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DonnaD

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by DonnaD

  1. DonnaD
    Has anyone any experience of having these 'shots' for celiac? Any information or reasearch would be helpfull. This treatment has been suggested to a friend as a treatment instead of the gluten-free diet but I cannot find any details. My own daughter is doing really well gluten-free and is growing like a weed!
  2. DonnaD
    I wonder if any of you other Mum's can help? My sister (almost certainly G intolerant or celiac and gluten-free) has a baby (6lbs 11ox 3 weeks early, skinny and jaundice) who from birth has had terrible colic, does not settle, hardly sleeps he looks in pain, it is very hard to get any wind up. He was on formula as my sister could not feed him. He has...
  3. DonnaD
    Off at a tangent a bit: Did anyone go to Dr Fine's (Enterolab) convention in March? He was supposed to be publishing research data on his teting methods. The e-mail address I had for them is bouncing back so I would appreciate any info. I remember somone saying that they were going but can't remember who! Thanks Donna
  4. DonnaD
    TSH of 5.28 is certainly too high. Mine was 2.96 and my GP refused to do further testing so I paid myself and got also got adrenal testing done (as poor adrenal function can further depress thyroid function) and posted the results on Open Original Shared Link for advice . I consulted a 'top doctor' on their list and he confirmed what I had all ready worked...
  5. DonnaD
    Plse see Open Original Shared Link where I have just posted re this subject and my daughter. Sorry rushing to go out!
  6. DonnaD

    ARCHIVED Vision

    DonnaD replied to whitball's topic in Coping with Celiac Disease

    in a rush sorry,whitbal! My daughter had optical migranes with aura on gluten and was dx dyslexic just after her celiac dx in Nov 05.(words blurry on page hated reading, some ADHA symptoms). Post DX, and on 2 x 100mg fish oil twice a day and berocca (high dose multi vit) Oxford University Dyslexia research unit found she is no longer dyslexic, reading...
  7. DonnaD
    I have fibro too and have learned so much from Ursula and other kind souls here. I have spent the last 6 months (and £ks..) on testing, doctors, vits and sups, hours online. I only realised the link to celiac when my daughter was dx last year and saw that so many of us here have FMS too. A great site for FMS/CFS Open Original Shared Link The ...
  8. DonnaD
    Just to add that the sore hot dry lips (do the corners of your mouth crack too?) seems to be caused by a lack of B vits caused by the malnutrition that goes with celiac . This and mouth ulcers affected my little girl for years and we never knew why. she takes 100mg fish oil and a Berocca (high dose multi vit) and hasn't had either problem since being gluten...
  9. DonnaD
    I'v had a whole lot of very odd lab results recently including very 'low normal' thyroid results for free t4 and free t3. and Adrenals packing up and a liver failing to detox something! All with a 'normal' Tsh of 2.96, then 1.4. My body temp is usually only 97f. I'm seeing a doctor next week who treats adrenals, thyroid with Armour after I had a self...
  10. DonnaD
    Oddly enough - Itchy ears was a question my new diet doctor asked me today with regard to yeast/unfriendly bacteria overgrowth. Getting tested ASAP. I get through loads of q-tips!
  11. DonnaD
    You are not the only one I did Enterolab testing (see signiture) after my daughter was Dx celiac by biopsy last nov and I realised that so many of my health issues, Ibs, Firbomyalgia, heartburn, constipation were caused by Gluten not just wheat as I had always thought. (She is IgA deficiency her were falsse negativenegative. I don't either and was not...
  12. DonnaD
    Calling all you scientific bods, I am not sure if this is the right place, mods plse move it not. I have just had some really 'abnormal and unusual findings' results back on this test, I won't post the entire results as they are very long . Bottom line is that I have been exposed ,at some point, to a 'fairly high molecular weight organic-chemical that...
  13. DonnaD
    Hi Blondie I'm in the UK too, also got and IBS label at 16 or so, although I had C rather than D. I also struggled with an ever increasing list of foods to avoid after getting the york tests done. Only last year when my daughter was biopsy dx coeliac did I reaslise that Gluten was my problem too! Now gluten-free and have normal BM, less pain (I have fibromyalgia...
  14. DonnaD
    Hello, been busy recently so havn't logged on much. A while ago I posted my thyroid results and have just received my 4 x saliva adrenal test results: If any of you can shed a bit of light I would be grateful. I am 100% gluten-free and df now. I still feel exhausted, fat and 'down' most of the time. I know that adrenal problems can cause hypothyroid symptoms...
  15. DonnaD
    My daughter (11 at dx) went from 50th to 3rd centile after 3 months old when I started mixed feeding. Really terrible nappy rash. Odd feeding , would live on pretty much bananas only for a few weeks, baked beans only etc, looking back all the foods were gluten-free and DF. Obvious milk intolerance (caused asthma, asthma went away within 2 days of DF) tummay...
  16. DonnaD
    I've done 2 days now and feel great! no 6pm munchies.
  17. DonnaD
    I'v just finished it. It is interesting, when I eat inbetween meals, even healthy fruit etc, I get the 'binge' trigger big time, if I don't eat inbetween I feel much, much better. I'm going to re-read the major points and then go shopping for fish!
  18. DonnaD
    Welcome Radman, Might I ask what your field is? I'm also a Mum of a celiac child and am gluten intolerant myself. I too wish there were more doctors like you! So here is my (rather long) view of the testing question. In the UK the system is that as a biopsy proven celiac, gluten free staples are available on prescription. Also it is impossible...
  19. DonnaD

    ARCHIVED Amazing Stupidity

    DonnaD replied to floridanative's topic in Doctors

    My Mums GP said that she didn't have any gluten problems, I KNOW she has. I also printed out the tests needed, her GP did none at all, said there was no point. Her generation were taught never to question the doctor so end of story. Following advice here about obtaining written test results I have found that when the receptionist read out 'normal' to me...
  20. DonnaD
    Saw it!
  21. DonnaD
    This is the test that I did, its called Gut Permeability Peg 400 Test It isn't expensive mine was £42.
  22. DonnaD
    "Leptin is a powerful hormone produced in fat cells, in control of ALL other hormones in the body. It is essential for survival, guiding the proper response to starvation and use of energy throughout the body. Key signs of a leptin problem include: uncontrollable sugar and food cravings, late night eating, stress eating, weight gain around the middle, inability...
  23. DonnaD
    I have just finished the book 'Mastering Leptin' and am thinking of giving it a try. Has anyone tried it gluten-free style? Any tips?
  24. DonnaD
    I take 2 x 25mg tabs at night for insonia otherwise I only get 3-4 hours sleep. I will have to check mine.
  25. DonnaD
    I gave up soy about a month ago and my chronic pain is 50% less. I used it as dairy gives me asthma and had lots more when I left work. I think it may have caused my possible thyroid problems. What tests/results symptoms do you have Ms sillyak? Thanks for the links. Donna
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