RiceGuy
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Latest Celiac Disease News & Research:
Everything posted by RiceGuy
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ARCHIVED Bipolar? Need Advice.
RiceGuy replied to crimsonviolet's topic in Related Issues & Disorders
I am one who also would refuse drugs. I know they aren't the right answer. But everyone is different in their personal beliefs, and I think it would be ill-advised to simply take anyone's word on the issue, even that of a doctor. Having multiple opinions and perspectives should be helpful. That said, I can attest to the value of supplements on neurological... -
ARCHIVED Abbreviations ?what Do They Mean
RiceGuy replied to Mizzo's topic in Board/Forum Technical Help
Well, there can sometimes be more than one possible meaning. For instance, DH can mean Dear Husband, or it can mean Dermatitis Herpetiformis, which is a skin condition related to Celiac. The context of where it is used should tell you which it is. However, DS usually means Dear Son. I don't believe I've seen HS though. -
ARCHIVED gluten-free Diet Isn't Working Anymore
RiceGuy replied to Teddy's mom's topic in Coping with Celiac Disease
Having additional intolerances or allergies show up later is very common. However, there may also be gluten sneaking in someplace unsuspecting, such as CC from foods produced on shared lines or in shared facilities, shampoo, cosmetics, or skin/hair care products. Foods prepared in pans which are also used to prepare gluten-containing foods may be a source... -
ARCHIVED B12 Supplement vs ADHD Medication?
RiceGuy replied to LadyCyclist87's topic in Coping with Celiac Disease
I strongly recommend a sublingual methylcobalamin form of B12, in a lozenge/tablet, NOT liquid. 3-5mg daily can make all the difference in the world, however, it may take time depending on how low your levels really are. Also, never accept a test result of "normal". Get the actual numbers for everything tested. And keep in mind that B12 testing is not as... -
ARCHIVED Made My Decision
RiceGuy replied to shaleen's topic in Parents, Friends and Loved Ones of Celiacs
Congratulations on making the right choice! You have given your child a whole new and far better outlook on life! -
ARCHIVED Confusion Over Bread Crumbs!
RiceGuy replied to Cheryl-C's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Each individual reacts differently to gluten. I suppose it may be that even though your diet hasn't been 100% gluten-free, it's in considerable contrast to your previously gluten-filled diet such that you can feel the difference. You may also have a wheat allergy, and in that case the reduced amount of exposure would also provide some relief. I think you... -
ARCHIVED So Overwhelmed! Where Do I Start?
RiceGuy replied to kbjoseph's topic in Coping with Celiac Disease
Here are some resources for you: Safe and unsafe ingredients: /celiac-disease/safe-gluten-free-food-list-safe-ingredients-r181/ Gluten-Free recipes: https://www.celiac.com/categories/Gluten%252dFree-Recipes/ Welcome! You've come to the right place for answers. -
Whenever I've had bread fall after baking, it was due to too much liquid. I've also found that fats tend to make breads fall or not rise so well, thus I never use fats in breads. Fat tends to defeat the binders. This seems to be one reason why gluten-free bread recipes with fatty ingredients usually contain a fair amount of eggs. As was stated, you may...
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ARCHIVED B12, Neuro Issues Question
RiceGuy replied to StacyA's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Great! So glad that's settled! Another nutrient which is involved in neurological function is folic acid. That may be worth investigating as well. If all the major nutrients are in good supply, the only other thing which I suppose might be a factor is a yeast overgrowth. However, the symptoms aren't quite an obvious fit, so I'm not really confident... -
ARCHIVED B12, Neuro Issues Question
RiceGuy replied to StacyA's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I believe the following more than substantiate the dosage I suggested. Here's a study showing benefit from 60mg of methylcobalamin every day for six months: Open Original Shared Link Two studies showing benefit from 25 and 50mg of methylcobalamin: Open Original Shared Link Open Original Shared Link Here's a study showing benefit from what they... -
ARCHIVED B12, Neuro Issues Question
RiceGuy replied to StacyA's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
OK, though I have some doubt that B12 could encourage one type of cancer while fighting others. I think it is interesting that StacyA's serum level would test as high as it apparently has, given the oral B12 dose of only 6mcg. From what I've read about B12, the immune system, and so forth, it wouldn't surprise me if the body itself is driving up the level... -
ARCHIVED Pancake Recipe Help?
RiceGuy replied to waterlily-'s topic in Gluten-Free Recipes & Cooking Tips
I've found that fats and starches don't work well for pancakes. At least not for me. And only a tiny amount of a binder is tolerable, any more and they'll be gooey inside no matter how long they're cooked. While I'm not a big pancake fan, I find buckwheat flour works quite well. You can find plenty of buckwheat pancake recipes out there too, as they are... -
ARCHIVED B12, Neuro Issues Question
RiceGuy replied to StacyA's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks. Well, I didn't find a lot more. In fact, I didn't find any more of that sort. But I did find some where the conclusions seem to suggest no correlation between elevated B12 and increased cancer risk, or maybe even a benefit against cancer, if I'm understanding the scientific jargon correctly. Perhaps you can glean more from these than I can. Does... -
ARCHIVED Have Any Opinions About B12...?
RiceGuy replied to Kim27's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
OK. I thought I recalled a conversation of this sort, but wasn't sure whom it was with. I wonder why a shot would contain a sugar-alcohol? A weak preservative perhaps? Weird. -
ARCHIVED My Skin Smells Like Smoke!
RiceGuy replied to GlutenFreeManna's topic in Coping with Celiac Disease
The first thing that comes to my mind is something you're eating. Try not having the coconut aminos for awhile, and see if the odor fades. Perhaps it is due to leaky gut. I had noticed an unpleasant skin odor during the time I had leaky gut, but only detectable on the back of my left hand (I'm right-handed). -
ARCHIVED I Stumble Around Like A Drunk Sometimes.
RiceGuy replied to Pyro's topic in Coping with Celiac Disease
The things ravenwoodglass mentions seem worth considering. Some things which I know can cause motor nerve problems include nutrient deficiencies, such as magnesium, vitamin B12, vitamin D, and zinc. All B vitamins would also be on my checklist of things to look into. Candida overgrowth is known to cause neurological problems, so I wouldn't rule that... -
How about legumes? There are a wide variety of beans and lentils to choose from, and of course peas too. Grains like teff and amaranth are also high in protein, though not as much as legumes. Lentils have the highest amount of protein of any legumes I'm aware of, and they require no soaking, and cook fast. Especially the red and yellow ones. Legume flours...
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ARCHIVED Have Any Opinions About B12...?
RiceGuy replied to Kim27's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Interesting. Was it a tablet/lozenge, or a liquid? Was it methylcobalamin, or some other form? I'm wondering if perhaps the reaction might have been due to some other ingredient in the supplement. -
ARCHIVED Have Any Opinions About B12...?
RiceGuy replied to Kim27's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
There is quite a bit of info on the role of B12 in nerve health. So I'd say those symptoms could very likely be related to B12 deficiency. Although there are probably other things which can be involved, given your test results, it would not surprise me if those issues resolve once the deficiency has been taken care of. -
ARCHIVED B12, Neuro Issues Question
RiceGuy replied to StacyA's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've found absolutely no credible source of information to back up this statement. Nothing on PubMed, nor any other authoritative source. A few odd & end sites/forums make similar statements, but no credible, reliable sources to back them up. Do you have a link to something on this subject that is trustworthy? -
ARCHIVED Have Any Opinions About B12...?
RiceGuy replied to Kim27's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Just to be clear, Intrinsic Factor is needed to begin the digestive process of B12 from food. Pernicious Anemia is when the stomach no longer produces adequate levels of Intrinsic Factor. This condition can develop from long-term use of antacids, and probably other things. But Pernicious Anemia does not develop from low B12. It's the other way around. That... -
ARCHIVED Have Any Opinions About B12...?
RiceGuy replied to Kim27's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The methylcobalamin is an ordinary vitamin supplement, which you might find at a health store/vitamin shop. I order it on line. Taking both the injections and sublingual at the same time seems like overkill to me. I haven't seen any articles comparing the effectiveness of the two, but I can't imagine the shots not working just as well if not better. The... -
I also grew up with both Celiac and candida. The symptoms do overlap a lot, but never did I hear any doctor mention either. You could take caprylic acid capsules, and use coconut oil in place of butter, margarine, shortening, etc, and take other candida-fighting supplements. They probably won't hurt, even if you don't have a candida overgrowth. Just don...
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ARCHIVED Have Any Opinions About B12...?
RiceGuy replied to Kim27's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
IMHO, your level is not just low, but very low. I've read that the body cannot assimilate more than about 5-6mg of vitamin B12 per day. So although the shots may get the serum level up more quickly, I don't know if it's just putting a bunch in circulation, until the body can actually assimilate it. Can't hurt however, except perhaps the ouch from the needle... -
ARCHIVED Constipation...
RiceGuy replied to ToriMartin's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Do consider dropping soy, and all other top allergens. That includes wheat (or course), dairy, soy, corn, nuts, peanuts, eggs, and shellfish. Try coconut milk/cream for a creamer, but coffee may be adding to your problems. One easy way to find out - no coffee for two weeks or more. No other caffeine either. You may experience withdrawal, but it will pass...