Jump to content

DonnaD

Advanced Members
 View Profile  See their activity

  • Posts

    131

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by DonnaD

  1. DonnaD
    Hi Chap I felt 50% better overall gluten-free, but still had some issues with, Ibs, heartburn, bloating,Sinus, irritable bladder, chronic pain back/neck/shoulder, brainfog, depression, Fibro, low energy level, concentration. A couple of weeks ago I also cut out, all dairy inc goat, (caesin intolerance), soy, nighshades veg, eggs, citrus, wine and felt INCREDABLE...
  2. DonnaD
    Open Original Shared Link There are some good posters, press releases, letters, ideas for displays at the Doctors. based on the '1 in 100 theme'. Donna
  3. DonnaD

    ARCHIVED Noisy Knees?

    DonnaD replied to DonnaD's topic in Related Issues & Disorders

    Judy I havn't had then x-rayed yet, my rheumatologist sort of 'dismissed' it as irrelevant as he was more interested in the Fibro, hypermobile joints, shoulder impingement and tennis elbow at the time. Pain clinic were more interested in keeping me full of amytriptyine (+ 20lb) Physio just wanted to tell me off for poor back posture! I'v just had a...
  4. DonnaD

    ARCHIVED Noisy Knees?

    DonnaD posted a topic in Related Issues & Disorders

    Does anyone else have really loud crunching noise from their knees, worse going up stairs. I have had various different doctors tell me different things, from nitrogen (or hydrogen can't remember) bubbles to being un- fit (1 do 1/2 exercise a day), I can walk up stairs faster now but still sound like i'm 100! I had similar noise from my neck for years...
  5. DonnaD
    Gluten sensitivity as a neurological illness 'Figure 1 Brain MRI of a patient with gluten ataxia showing rapid onset of cerebellar atrophy over a period of 15 months before the diagnosis of gluten ataxia.' Open Original Shared Link and Visual disturbances representing occipital lobe epilepsy in patients with cerebral calcifications and coeliac disease...
  6. DonnaD
    I also have brain fog. I had to stop working. It started 2 years ago along with the Fibromyalgia, inability to stay asleep at night. Although I have had odd health problems Ibs, chronic pain, since I was a baby. On the ellimination diet the brain fog dissapeared in about 5 days and I suddenly had LOADS of energy,but came back as I accidentally gluted...
  7. DonnaD
    hello i am only 11 me and my mum were reading your story and nearly cried. i have some of the same symptoms in my family. my mum has got lots of help from this forum for me and for her. as she had a similar story. L.xx
  8. DonnaD
    No problem! I have learnt so much from everyone here that it is good to be able to repay the favour!
  9. DonnaD
    My daughter has just been dx dyslexic and she is a lot better gluten-free than she was before. She seems able to concentrate more now and has less visual disturbance when reading. We both have terrible short term memory problems, messy bedrooms!, It did actually say on her Assessment ' can be forgetful and her ability to maintain concentration is poor. this...
  10. DonnaD
    It just so happens that I was reading a magazine at the doctors the other day about this, I'v looked it up for you on google They sound like Tonsil Stones. Open Original Shared Link The tonsils usually appear like small, dimpled golf balls set on either side of the back of the throat. Children with large tonsils and deep crypts often get food...
  11. DonnaD
    I am getting married too, in October 06 in France. There will be lots of gluten-free, DF, WF, and other allergies to cater for as well as vegitarians so I'm expecting a lot of headaches! I'll probably make my own cake, just with gluten free/milk free top layer. Donna
  12. DonnaD
    Thanks Theresa I had forgotten to track this topic so have only just seen your postings. We were in Toulouse last week looking at schools. The headteacher assured us that the celiac wasn't a problem, there are some forms and a proceedure(obviously as it is France!)The school canteen can organise a gluten-free meal or she can come home for lunch. They...
  13. DonnaD
    Yes my 11yo did, just below her belly button and occasionally in her back/kidney area, and a reflux. they found celiac 'by accident'. She was on 50th centile at birth and dropped to 3rd at 3 months. she was 128cm tall and only 25Kilo (about 50ibs) She was better within about 5 days gluten-free but did have a lot of withdrawl symptoms. I hope this is...
  14. DonnaD
    Hi Susie, Welcome you are SO in the right place I also have Fibro and am 28lbs overweight. I didn't realise Fibro (and other neurological symptoms)are connected to celiac disease/gluten until my daughter was diagnosed and I found this wonderful board. I am 42 and the only time I remember being really well was 5 years ago when I 'Atkins' dieted very...
  15. DonnaD
    I have heard that hyper aggitated feeling described as 'tired but wired'.that fits me! and I notice it much more now i'm gluten & dairy free when I accidentally slip up. Donna
  16. DonnaD
    I have fibromyalgia & Gluten sensitivity My daughter: celiac disease My Sister Dx Fibro & Gluten sens My younger sister ? Same symptoms as me at her age. My Mother rheumatoid arthritis My Dad, Motor neuron - not sure about this being auto immune Aunt (mum's sister) Rheumatoid A. died of ovarian cancer. Uncle (mum's brother) died of leukemia...
  17. DonnaD
    In My family: Daughter: DX Coeliac Me: Gluten sensitive - Enterolabs Dx Father of DX daughter: Alopecia, GI symptoms. blood tests (Ema only I think) Neg (falsly I think) Sister 1: Exactly same symptoms as Me, been gluten-free too long to get meaninful blood/biopsy. her son: 'Hyper' floaters, allways hungry, strange vascular anomoly in bowel. Getting...
  18. DonnaD
    We have this in our family. Mine got so bad I would get up 3-4 times a night and my colleagues in the office used to make jokes about how many times I went to the loo. (about every 30 mins or do). I had a bladder scan, tests for cyctitis and other tests over the years, all negative. My sister is also gluten sensitive and has the same problem. Interestingly...
  19. DonnaD
    We had the tests and she does have 'Moderate Dyslexia', "Short-term memory and phonics cause the most problems Significant reading difficulty. Very weak at Maths. Strongest element is Verbal, and she's only just average in that. " She is in the second highest stream for English and maths at (2 of 4) her school, god help the poor kids in 3 and 4!...
  20. DonnaD
    I'm still learning too. It is very interesting that this topic caught my eye. Tomorrow we are taking our daughter to be checked for dyslexia because the optition doesn't know why her vision is blurred when she reads and wants to rule out dyslexia before referring her back to the Eye Clinic at the local hospital. What is the actual effect of the perkinje...
  21. DonnaD
    Hi Theresa Eating out in France is hard! I love the markets, it is one of the things I am really looking forward to when we move. We are moving to Toulouse where abouts in France are You? I love the markets and am looking forward to growing more organic vegetables in the better climate. Are you celiac or Gluten free or a family member? I am especially...
  22. DonnaD
    In our family at least Milk=Asthma (we actually cough a lot and only weeze when really ill) None of us need our inhalers now! Milk is 'mucus forming' , I just didn't realise that Dairy intolerance was linked to Gluten until I found this site and started researching symptoms after my daughter was dx with celiac disease. Donna
  23. DonnaD
    Hi Packard You are lucky you stumbled on the answer so quickly. I read that the average time taken to get a dx of celiac disease is 11 years and 15 doctors! for me it was all of my 42 years, rheumatologists, renal specialists, surgeons, pain clinic, de-nervation,physio x 5, 100s of doctors and I only realised what the cause of my problems were after...
  24. DonnaD
    Hi Christine YES ALL THOSE THINGS CAN BE CAUSED BY CELIAC! - My daughters main symptoms were stomach pain which started periodically, headache (which I now know to be migrane) nauseia after eating. She was also very tiny, on the 3rd centile. She could not tolerate milk, it gave her asthma. She often had odd aches and pains in her legs. After 2 courses...
  25. DonnaD
    My knees make a awful 'crunching' noise when I go upstairs, and I find climbing stairs quite tiring, my legs feel weak above the knee. I originally thought it was because of weight gain and moving to an office without stairs, but then I was dx with fibro. My kness were the least of my problems at that point! They are much better now that I use a 'cross...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.