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SLLRunner

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Everything posted by SLLRunner

  1. SLLRunner
    That sounds like food poisoning to me, since (1) corn has no gluten in it and (2) you have been eating corn fine your whole life. The only other alternative would have been if they used a coating or spices with gluten in it, but it seems unlikely to me for some reason. Hope you're feeling better.
  2. SLLRunner
    I agree with what others said. You should do the research prior to posting about opening a business based on gluten free products or foods.
  3. SLLRunner
    Hi Jenny, Welcome. I know some people have been diagnosed celiac just via blood tests before. I would talk to your doctor and find out what the next steps are. However, I believe that not eating gluten can make your endoscope come back negative for celiac even though your blood tests were positive.
  4. SLLRunner
    Hi, Welcome. Have you taken your son to the doctor yet? If you believe gluten is his problem, then I suggest you talk with your doctor about getting him tested. Could he be behaving badly due to reasons other than diet?
  5. SLLRunner
    Hi Stephen, Welcome! I am not sure because I've never drank this beverage, but gluten can be hidden if the ingredients say there are natural flavors (sometimes barely is used as a flavoring). To be on the safe side, I suggest calling the company who makes the beverage. Milk, soy and nuts are listed, so it seems to me that they would have listed...
  6. SLLRunner
    Last year during an extremely stressful time, I was diagnosed with gastrtis. For months I had horrible excruciating stomach pain, gurgling, hot sweats/chills, letgargy, and my chest was so tight I felt like I was having a heart attack. Gastritis can cause some awful symptoms. Meds didn't help me at all, but stress reduction did, as well as dietary...
  7. SLLRunner
    @GFinDC and @cyclinglady, thank you for the support. I know adjustment takes time, and I know with 100% certainty that my partner is not trying to be non-supportive, he just doesn't know how to handle what is going on with me. GFinDC, I can't stand the taste of barley or rye, so I'm better off just sticking with the plan as it is now. I can do this,...
  8. SLLRunner
    Hi everyone, Many of you already know my saga of trying to get properly tested for celiac, but it never actually happened. For those who don't know my story, I dropped that insurance when I changed jobs and went a different route and ended up with a very kind GI and registered dietitian. The GI put me on a low FODMAP diet with dietitian supervision. ...
  9. SLLRunner
    Yes, I had those symptoms and they were horrible. A endoscope revealed chronic gastritis (last year). I was not properly tested for celiac (they did one biopsy during the endoscope, and they did not take the full blood panel), so I don't know whether I have celiac or not. However, I do know I feel physically sick with some of the symptoms described here in...
  10. SLLRunner
    Hi @Rdugdale, Welcome! I was tested for celiac, told my numbers indicated I did not have it, got the runaround from the doctors when I told them the full blood panel was not taken, changed to a different GI who spent umpteen time with me and asked me to try the low Fodmap diet under the care of a dietitian because (1) it sounded like I could have...
  11. SLLRunner
    I agree with the two previous posters that you need to eat more. There people with celiac who are overweight as well, and some who are of normal weight. Make all your foods at home and increase your portions. If you are not sure how much you should be eating, there are plenty of apps out there where you can enter your height, weight, age, gender and weight...
  12. SLLRunner
    Meredith, this is very true. A colonoscopy is for diagnosis of the lower intestine, endoscopy for the upper intestine. How did your doctor interpret the tests? I suggest you read the link Cycling Lady gave you because it contains a lot of good information.
  13. SLLRunner
    Meredith, Welcome. The poster you are addressing has not logged in since 2011, which is five years. Chances are you will not get an answer back. How did your doctor interpret your tests?
  14. SLLRunner
    I did not have allergy testing through a naturopath but considered it once. I did not go through with it because she said she could find out what was wrong with me and "cure" me. Since it sounded like woo mixed in with expense, I ran the other way. I'm surprised your insurance did not pay for allergy tests. I had allergy testing (blood test) via an...
  15. SLLRunner
    As some may recall from my topic "Test Results" started a few months back, I have been through the ringer with getting anyone at Kaiser to listen to me about my digestive issues. I changed insurance, had a long consult with a new GI who specializes in celiac and gluten sensitivity who listened as well as educated me, asked me to try the low FODMAP diet, and...
  16. SLLRunner
    It sure is, it really is.
  17. SLLRunner
    Today was the big day when I went to the GI and this is the first time I have felt heard and taken care of. I told him about the two celiac blood tests (in my first post) normal, he said that often happens, even with people who do have celiac and he needed to see the report and pictures from my endoscope. I had filled out the appropriate Kaiser paperwork...
  18. SLLRunner
    Welcome, Kierra. You're only 15 so you need to make sure your parents are 100% aware of your medical issues so that they can advocate for you. It may or may not be celiac, but the only way to find out is to start with a full celiac blood panel, then an endoscope if necessary. However, for the tests to be accurate, you must consume gluten on a daily basis...
  19. SLLRunner
    Hi Joy, Welcome! In a nutshell: your doctor is wrong, you you right. Biopsy is the gold standard, and the biopsy showed you have celiac. You need to take your diagnosis seriously and work to avoid cross-contamination. You also need to advise your family of your diagnosis because celiac is hereditary. Also, you might want to look into getting...
  20. SLLRunner
    What's interesting, too, is that I was previously diagnosed with GERD and Gastritis, both of which seemed to have calmed down somewhat. When I was at the doctor, she asked how my GERD is and I told her it's pretty calm now and I'm not too worried about it anymore. Do you know what she put down as a diagnosis that day? Heartburn. Gee, I would think digestive...
  21. SLLRunner
    My GI consultation is August 30, and I am on a wait list to get in sooner if possible. However, if it's not within the next few weeks, I will take things in my own hands and start a gluten free diet.
  22. SLLRunner
    This study talks about staining Open Original Shared Link But I don't see where it mentions staining done following a gluten free diet.
  23. SLLRunner
    This is almost verbatim of what I was going to say, except for the doing it for fun part.
  24. SLLRunner
    Not a good option for me because of lack of trust due to this at their website: You're not supposed to stop eating gluten until all testing is complete.
  25. SLLRunner
    Exactly, which is why I will offer to pay for the full panel. I would rather be safe than sorry.
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