    I am sitting here with really cold feet! They feel a bit numb but have a strange tingle! Once they have got this cold the feeling starts travelling up my legs to my knees. My hands are also cold but not as bad as my feet. I have fibro and have always been the 'cold' one. At work I was famous for sitting almost on top of the radiator. I was always nagging...
  12. DonnaD
    Does anyone live in France? We re planning to move next year. Here in the UK my 11yo is dx coeliac and gets bread etc on prescription. I am waiting for my entrolabs results but suspect I am G intolerant. Any info/advice on being coeliac in France would be really helpfull.
  13. DonnaD
    I think my daughter may have been having migrane headaches after reading the posts on this topic. Her symptoms are: Pain above her eyes, feeling sick, seeing 'tetrus' type bricks in many colours falling down over her eyes even when they are shut. The first one a few months ago scared her to death and she had a terrible panic attack. She has to be in a...
  14. DonnaD
    My D was positive by biopsy, neg bloods. I have fibro and ibs, joint problems, sleep issues (same as my most of my family) and am so much better on the diet. we also had a low gluten diet 'cos of my IBS. What jaw problems do you have? I grind my teeth have loads of fillings and have one tooth that fractured and abcessed and had to have root cannaled and...
  15. DonnaD
    I have a dowagers hump, and a lot of back /neck pain and all my problems started after the jabs. I am going to get bone density scans done and see if I have a problem. My daughter who is coeliac was born after I started the jabs. I'm waiting for my Entrolab results.
  16. DonnaD
    I also have a pain in this area although mine is more a 'cramp' type pain since i was 16. It goes away unless I get gluted. My sister also has the same pain and we both have been dx as 'IBS & fibromyalgia'. I hadn't had it for ages and just could not resist apple and almond tart in France 2 weeks ago, such a mistake!
  17. DonnaD
    My daughter was so much better in 5 days. she had terrible headaches for 2 days and was very volitile but now has settled down a lot. She has grown 2cm in 6 weeks, and is off all her motillium, zantac, etc meds.
  18. DonnaD
    Hi Jennifer, I don't post much as I'm new and still on a steep learning curve But I just had to reply to this. Yes, I did have Depo, I just phoned my GP to check and certainly had it from Dec 94 to at least Dec 95 and possibly before 1989 and after '95 I cannot be sure as it is so long ago and the receptionist was busy. I was slim and fit once...
  19. DonnaD
    I'v just made rice crispy mars bar cakes, (supposedly gluten free) but my 11yo is still very 'off the wall' what do you other parents do? Her sister 16yo is starting to really resent the extra attention. L has been really volitile and hard to live with. She is really tired and going to bed early (she has always needed lots of sleep) I feel that she...
  20. DonnaD
    Hi everyone, I'm a UK mummy too, I live near Cambridge. My 11yo daughter was dx by repeat biopsy last month. Her initial biopsy was inconclusive. I was told to feed her gluten for 3 weeks before the repeat which due to holidays was actually 6 weeks later. Her bloods were all negative. (I don't know which ones were done or the actual results yet I'm going...
  21. DonnaD
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