teebs in WV

If I were you I would ask for another biopsy. Even though you are gluten-free, it can take a long time for it to get completely out of your skin (as you mentioned). I was diagnosed via skin biopsy in Oct. 2005, immediately began gluten-free diet and started dapsone at the same time. I have tried many times to go off of dapsone but I still break out after...

Thanks Dee. I found the PBCers website and actually found a doctor that is in the same GI group that I go to. I am going to ask to be referred to him. I have never been tested for any vitamin deficiences or osteoporisis. I asked once and was told I was too young to worry about it (AAAAAAAAAAAHHH). I have done so much research on my own on PBC and based...

I made a huge batch for Christmas. My great-aunt always made Chex Mix for Christmas (her own special concoction) so it has been a family tradition for years. I took over the duty when she passed away in 1993. Last Christmas - my first being gluten-free - I didn't make it. This year, I decided I would try and bought the corn and rice crunch 'ems that everyone...

Based on my personal experience, a knowledgeable dermatologist is a must. I was very lucky that my derm took one look at me and was very certain that I had DH before he even did the biopsy. I had no GI symptoms at all - just the itchy blisters. I suggest searching the internet for dermatitis herpetiformis + dermatologist + your state and see if you can...

Would you mind sharing the name of the resort/hotel where you stayed? Thanks, Tracy

I honestly do not know why - that is what I have read in my personal research. Someone else on here may know. Anyone???

Everyone is different - I am sure someone out there has DH that is not symmetrical - but it typically is (mine is). The biopsy needs to be beside a lesion - not an actual lesion. My biopsy was taken right beside one on my elbow and came back positive. Good luck - I hope you figure out what your issue is. Although if the gluten-free diet has helped...

Happy Birthday Judy - best wishes for a great day (what's left of it anyway!) Tracy

Thanks for posting. I always like to watch anything on TV that mentions Celiac Disease - let alone a whole 20 minutes! Thanks, Tracy

Dee, Thanks for your input. I had the biopsy and the diagnosis came back as Primary Biliary Cirrhosis. I have been gluten-free for over a year and my enzymes kept rising, so it doesn't sound like what worked for you is going to work for me. I was given Ursodiol 300 mgs 3 times a day but haven't started yet because I got the flu. I didn't want to take...

Silver Bells is my all-time favorite - although there many very close runners-up. I listen to Christmas music beginning on Thanksgiving and don't stop until New Year's Day. We have a local radio station that starts playing Christmas music the Friday after Thanksgiving 24/7 through Christmas. We have another station that plays it all day every weekend between...

For those of you in the Columbus area (and Mamaw over in PA), I was at the new Raisin Rack store yesterday. The shelves are not completely stocked yet - there were boxes in the aisles with employees working feverishly to complete the task. I wiped out some of the Tinkyada they had on the shelf (they had more in boxes though) . It feels much more spacious...

Nature's Path are really good, but all of the places that I used to buy them have stopped carrying them. I am glad you guys posted online places to buy them. Thanks! Tracy

ooooooooh - this sounds good! I always loved pink cakes! Thanks for sharing. Tracy